NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)
-   -   Saffy: My Journey to SCS (https://www.neurotalk.org/scs-and-pain-pumps/138676-saffy-journey-scs.html)

Mark56 02-24-2012 08:39 PM

Happy for YOU
 
Praying Moi:hug:

Saffy 02-26-2012 10:26 AM

Well, I've had the stim on all day today. Not turned up too high as I still have sore incision sites (didn't realise they head to open all three again!) and I don't want to put pressure on my hopes for the stim .. but ... at this moment in time it is feeling like a nice massage, with some sciatic pain.

I was given waterproof dressings and was allowed to shower, yes SHOWER, AND wash my hair, 2 days post op and all is looking good.

Taking it easy and letting by body rest and wake when it needs to.

At the moment am sat downstairs at the PC whilst Mike is digging in the garden. He's got the whole of next week off and plans to do some decorating and gardening.

I get my stitches out 14 days post op, only because they had to re open already cut areas.

The physio from the Hospital is speaking to my Doctor on Tuesday at 12.30 regarding a light weigh self propelled wheelchair for my use and I need to sort a splint for my Drop Foot. (I now have a name for my dodgy left foot).

Have ordered myself some snazzy new crutches as I have been told not to use just the one as it is displacing my body and I have less strength on my left hand side. The usual NHS (Free) ones are very basic and have hard handles, so I've decided to invest in some comfier ones.

I'm going to do my Blog Post on my op today or tomorrow .. so will paste onto here when done.

Love to all x x x x

Mark56 02-26-2012 03:19 PM

Much Love to you Karen from ALL
 
You beautiful soul you, it is good to have your words on here in a positive vein, and Dodgy, that sounds so.... well... yeah cool. Dodgy Foot, so it is. Let us know what wheelchair make you get so I can investigate it, as I could do well with a replacement chair myself.

You take care there and be kind to Saffy as well.... then maybe you might get to take a spin in Tootle.... I mean with all of these names, yours, your pen name, your foot name, your car name, did you ever name your stim? Don't be telling anyone like Fiona, or they will wonder about all of these pseudonyms by which you go.....:D:D:D:D:D

Glad Hubby is at home with you for a week. Now perhaps you can re-sume enjoying time with one another though you are recuperative, pain should be less.

Thilled am I for you,
God bless you all,
Mark56, still prayin, :grouphug:

Rrae 02-26-2012 06:31 PM

New Start!
 
Yes! I see this as a new start for you, Karen....
in so many ways...

By golly, you SPLURGE on yourself and get top-of-the-line crutches and wheels! Send us a pic of your snazzy crutches :D I can only imagine the extra 'Bling' you'll be adding to them!

Rest, recoup, and take it easy on yourself....Mike will do the pampering....and of course you have all of us lingering around your thread to see how you are getting along!

I have a real good feeling about all of this!

Rae
:hug:

Saffy 02-27-2012 05:05 AM

Haha .. Just call me Karen. That's the real me .. Saffy is a name I used when working promoting a record label.

Am feeling so positive now. I know that this is the end of the road surgery wise, and that whatever limits I have I will have to make the best of them ... Whereas before, I was so disappointed with my stim that I was quite thoroughly miserable at times.

Now I see a future of managing my pain .. The wheelchair I used in hospital was a revelation ... I cried with gratitude. To be able to go a whole way without having to stop through pain. Why had I never thought of it before.

My mum has an electric mobility scooter that she is loaning me for these first few weeks so that I can get out and about putting strain on my stitches and leads which I would do using crutches.

Will definitely send you all a pic when I get that. TOOTLE TWO I shall nickname it.

My battery is FELIX by the way ... Named after my first rabbit.

Love you all. Sending hugs across the world to my dear friends on here.

Saffy 03-02-2012 12:16 PM

Gnashing of teeth! Despite the Hospital writing a letter to my Doctor and telling them that my stitches needed removing today ... I waited in all day and ... nothing! Have just rung up and they know "nothing about it" .. obviously.

