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-   -   Saffy: My Journey to SCS (https://www.neurotalk.org/scs-and-pain-pumps/138676-saffy-journey-scs.html)

Saffy 07-12-2011 01:09 PM

Ha Ha Mark .. OOh I bet you had a smile .................................................t his wide !

I have been bed resting the last two days due to back spasms .. which seem to have increased since the op for some reason .. probably coincidence. Anyhoo .. I've just been to our local shop and bought a nice botle of Merlot and am enjoying a glass. Feel loads better already ! (*grin*)

Mark56 07-12-2011 09:21 PM

Physical Therapy
 
Hi Saffy! Oh, those spasms..... hurt, they do..... and not good at all. Do your consultants have you engaged in any physical therapy? The reason I ask is that one true help I found aside from Flexoril has been a very warm therapy pool in which my therapist would have me progress through a routine of exercises. At first the exercises were taken very easily, then progressed to a more vigorous workout which ultimately would take me two hours three times per week, but the spasms did seem to calm.

From time to time I will have spasms although rarely now. Just a thought.

Yes, I loved your image of my wide grin, about this big
: o) Yeah, just kick in that turbo...... and pass a big truck.... zoom.................................:D
Mark56:)

Saffy 07-13-2011 12:09 PM

No .. the people at CHesterfield Physio discharged because I was still having problems with my stim. As you say, I could probably have done with some gentle hydrotherapy. I'll get onto my main Physio at Sheffield when I get the chance ... it's just that at this moment in time I'm waking up and I really can't be bothered to do anything !!

Saffy 07-19-2011 03:57 AM

Well .. I'm glad I chased them up as I only got a call yesterday from my Pain Consultant who had only just received it (from 2 week's ago!) ...


They're having a meeting on Wednesday so I will hopefully know something by the end of the week/month/year ... tick which one YOU think it will be .. lol

ron h 07-19-2011 09:50 AM

Quote:

Originally Posted by Saffy (Post 787845)
Well .. I'm glad I chased them up as I only got a call yesterday from my Pain Consultant who had only just received it (from 2 week's ago!) ...


They're having a meeting on Wednesday so I will hopefully know something by the end of the week/month/year ... tick which one YOU think it will be .. lol

i say at least 3-4 weeks. my revision took may 11 to July 27. to get things done. they are not pain. so time means little to paperwork.
ronh :grouphug:

Saffy 07-19-2011 01:50 PM

OOh that's not long !!! My pain doc called yesterday and apologised for not getting in touch sooner, but they are having a meeting re. myself tomorrow .. so I should hopefully hear something within the next week or so.

The X Ray showed the leads were still perfectly placed .. so who knows. (To be honest, I thought my falling off the lilo in the sea when a rather huge wave decided that I shouldn't be floating on the sea, might have caused damaged, but no.

I've not been lifting heavy weights or anything .. but after a couple of weeks after the op I was cleaning and doing bit of weeding in the garden .. cleaning the rabbits out and so on. (I'm that sort of person .. I just can't sit and look at things that need to be done)
Am quite chuffed that even after all I have been doing the leads were ok.

Mark56 07-20-2011 10:46 AM

Good News about the leads
 
Now, assuming the meeting was truly discussing, among other things, your case, I vote for them to be back to you Tomorrow [I am just that way, built with this obsessive optomist gene or something], so there you have it. My vote. I hope your ride in the sea was not too cold since you were drenched.

Regarding light housework and garden work from your knees or squatting and NOT bending, seems like you oughta be good to go, maybe with need of a tweak of some sort.

Blessings on you Saffy,
Hey, we oughta race Tootle against PJ [my white little car] could be fun, and stimulating and all of that! Just have to cross that large body of water in between!:D

Prayin,
Mark56:grouphug:

Saffy 07-28-2011 06:21 AM

Hello my lovelies .. well .. am awaiting a call from Donna (Nurse) to ask what went off at last week's meeting.

Fingers crossed she will have SOMETHING to say !

Saffy 07-29-2011 01:39 AM

Well, no call as yet .. There's always time, she's only a day late in returning my call yesterday.

Beginning to feel a bit like a discarded sock.

Sophie_ 07-29-2011 05:20 PM

Those awful spasms
 
Hi Karen,

How are you? Have you heard anything yet from the nurse? You're right to follow up with them, even phone your Consultant directly, i've done this too although I don't like doing it but sometimes you just have to, I told him this too that I wouldn't ring unless I was in alot of pain.

I was speaking with Rae recently and she mentioned that she too also suffered awful spasms after the surgery and i've had the revision surgery and they upped the voltage on the leads and now my stim is working better but I haven't had much luck with the pain yet. Perhaps the spasms after surgery are just par for the course and they will sort themselves out eventually.

I had an appointment for next week with my consultant, I wanted to speak to him about the surgery and discuss these spasms and what next if there is anything next, i'm in desperate need of some hope that this isn't it and they cancelled the appointment until the end of August which will be two months after my revision surgery.

How long is it now since your surgery?
Alot of what you say reminds me of how I am, I too want to be out doing stuff that I probably shouldn't be doing, things that i'm not able to do but because I want to do it, I do it and pay the price later.

Sinéad xxx :):)


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