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-   -   Saffy: My Journey to SCS (https://www.neurotalk.org/scs-and-pain-pumps/138676-saffy-journey-scs.html)

Saffy 12-07-2010 08:15 AM

I thought I'd do an update to say HELLO .. Mike was off all last week so I had company and no chance to miss my little car. This week we are all snowed in, our estate is like an ice rink, so have not had chance to miss my little car again either.

Tomorrow though, I am driving Mike to work (about 20 miles away) then back .. then to Chesterfield so I can get my hair cut. Not had it done since July and we have a Christmas Dinner to go to on Sunday, so I want to look nice.

I need to get hold of a stick aswell as I don't want to wander around with crutches, drawing attention to myself and having to explain over and over again, what is wrong ...

Just wrapped a load of Christmas presents this morning so now I'm onto making linings for the curtains in my daughter's bedroom.

Busy busy ..

and only 7 more days till the BIG meeting.

irljenn 12-07-2010 08:47 AM

Hi Saffy
Great to hear from you! glad you have not had a chance to miss the car yet! and i hope you have a nice night out on saturday night!.

I also walk with one crutch and get fed up being asked about it 2 but i think i am afraid of buying the walking stick as i am in someways afraid it will bring extra attention ie i am 38 would people think i was looking for attention with a walking stick!! the walking stick would be so much easier for me as the crutch keeps falling or slipping when i lean it against things and is hard to use when i am with the kids as the kids hold on to the crutch rather than my hand!!

I know i should not care what people think but i guess this whole thing knocked my confidence long ago and that part of what people think really does worry me!!

anon21816 12-07-2010 09:48 AM

Saffy good to hear that the car issue isnt keeping your spirits down.

Tell me bout the SNOW!!!!! OMG we are just so fed up with it now. It hasnt touched above freezing for the past 10 days and its an ice rink out there too. But my 4X4 is doing a great job;)

Its good to hear that you are going out and about and good for you. Its been a long time since I have actually gone out at night to a social gathering. Sitting just isnt for me for too long:mad: Im up and down up and down....but so glad to hear your in good form!!
Only 7 more days for your meeting , terrific:hug:

Jenna......dont you DARE mind what others think about your crutch or stick......you NEED it you USE it and to hell with the rest of them. Look people just love to think that everyone is 'faking' it. In fact years ago before my back problem started, I used to do HR and when one of my staff rang in to say they hurt their back, I used to be soooo sceptical....but not anymore!!!
You have to go through it to know what its like, and just because you might look perfectly healthy doesnt mean that you arent aching inside.
Same with the stick or the crutch.....why would you use it for 'show'...and if anyone did think that well thats the level of their mentality......You go and use it and stay safe......

Only 2 more days YAY!!!!!!:hug:

Mark56 12-07-2010 03:00 PM

Hey now
 
I use a cane and even sometimes my wheelchair. It depends whether the jaunt is a bit too far, or the standing a bit too long, ........ so, just use what you need, and what other people think..... well to #%&## with their thoughts. Our needs are our needs, pure and simple.

Yep,
Mark56:hug:

Saffy 12-14-2010 09:07 AM

Bonjour my dear friends. I am sitting here listening to the washing machine .. it is sounding decidedly un healthy! This always happens at Christmas, something majorly electrical decides to give up the ghost, putting yet more pressure on our wallets.
Grumble! :D

Am sat here too, wondering if the "team" have met to decide on a trial date for my stim yet ... I am so excited, yet a little bit worried that they will still turn around and say "no deal" - people keep assuring me that they wouldn't have spent all these resources and appointments to turn around and say "no" at this stage. I'm one of those folks that need the evidence in front of me first though ... *chuckle*

It's a miserable day here in the UK. Not sure what I like the best ... snow or rain? Though apparently, there is a load of snow heading our way for Thursday ready to drop from the sky and make this dull, depressing place, look all restive again.

I've got the Dotors in the morning and will pick up the last of my presents and then that's it .. I can settle down and wait for Santa!

I hope you are all keeping smiling .. and I thank you once again for the lovely acceptance I have had since joining this forum ..