The incisions on my tummy and sides are fine but the one on my back is so sore that I can't sit back on anything and let anything touch it. It's red and oozing and I cannot believe I have got to go to Hospital tomorrow with these stitches in .. and with it being a gynae appointment, I'm going to be lay on my back for examination.

So cross .. it's really made me feel down .. know it shouldn't ... but everything was going so well ... and I waited in ALL day today for this flippin Nurse.

Rant over ! x

Sophie_ 03-02-2012 05:59 PM

Stitches out
 
Hi Karen,
You poor thing, can your own doctor not remove your stitches? It's awful when they start to feel tight and you know it's time for them to come out and I can't believe there isnt an appointment made for them to come out, what do they expect them to do, pull themselves out!

So plse tell me how are you feeling after your surgery? Did they put in a new Stim or revise the previous one?

I hope you get your stitches out soon so you can feel better and good luck with he gnae appointment, nothing worse huh?!

Chat soon and take care

Sinéad :):hug::hug::hug:

Mark56 03-02-2012 08:12 PM

Dear Karen
 
Learning of your oozing red closure in the back which is painful makes me pause to wonder whether you may have infection...... I did, and the ooze was not red blood but this awful pus of a different color, hence the high dose of antibiotics thereafter!! I wonder openly with Sinéad [dear lady- hoping she is well] whether your doc can give a look and send you to ER if necessary to have that oozing looked after!! Absolutely!

Much not to be overlooked about this!
No way,
Prayin,
Mark56:hug:

Sophie_ 03-03-2012 12:25 PM

Those stitches
 
Hi Karen,

How are things, did you get your stitches out yet? Perhaps Mark is right, if there is an infection there you seriously need to get it checked and I wouldn't be waiting, some infections can make you very, very sick.

I hope things have improved and you are feeling better. I'm doing okay for the last few days, my sciatica is still acting up but it's been worse.

Take care hun,

Sinéad xxx :hug::hug::hug:

JoanB 03-03-2012 01:44 PM

Yeah, I was thinking the same thing as Mark and Sinéad...I hope you got someone to look at them. Although, when I had my hysterectomy, my incision did that, but they said it wasn't an infection. Just the same, it's something they should be paying attention to.

Saffy 03-04-2012 02:24 PM

Ooh hello my little fruit bon bons .. Sheesh .. the scar on my back is doing my head in! It's very red about half inch either side .. the District Nurse, who came yesterday to take the stitches out said that some had cut into my skin. Am currently sat here with just my jeans and bra on and Mike has put a line of Germolene antiseptic cream on to try and sooth it. OOoh it HURTS and burns like heck.

The appointment at the gnae place went really well. He was so lovely .. said he wasn't going to examine me whilst my back looked so sore and am booked into have an ultrasound and to take a biopsy then see him, on the 22nd. Now, this is the difference between private and NHS care in this country. All that would have probably take six months or more .. and yet, all this is taking weeks.

I know I will have to have another operation and I think that will be done before my birthday in May, if not before. Whereas if it were the NHS I would be waiting a year or more.

My first day on my own today .. spent most of it in bed reading and dozing .. being gentle .. and watching the rain pelt down the windows. (Hence my staying in bed all day!)

Tomorrow .. I might well venture to the local chemist and ask the pharmacist to look at my back and give me some advice.

I also need to contact the District Nurse as I need another enema de de de de de (sings)

*chuckles*

Love and kisses to you all ..

Mark56 03-04-2012 08:50 PM

Oh, you blessed woman you!
 
