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-   -   Saffy: My Journey to SCS (https://www.neurotalk.org/scs-and-pain-pumps/138676-saffy-journey-scs.html)

Saffy 12-21-2010 06:00 AM

Gnash gnash ... eeee eck, I thought I'd have heard something by now? The Team Meeting was on the 14th ... am I being too impatient?

I've got to go and "sign on" at the Job Centre today, because despite all my issues I am in the "back to work" group which means I get a higher benefit .. Let's face it though, who's going to take me on at the minute? And who's going to take me on knowing I will have to have a couple of month's off next year. Well I hope it's next year and not the year after)

I'm partly incontinent because all the meds that clog you up have to be "moved" some way .. and embarrasingly, even when I go for a wee a bit of the the other comes out. And as for passing wind ... I daren't !! I have to sit and clench my buttocks till the feeling gets away or I can get to the toilet!

I'm stumbling all day like a drunk because all the meds I am on have sedative effects and my vision is impaired because of the side effects of one of my meds ...

It would be some brave employer who would take me on ! :D :D

Saffy 12-21-2010 06:01 AM

.. and my car is now a squished up square of metal ... WAAAAA !!!

Rrae 12-21-2010 05:17 PM

You speak my language!
 
Ohhhh yes...... :rolleyes: Now, I KNOW this is not 'funny', but, oh dear Lord the way you tell the tale just made me laugh! :p
I'm sure I speak for most in saying that we've all been THERE! ....... But, the flip side of the coin is when nuthhhhing 'moves'.......
....you sit there....and sit there.....:icon_mad:.......and squeeeeze......huff *puff*.......(birthing-technique breathing helps).....and you sit there some more.....waiting......:Crowded:.....FINALLY!...
...one makes it's way through!.....and you hear this.... *plink* in the water.......yep, a tiny little 'rabbit-sized excrement'..... (are we allowed to say 'turd'?) :icon_eek:

And what is the 'reward' in all this??
BIG FAT juicy GRAPE-like HEMORRHOIDS! :eek:

The reality of this speaks for itself, so I spose I needn't have typed out the graphic details......but just so's we know we are on the same page.....
(besides, this helps me to keep pre-occupied from realizing there is an ELF on the INSIDE of my skin, perched on my spine using a BUZZ-SAW trying to make his way OUT of my lower back!!) :eek::eek:

I hope you are feeling better :hug:
I truly am sorry about your car :(

Maybe make a phone call in to the office to try to get the 'status' of what the team meeting had discussed? May be a shot in the dark, but at least you'll know that THEY know that you are waiting. Never hurts.

Mark56 12-22-2010 12:07 AM

Wordless
 
I would write something trying to be helpful, but, gee, after Rae gave it her all I don't know what to say besides, been there experienced that, didn't remember the Lamaze method of elimination though, hmmmmmm. Do remember the rabbit pellets though...... after alll of that work [and I guess you can say that word, Rae.... interesting, since we cannot express bereft, b e r e f t, due to the censor]

Making a call to the team and inquiring what they came up with does sound like a good idea for sure.

Prayin,
Mark56:hug:

Mark56 12-22-2010 12:08 AM

Hmmmm I guess we can use bereft
 
thought it would come out b****t like other words have.
Mark56

Saffy 12-22-2010 04:04 AM

*grin* ... eee dear ... well as long as it made you smile folks, it's all worth it!

Love you all x x x

irljenn 12-22-2010 11:06 AM

I am PMSL at Rae's post and yes we have all been through it but the way Rae describes it is priceless!!
Well i am also all banged up and i refer to it as my turtle moments (in out , in out) god what are we like!!

I have been on Katamine for last few weeks and i am blaming that wonderful drug but i have decided not to take it anymore if i can as i am sure its not good for me long term so as much as dr said not to change my meds i think im doing ok without it!

Saffy i cannot believe you are still waiting for a response I dont see why these people can do this to u but i am hoping you get an early xmas pressie and that one of them decides to let you know soon. I already know for me it is helping so much and only wish the same for you real soon.

xx jenna

Saffy 12-22-2010 12:35 PM

I phoned the Hospital and asked to speak to Donna, the Specialist Nurse, but she was in transit between one hospital and the other so they took my name and number and that it was with reference to my Stim, but still not heard anything and it's 5.30 pm. :O(

anon21816 12-23-2010 02:56 PM

Oh Saffy
 
Saffy:hug: I know EXACTLY how you are feeling....waiting on that flipping phone to ring. How frustrating for you. Nothing as bad as being told 'yes we will get them to ring you back' so you wait......and wait........and wait.......and even wait a bit more and nothing.....zilch.......zero!!! isnt it the worst thing...I just think its the height of rudeness.

When I worked in the bank, I had a note book which I wrote everything into, if I spoke on the phone to them or they called me. And I would go through that list before I went home. If I had promised to call back I did. or if I hadnt the information they needed until the next day, I phoned them to tell them that. Because thats how I want to be treated.

But Saffy it will all come together. This is the worst time of the year to get anything done isnt it. Im sure once the New Year starts that you will be on here giving us dates and times etc:D

So I wish you and yours a Very Happy Christmas and New Year

Jackie:hug:

irljenn 12-24-2010 04:55 PM

HI Saffy

It's now christmas eve and I guess those pen pushers did not bother to let you know or give you a status update as Jackiey said its just basic stuff to update someone and not leave that in a limbo but i guess these people have no clue what you have gone through in your life and how much pain you are in now we all just become a patient number.

For you i wish only that your new year starts with all good news but i do hope you can have a nice christmas also with your family. look forward to chatting again with you in the new year:hug:


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