Mark56 12-14-2010 11:25 AM

Bonjour
 
Bonjour, quelle joyeux Noel! Feel positive about the trial! It will come..... it will come. And THEN..... WOW. The amazing magic of Christmas install is that if they approved you properly is THAT IT WORKS!! That is what all of the trial is about. I am counting on it being in your favor.

Praying,
Mark56:hug:

Saffy 12-18-2010 12:21 PM

I've been horrendously depressed .. and try not to come on here when I am feeling that way as I don't want you all to think I'm a moan and groaner.

Sciatic pain has been pretty bad since last weekend, though that may have had something to do with the fact that I dosed myself up with pain killers and drank on top of it on Sunday at the CHristmas Party .. and even managed a dance.

I felt fine on the Monday, but since then the pain has been coming on stronger ... oops !

Had to go to the Doctor and she is concerned I may have a stomach bleed so has changed my "tummy protector" pills from Ranitidine to 40mg Omeprazole once a day. Am suffering a few side effects I THINK .. and I say I think because the extreme tiredness may be from the other meds too .. oh hum!

Anyhoo .. am awaiting a letter from the Hospital with news on my trial ... trying NOT to be impatient, but must admit to watching out for the postman ever morning.

Been trying to get out and walk with my crutches daily, but by, you do forget that with not being able to walk fast, when the weather outside is in minus figures, you really feel it!

Other than that .. enjoy your Saturday night everyone ..

Rrae 12-19-2010 01:19 AM

I'm sorry to hear this Saffy....
 
I had been battling that depression cloud off and on quite a bit, so I certainly know how this feels......:hug:
This is the place to bring the frustration my dear friend!! Please don't make the same mistake I've done in the past......and that is the mistake of isolating and putting up walls.....not wanting to 'be a bother' to others....

We were having this very discussion on Tara's thread, as she too has been struggling. We ALL do! It's kinda of like we get hit in 'waves'......depending on what we are going thru in our seperate little 'worlds'.....I believe with ALL my heart, Saffy, that we SHOULD come here to talk it out......
That's what this forum is FOR! yes? :grouphug:......

You are trying to cope with the frustration and anxiety as you wait for answers regarding your trial.....and the days must seem like MONTHS, as you are dealing with that sciatica pain......and you are trying so hard to stay above that pain, but the meds are bringing on side effects, which further aggrivates things! It's no WONDER you are feeling this way!

Please hang on to HOPE......you WILL get that call.....and then you can finally get the trial procedure and our prayer is that you will instantly know if the SCS is going to bring your quality of life back!
The cold weather and not being able to get out.....:(.......you've got so many things stacked against you right now.....

I try my best to hang on to the Hope of that 'New Day'....and remind myself that 'This too shall pass' !! But, unless I come here, the place where my PEEPS are....the place where we all understand each other's ups and downs.....if I keep to myself for fear of being a 'bummer'....it only makes it worse. We build each other up. We pick each other up.
Things are gonna start shining for you Saffy......the sun is gonna peek out and shed some light and you will get the incentive to hang in there...because your day is coming!........SOON!! :circlelove:

Always Caring,
Rae
:hug::grouphug::hug:

anon21816 12-19-2010 03:59 AM

Saffy so sorry you are feeling this way. Like Rae said we all go thru this now and then obviously part of this awful pain we all endure.

I'm praying the hospital will contact you very soon. I know what you mean bout bad weather :eek: we have snow back again and it was -9 last Night brrrrrr

Try to stay upbeat and enjoy your Christmas you always sound so cheery :)

Take care

Jackie :hug:

Mark56 12-19-2010 06:44 PM

Saffy Stay Connected
 
Depression can grab a firm hold on you and prevent your very connection with the likes of we who are supporting you. Been there, done that, it is NOT a good place to be.

Stay on here and share so we can respond, hold you up best we can, give what we have to give and come alongside. That wait for the letter or call letting you know of the scheduling date for the trial is a long long wait, I know and remember thinking it was not going to come........ then it did. THEN, once I had the AHHHHhhhhhh of WOW, this works, I had the wait through infection, healing, and scheduling for the real McCoy, the permanent install, and believe you me...... it seemed to take quite a while to get on calendar....... THEN..... it was there! Voila'

It'll come, it'll come, it'll come..... yes it will.
Prayin,
Mark56:hug:


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