Humor, you experience the ick of dealing with that dire red mark on your back and you drown us in your pleasant sing song HUMOR.......... have you caught a deep case of Rae-itis? Are you taking humor as the way through this nasty time? I think so, and so be it. You with your Tootle and Tootle II soon healed going to and going fro. Once your incision is healed and you have that beautiful smile on your face....... would you be willing to take an all expense paid trip to Washington D.C. to ask our wogs in the Congress whether they have gone stark raving mad? Would you do this for your break away colonialist friends? You see, Congress is only capable of trying very hard to copy either Canada or the UK in medical reform. Of recent times they seem to have no clue. No idea how folks in your countries scratch your heads wondering why, WHY we try Congressionally and Presidentially to be just like you.... a National Health Care System with Private Care layered on top for those who can afford it?????????????????

I assure you in Washington, with your accent and all, being distinguished and sought after in this country, you WOULD BE HEARD. So, whaddya think dear friend...... do you feel like sharing your simple but true story about the wiles of UK medical care with the Fruits and Nuts we somehow freely elect to "represent" us the highest realm of this land?

No, I have not "yet" joined the Tea Party....... Just tempted to have a demonstrative schooner laden with tea sail into Boston Harbor, throw the lot overboard, knowing there would be fines, the EPA, the greenies with whom to deal trying to make a point.

Most importantly dear friend. May YOU Heal, Have Pain Free Days, and enjoy Spring out doors doing that which you enjoy.
Hugs a plenty,
Mark56:grouphug:

Saffy 03-06-2012 01:30 PM

Had paralysis in both legs last night and this morning. My doctor is talking to my surgeon tomorrow but says if I have it tonight then to call ambulance and get straight to Sheffield.

Sophie_ 03-06-2012 04:53 PM

Paralysis in legs.....
 
Hi Karen,
How are your legs now? I hope their feeling better I really do but if not will you go to Sheffield cause that isn't right, the soreness is normal especially when the scar gets tight but the oozyiness isnt right. If I were you I'd be talking to my Consultant and see what he says, do you have his mobile number or a way of contacting him.
God love you it isn't fair that you get all these problems after your surgery, it should be straight forward so you can lie on your bed and watch films or day time TV.

chat soon hun, Sinéad xxx

Saffy 03-07-2012 01:49 AM

Hiya poppet .. Calling doctor this moRning as soon as they open as no more paralysis but constant tingly feeling.

Mark56 03-07-2012 01:54 AM

Be GONE
 
To Sheffield, hasten!!! GO!

Your nutty friend across the pond.

Saffy 03-07-2012 04:38 AM

Hello nutty friend. Called 999 now have to wait for someone to call me for more details despite my saying my doctor told me to call ambulance and go straight to Sheffield. Oh hum.

Mark56 03-07-2012 10:37 AM

Nutty Hopes
 
You, dear Karen, are long since in the care of Hospital where you must have treatment for paralysis, electric twinges where they do not belong, a suture gone awry, for all things amiss in your precious body, because you are dear to all of us and loved.

I actually Skyped with Sinéad, ah dear Sinéad, this very morning [afternoon where she is] as she awaits going to a far advanced Hospital which Doc says knows its "F stuff" and I so hope this is true for her and for you, Karen.

Prayers from across the pond,
Your Nutty friend who deeply cares:hug::hug:

Sophie_ 03-07-2012 11:02 AM

Hi Karen,

Did you get to Sheffield yet? (they may not have wifi) I do hope so.

I'm thinking go you. It was lovely to chat to our friend across the pond, mad he is not but a very nice gentleman and he even was introduced to Tigger, our Boxer dog who protects us day and night, but it was my Mam arriving to save me from the demons in my kitchen that desperately needed some saving.

I gotta go but I hope to hear from you soon Karen and I hope you're pain eases. My Dr is sending me for another MRI in a different hospital, I can't understand why he didn't do this in the first place and keeping me the usual hospital to look at and change my meds so I can have some better relief and then probably another SCS.

So that's all my news, and I'm thinking of you Karen.

Sinéad xxxx:grouphug::grouphug::grouphug:

Mark56 03-08-2012 12:37 AM

C'est tout!
 
