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-   -   Saffy: My Journey to SCS (https://www.neurotalk.org/scs-and-pain-pumps/138676-saffy-journey-scs.html)

eva5667faliure 05-11-2012 03:02 PM

Quote:

Originally Posted by ger715 (Post 878304)
i had fusion/laminectomy surgery about 5 1/2 years ago. It was at the l4-5 level with a badly crushed nerve (surgeon said he had never seen such a red angry nerve like that before) my spinal cord was also in need of some of the covering removed (laminectomy) to allow a little more room. Still areas that are not good; but this being the worst.

The main reason the narcotics causing the constipation and awful straining enabled the bladder to come almost out was because of something i had never known or been told about. When a woman has a complete hysterectomy (i had several years ago) the bladder, with extreme straining was able to to be pushed out enough to be visable. A few other methods were used to try to push the bladder up did not work and the need for the surgery was the only way to keep it in place. The bladder was put in a mesh sling (2008 fda warned doctors mesh not to be used in this area because of eroding causing almost impossible removal and pain); but my urologist used the mesh in the sling, as well as closing the surgery. (within less than 2 weeks developed swelling of legs, ankles, feet - edema. Taking lasix daily to keep swelling under control. Also, within two weeks developed statsis dermatatis;the discoloration and lesions under skin of ankles, feet and now up to knees .

When the bladder is moved to another position; it leaves space for the small/lower bowel to drop down. Had the urologist reinforced the vaginal wall; this would not have happened. Three urgynocoligst all said this should have been done because if not; the lower bowel will definitely come down. Also, all three said they would have never used mesh. A year after the cystocele surgery, had to have the rectocele surgery.

Hope this helps to be a warning to women who, as far as i know, are not even aware the bladder could be forced out like it was when you have undergone a complete hysterectomy.

Between the fusion/crushed nerve and the cystocele surgery, developed the pn from the waist to the toes. Not nice. Had a failed trial stimulator done a couple of years ago. My pain specialist wanted me to do another; but now that there is a chance for additional rectocele surgery, is not a good idea because having stim could be a problem should the need for surgery arise.

Well, you sure have opened a lot of doors. As mark said it well....you had a good idea in starting this thread; sharing info that many of us are in one way or another experiencing.

Gerry

amen gerry
thank you for telling it like it is
i am sure you have helped someone
you know
someone who cares

Saffy 05-16-2012 07:06 AM

To my friends. I have come to the conclusion that this life I live is no life, and certainly no life for my family.

**

Basically it's either live a drugged up life or take less drugs and suffer pain. I've had enough.

ginnie 05-16-2012 08:23 AM

Saffy my dear
 
Saffy let this cup pass from you, please please do not give up yet. I care about you. I too struggle with feelings of hopelessnes,pain and all the situations I have to live with. Life has good parts yet. Take the more medications to keep you comfortable. PM me, I have another suggestion I would say in private. This is important OK? PM me. There are other things that may help you. have faith, just for a minute in me. I am here for you this morning. ginnie:hug:

Chemar 05-16-2012 08:27 AM

Hi Saffy
So sorry you are suffering this way :(
I have had to edit your post per our guidelines

Please do visit our SOS Forum as members there understand how you are feeling and can offer you support

http://neurotalk.psychcentral.com/forum29.html

here is also a very helpful website www.metanoia.org/suicide

Sophie_ 05-16-2012 10:24 AM

Karen
 
Hi Karen,

Please don't suffer alone, call someone, I've just sent you a text message on your phone, will you answer me please Hun, I'll talk to you if you txt me a landline number.

This life and pain is the worst,it tortures and boy how often I've felt like giving up but I can't and wouldn't do that,


Love Sinéad xxxx

anon21816 05-16-2012 12:39 PM

Thinking of you today Karen. Please speak with someone. You are not alone!

Jackie :hug:

Sophie_ 05-16-2012 01:23 PM

Karen
 
Hi guys,

I sent Saffy/Karen a text message earlier and she has just replied, she's extremely low. I told her everyone on here is asking for her. I also asked her to get some help.

I was so afraid for her as we all are. I'm saying some prayers for her and I hope those who do too will join me.


Love and God bless,

Sinéad xxxx :grouphug: :grouphug:

Mark56 05-16-2012 06:13 PM

Dear Sinéad
 
Thank you for following up with Saffy. I had sent her a PM this morning to which she has not replied. If you text her again, please do let her know I was inquiring about and worried regarding her.

Of course, I am praying,
Mark56

eva5667faliure 05-16-2012 06:45 PM

as i did as mark did
with no reply
way concerned
i'll be here with PC on
hoping to hear from you
someone who cares

Sophie_ 05-16-2012 07:57 PM

Hi
 
Hi guys,

I was very relieved to hear from her too and my heart goes out to her, I hope she does decide to get some professional help not only for her but for husband and two daughters.

I'll text her again in the morning, those meds can cause people to think all sorts they aren't nice.L

Love and God bless to Karen and too who think they are suffering alone, they aren't.

Sinéad xxx :grouphug: :grouphug:


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