NeuroTalk Support Groups - Saffy: My Journey to SCS

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- SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)

- - Saffy: My Journey to SCS (https://www.neurotalk.org/scs-and-pain-pumps/138676-saffy-journey-scs.html)

Muchas gracias mis amigos

Buenos noches mis amigos, Mark and Joan

Right enough Spanish! I love it but i'm not that good!

Thank you for letting me know about your Neurontin experiences, if the brain fog arises at least I'll know what it is and it won't scare the hell out of me. The Doc has started me off slowly one twice daily for the first week and then up it to two twice daily next week.
Wait and see what happens I'm just hoping it will help me until I get to see my Consultant.

Thanks again a chara, (Irish for my friends)

Sinéad xxxx :grouphug::grouphug::grouphug:

I just had another thought, Sophie...we were talking about this very subject over on the PN board here: http://neurotalk.psychcentral.com/thread153919.html, and mrsD said something about drinking lots of water because your kidneys need to excrete it.

Chug-a-lug!

Sophie how could you sit and wait to see your GP for two hours:eek:

My GP has been our Dr for years. So as sson as he knew how bad I am suffering he will give me an appointment before he actually starts his surgery. That way I only have to be there for as long as the consultation takes.
Maybe you should ask your Dr to perhaps make an appointment before he starts? Just a thought. Because two hours for me would have me flat on my back :D

Jackie:hug:

Quote:

Originally Posted by Sophie_ (Post 794325)

Dear Jackie, Karen and Mark,

Thank you all for your thoughtful messages, it does help, I know I'm not alone, I guess I needed to get all of that off my chest and sharing does help.

This morning I went to see my GP, I had to wait for 2 hours in the waiting room and by that stage the doctor had to help me walk to his office LOL, kind of embarrasing but I did say I wouldn't be able to sit for long! Anyway, he was very understanding, he knew I recently had the revision surgery and I explained that in terms of pain relief it hasn't made any difference.

I showed him my list that I have for my consultant when I see him just to give him a picture of where I am. He suggested going back on the Lyrica to help the nerve pain in my leg but that was a no no considering I piled on about 2stone the last time I was on it, I still have that flaming 2stone! :(

He then suggested a drug called Neurontin, has anyone heard of that? I looked it up on the web and apparently it's is an anti-epileptic medication and is also used in adults to treat nerve pain. So i'll give it a try and see what happens.
As for the downess, i'm already on Cymbalta 60mg per day but he's also gave me some xanax and that does help with the nerves and helps me calm down a bit. It's basically to get me through the time when I see my consultant.

Just thought i'd fill ya's in, i'm feeling better at the moment in terms of mood

Chat soon and thanks again mis amigos :)

Sinéad xxxx :grouphug::grouphug::grouphug:

Lay on the Floor

When I was pre-SCS and could no where near sit as Sophie was required to do so, I would lie on the floor. Doc's don't like patients lying on the floor, so I would get moved to an exam room where I could lie on the exam table, at least it was cushioned a bit better than the floor.

Mark56:mad:

Hi guys,

That's a good idea Mark, I did lie on the floor when I was the teenager that no Dr would believe! Thankfully my GP did say to me to call down at 8.30 and he would see me then. The reason why I didnt do that in the first place is because the receptionist told me he had to stop doing that has lots of people were doing it and it was pointless!
I guess next time I will ring him and let him know I'm calling, I have his mobile number.

Thanks guys for your suggestions

Sinead xxxx

By the way ... paddle lead arranged when Jeremy can fit me in one of his free theatre slots. He's off for two weeks this month so it's likely to be October. :D

Oh How I Hope The Paddle Works

Dear Saffy- May your ultimate receipt of paddle do what you need as you receive it! My experience with paddles has most assuredly been THE ticket for me. No slippage on my end. SO..... if, as, and when you receive this solution to your need, my prayer is that you find the paddle WORKS for you!!!:hug:

Prayin as you are waitin,
Mark56:hug:zzzzz

Hi Karen,

Its funny how the same technology hadn't worked for either of us but I'm delighted that you'll finally get sorted and before I have this next implant I'll ask again about paddles, the way I see it is they might as well do it right the first time and then there is no need for all this pain and silliness afterwards.

Happy for you hun

Sinead xxxx :)

I had a really good talk with Jeremy, told him thatbthough I had told myself to be realistic about the pain relief of a stim there was that little bit of HOPE that it would do more.

Now I know for sure the stim will not cure the pain and yes,i will no doubt still need meds so I am telling myself I won't be returning to full time work ..just in case, this might realistically work better for me .. The paddle I mean.

Then if I do manage to get work, it's a bonus. But I'm not going to put pressure on myself any more. My husband doubts I will go back to work as I can't say from day to day what state I will be in and the meds make early mornings an impossibility. (the only reason I am awake now is because I have had a massive flare up in these last three days)

I have a disabled badge which allows me to park nearer to the shops when I am able to get out .. A god send. And of course, I have tootle, without who I would be confined to the house.

I can't wait for my stay in The Hotel Hallamshire as I call the hospital. Lovely people and a wonderful hospital.

Hi Karen,

That's a good way of looking at things, if it happens you can go back to work even half time it would be great, what did you work at if you don't mind me asking? I too have a parking permit and it's a godsend for when
I'm in bits but in saying that I haven't been to the shops in ages, every weekend I think yeah maybe I'll be able to this weekend but nope it just won't let me, the pain that is. What's a tottle? I've never heard of that one! :D
I guess I'm lucky in my job that I can work but by God it's really difficult, I come home in the evening and all I want is to lie down and sleep. This sickens me a bit as before all of this I'd come home and I couldn't wait to go walking or swimming. That's life!
We will get there and I'm so happy that you have a time frame for your paddles, did you have any hassle with Bupa covering it? I'm with Aviva and I'm
thinking I might just give them a call and ask them myself if they would cover the new implant?
Chat zoom

Sinead xxxxx