Moi aussi, moi aussi. :grouphug:
Yo

Saffy 03-08-2012 04:45 PM

They send me for an x ray which showed felix had moved a little but shouldnt have been causing such problems. They were very eager that i get this prolapse sorted as soon as possible then, i guess hey can rule that out.

ive been turning the notch up on my stim one bit each day ... its still VERY LOW or at least i think so ... 1.70 and they said to stop doing that for now and just leave it low till everything settles.

Ive actually turned it off as thought, better safe than sorry.

feel rough today .. almost as though i have flu. Cold, teeth chatterning and achey ...hopefully tomorrow is another day and I will feel lots better.

xx

ger715 03-08-2012 04:58 PM

Sinead
 
Quote:

Originally Posted by Saffy (Post 859164)
They send me for an x ray which showed felix had moved a little but shouldnt have been causing such problems. They were very eager that i get this prolapse sorted as soon as possible then, i guess hey can rule that out.

ive been turning the notch up on my stim one bit each day ... its still VERY LOW or at least i think so ... 1.70 and they said to stop doing that for now and just leave it low till everything se

Ive actually turned it off as thought, better safe than sorr

feel rough today .. almost as though i have flu. Cold, teeth chatterning and achey ...hopefully tomorrow is another day and I will feel lots better.


xx



Keeping you in my daily prayers; praying God will soon relieve you of all this terrible pain. You have more than paved the way to once again enjoying life.

(Ger)

Mark56 03-08-2012 11:30 PM

Indeed
 
For both Saffy and Sophie, Karen and Sinéad, we lift many a prayer unto the Lord.

Are you in front of the painting Ger? Vivid peaceful imagery, that.

I think we should all gather with you and your husband for prayer one day and each enjoy the presence of the Lord with one another there before your painting. Imagine that. But then I reckon we already do, in a way, don't we Eva? Rae? Fiona?

Yes,
Mark56:grouphug:

ger715 03-09-2012 12:56 PM

Mark,
 
Quote:

Originally Posted by Mark56 (Post 859295)
For both Saffy and Sophie, Karen and Sinéad, we lift many a prayer unto the Lord.

Are you in front of the painting Ger? Vivid peaceful imagery, that.

I think we should all gather with you and your husband for prayer one day and each enjoy the presence of the Lord with one another there before your painting. Imagine that. But then I reckon we already do, in a way, don't we Eva? Rae? Fiona?

Yes,
Mark56:grouphug:

What a beautiful thought. We will all say at one time or another "Jesus I Trust in You". Without that trust; all we are going through would seem too hopeless.

(Ger)

Sophie_ 03-09-2012 07:56 PM

Hi Saffy
 
Hi Karen

I feel the same my self today, rough as can be but please God we'll both feel better soon, by Easter I want to feel better, both of us, okay!

Thanks for the text earlier, I'm happy to have all these extra communication bits and pieces, I spoke to Mark on Skype yesterday.

Love and God bless

Sinéad :) xxx

Saffy 03-10-2012 05:16 AM

We will have to have session. X x x and you too mark.

Saffy 03-10-2012 05:30 AM

Am a little concerned. I've had flu like symptoms since yesterday. Today I woke up to sticky sheets where my back has obviously leaked and my battery site is starting to hurt in a different way to healing. It hurts to touch and is going pink. Am going to leave it a while before possibly calling NHS direct.

Mark56 03-10-2012 09:14 AM

Can Skype, will travel electronically
 
PM me if you Skype.
Mark56:hug:

Mark56 03-10-2012 09:15 AM

I am awake now
 
Drumming fingers at side of computer waiting to hear from you.:hug:

Rrae 03-10-2012 01:42 PM

Painting...
 
Quote:

Originally Posted by Mark56 (Post 859295)
Are you in front of the painting Ger? Vivid peaceful imagery, that.

