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Old 12-24-2010, 08:12 PM #31
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I phoned the Hospital and asked to speak to Donna, the Specialist Nurse, but she was in transit between one hospital and the other so they took my name and number and that it was with reference to my Stim, but still not heard anything and it's 5.30 pm. :O(
Saffy, I am so sorry you are still waiting for a response! I went through the same thing and I had to constantly call doctors and the surgeon's office until I got an answer. It is frustrating and I am so sorry that you are going through that on top of being in pain! I do hope you are able to have a good holiday and Christmas I also hope that you get your news very soon! Sending lots of 's your way! Take care.
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Old 12-27-2010, 10:39 PM #32
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Default Sprry You are having to wait so LONG

Oh Saffy, it seems inhumanly long to wait through the holiday season for your answer. Here's prayin that it comes through SOON!!

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Old 12-28-2010, 10:38 AM #33
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I've not been on much because I'm having a really "down" time .. plus it's the anniversary of my Dad's death tomorrow .. tho it's 14 years and time does heal, some dates do bring the raw memories back ..

I'm smiling at you all ... and I'll be back soon.
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Old 12-28-2010, 11:02 AM #34
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Heart Thank you for sharing this, Saffy....

Losing a loved one is hard enough, but to lose him during the holidays must have made it SO much more devestating! I'm sorry to hear of this saddness. .....
I know, no matter how many years go by, that 'day' is always going to be a sad one. And we can't help but allow our hearts to go back and re-live it in our mind. I guess it's only natural......but it sure is hard.
Go ahead and let the tears flow. That's what I do and it feels 'right'.
You can still celebrate and honor your Dad's life....and it's ok to cry as many tears as you must. It may sound a bit strange, but in my experience in losing my Brother, is that the more tears shared as we talk about him, the better it heals our hearts. Because some of those tears are shed as we talk about and reminisce of the happy times. Sometimes we even laugh during these tears. Let them flow. They can be like music to the soul.

A (((HUG))) to a very special Friend
...(((Saffy)))...
........Rae
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Old 12-29-2010, 09:46 AM #35
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To let you all know. Precisely 15 minutes ago I got a call from my Nurse, Donna. The meeting went well and I am now on the list for the stim. They do them every other week at The Hallamshire in Sheffield, UK and it's usually a case of going in on the Tuesday .. down to theatre WEdnesday afternoon ... faffing about for a few days till the settings are ok and then implanting if this is what is going to help!

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Old 12-29-2010, 11:11 AM #36
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Default Great news!!

Oh Saffy thats fantastic news....your on the list woooooooohoooooooo

I do hope that they can now give you a more definite timeframe, so that you can get yourself sorted etc.

Here where I had mine done, my Dr only does an implant maybe every 4/6 weeks as he generally likes to leave that time between trial and permanent implant.....wants the first incisions to heal fully BEFORE he opens up again with MORE incisions........men eh

But this is great news and I hope it all goes really well for you now....Roll on 2011 for sure!!!

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Old 12-29-2010, 11:56 AM #37
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Guess they're all different. Yes, Donna said I would be in the Tuesday and down in theatre on the Wednesday and even, if everything went well, full implant on the Friday .. though it's usually longer, but she says it's not been unkonwn for it to happen so quickly.
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Old 12-29-2010, 11:57 AM #38
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Guess they're all different. Yes, Donna said I would be in the Tuesday and down in theatre on the Wednesday and even, if everything went well, full implant on the Friday .. though it's usually longer, but she says it's not been unkonwn for it to happen so quickly.
By the way .. I asked her what leads they might be using .. she said she had no idea as I was her first patient she was following through from start to finish, but she imagined "bog standard" whatever they are .. lol
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Old 12-29-2010, 01:46 PM #39
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Laugh Oh MY!! FINALLY!!

YaYYY SAFFY!!! GREAT NEWS!!

FINALLY you get the call!!
This is so wonderful! It sounds like things will move right along now!!

So Happy for you!

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Old 12-31-2010, 12:07 AM #40
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Smile Thrilled Saffy!

Great news you have a date and are on calendar...... but the "Bog Standard?" What in the world is that the percutaneous leads such as Rae has had trouble with or paddles like I have? Whatever they do, I hope your trial does prove convincingly pain relieving and that you find yourself going the full distance for implant!

Prayin,
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