I think we should all gather with you and your husband for prayer one day and each enjoy the presence of the Lord with one another there before your painting. Imagine that. But then I reckon we already do, in a way, don't we Eva? Rae? Fiona?

Yes,
Mark56:grouphug:

What painting is this? Perhaps Ger would consider posting us a photo? You probably mean painting a house or something tho. I need to read up on the posts better to know what's been going on. :rolleyes:

ger715 03-10-2012 11:18 PM

Rrae,
 
Quote:

Originally Posted by Rrae (Post 859743)
What painting is this? Perhaps Ger would consider posting us a photo? You probably mean painting a house or something tho. I need to read up on the posts better to know what's been going on. :rolleyes:

This was a post responding to Eva's ....Focus on Blessings of 3/7/2012. My response was also on 3/7/12.

This is an oil painting of the Image of Diving Mercy, I felt compelled to paint. It just went with something Eva wrote in her Blessings.

(Ger)

Mark56 03-11-2012 12:17 AM

Humbly in prayer for all who here gather
 
As though being before the image now, reverent, acknowledging our Lord, I am thus blessed.

Prayers,
Mark56:grouphug:

Saffy 03-11-2012 11:32 AM

They're rushing me to hospital .. Looks like I have bad infection inside where vpnattery is. X x

Sophie_ 03-11-2012 05:33 PM

Karen
 
OMG Karen,

You poor thing, please God it's enough to explain your recent pain. I'm sure this can be fixed with antibiotics and once that's done, your Consultant can get on with fixing your other problems.

I'm sorry it got that bad that you had to call an ambulance, I only did this myself a few weeks ago, but I'm very happy that you did ring them.

I'm finally in hospital myself to sort out my meds and a few other problems.

I'll text you tomorrow,

Take care hun,

Sinéad xxxxx:hug::hug::hug:

Rrae 03-11-2012 06:30 PM

I know you must be frightened, Karen....but trust in what we've all been praying for. :hug:

It's about TIME your Dr wakes up to this! :mad: I'm angered at him. It's been obvious to us thousands of miles away and I just don't understand what on earth he was thinking! I will try to refrain from bitterness and PRAY for your medical staff rather than cussing. I just hate it that you've been going thru all of this.

May God grant you Peace in all of this and that the infection will clear up very soon. You've been through too much :(

Rae
:hug:

Mark56 03-12-2012 01:21 AM

I Wonder......
 
Whether I could gain admittance as a Barrister in England given my experience in the U.S....... I am almost finished gaining entry to New York.

Just thinking........

I am absolutely sick about the situation in which DEAR SAFFY now lies. Redress once healed is what I contemplate: yet, I should imagine in a state run medical facility populated by state employed physicians dispensing state run you name it, the state would reply

VERILY, IT IS UPON THE FOUNDATION OF OUR IMMUNITY AS THE STATE WE BEAR NO RESPONSIBILITY TO THE ILL TREATED.......

So, does one who votes in this country, any single person, EVER contemplate what has been thrust upon us at the hand of career politicians who inhabit the hallowed white marble mausoleums of Washington D.C., that is while EXEMPTING themselves cleverly from inclusion equally within said governmental system of which all of them are so proud? Who among them has ever pondered the words of our pledge "with liberty, and justice for all" or the notion of equality, egalitarianism.....

Startled look appears on face of the cynic......

How easily we in America have forgotten our Constitution which provides all MEN are CREATED equal....... where is it written after creation those inalienable rights with which we are vested include the CONGRESS SHALL NOT BE FORMED OF AN ARISTOCRATIC CLASS OF INDIVIDUALS WHO, BEING BETTER THAN THE COMMON CITIZEN by divine right of election to office, avoids inclusion in Social Security, Medicare, Medicaid, and the newest bright kid on the block- the hallowed PelosiCare, a program for the proletariat......

Cynic that I am......

who, despite being one who used to earn more than a congressional husk elected to rich fortune, while they receive a full retirement upon a single term, full congresional medical care dispensed at government or military hospital facilities, and the use of military post commissaries and post exchanges for the rest of their lives at government subsidized pricing intended for those who with honor serve in the military for relatively little pay, uncertainty as to their safety, and uncertainty as to the provision for their families if they are killed in action as was the case with the recently lost nephew of my wife's sister-in-law. When will the American electorate awaken.

Saffy is rushed to hospital regarding a life threatening infection caused by someone who is probably immune from action for being in state medical practice...... the very same result under PelosiCare.

Dear Dear Saffy, how we ache for you, learning VERY HARD LESSONS OURSELVES AT YOUR RISK OF LIFE because care has been sloppy, benign, almost uncaring..... and you are left with that horrible wound on your back, infection, and worse, a generator site which itself may be infected?????? Oh Saffy, we reach across from the land of uninformed voters and PRAY MIGHTILY FOR YOU, AS IT SEEMS PRAYER YOU RECEIVE CARE IS ALL WE CAN DO FOR YOU AT THIS POINT, ALL WE CAN EVEN DO FOR OURSELVES AT THIS POINT.

I PRAY Saffy, you are healed from this vile course of events and that your body becomes healthy and whole while your pain becomes managed by appropriately functioning healthily installed combination of hardware and software.

We raise you high in our prayers, hoping we learn from the lesson you are teaching us,
ENRAGED YOU ARE ONLY TODAY RUSHED TO CARE BY A SYSTEM WHICH SEEMS NOT TO CARE,
Enraged,
Wanting to reach out from across the Pond to save you,
Caring,
Loving,
and hugs,
Mark56:hug::circlelove::Heart:

Sophie_ 03-12-2012 01:43 AM

Saffy
 
Hi guys,

I've just received a text message from Karen, she's very worried and upset, the poor woman, they're taking her down to Theatre now to remove her Felix and obviously she's devastated. I've tried to reassure her as I went through the same thing and what's even more interesting is that our Stims come from the same manufacturer.

She's asked for our prayers and I know there are plenty out there, even I will say one.

God bless her with love and healing.

Sinéad xxx:Good-Luck::grouphug:

Mark56 03-12-2012 08:49 AM

Praying Earnestly
 
Please let her know I CARE DEEPLY
and hope for her healing
and send not just prayer across the Pond
but the Love of Christ, which is boundless,
to be with her in spirit,
FOR I CARE!!!!

Mark56:grouphug:

Sophie_ 03-12-2012 09:25 AM

Hi there
 
Hi Mark
I text your message to Karen, the poor woman.

I don't think the security settings in the wi-Fi in the hospital will let me use Skype.

Just had blood tests, waiting on an MRI

Sinéad :) xxxx

Rrae 03-12-2012 10:53 PM

Oh my Lord this is terribly alarming. Thank you Sinead for keeping us up to date on this devestating situation. I am completely numb.....in shock....
I'm so glad she has you nearby to console her.
How terribly frightened she must be. Karen has tried SO HARD to make these surgeries work and has pinned every last ounce of hope on them.....and knowing that you've been thru this too Sinead :(

We who are here, detached from her reality feel somewhat helpless. It's only human nature to want to lash out and blame someone or something on this, especially since we saw this coming as Karen came here for love and support and no one else to turn to for advice. I feel very very angry at her doctor for letting it get to this point. I guess it isn't helping anything by feeling this way toward her overseers. This is a good opportunity to reach out and pray for them.....but still I'd like to reach out and ...... :mad:

Obviously my humanity is wanting to block my spirituality right now.
This just can't be happening to her, it just isn't right!

I'm so sorry about all this Karen. I know you know how much we care. Please try with all that you've got to hold on to the faith in which we band together. Lord God please lift this burden off of our dear precious friend.

Rae
:hug:


All times are GMT -5. The time now is 03:38 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.