SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


advertisement
Reply
 
Thread Tools Display Modes
Old 12-24-2010, 04:44 PM #11
irljenn's Avatar
irljenn irljenn is offline
Member
 
Join Date: Oct 2010
Location: IRELAND
Posts: 251
10 yr Member
irljenn irljenn is offline
Member
irljenn's Avatar
 
Join Date: Oct 2010
Location: IRELAND
Posts: 251
10 yr Member
Default

Like Mark I am so happy that you have a chance of justice for your case . did not read that part of your story before but my got Tara you have been through it!!

Just came on to wish you and Jerry a very merry christmas and hope the picture of Gigi brings you both much joy and that somehow it will help you through this terrible pain you are in right now!! how long now before you can turn your scs on??

Well from little old, very cold and snowy Ireland I would like to wish you and Jerry a very Merry Christmas and Happy healthy and more pain free new year!


Nollaig Shona Duit!! Jenna
irljenn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (12-25-2010)

advertisement
Old 12-24-2010, 08:04 PM #12
tchr012's Avatar
tchr012 tchr012 is offline
Member
 
Join Date: Jul 2010
Location: midwest
Posts: 259
10 yr Member
tchr012 tchr012 is offline
Member
tchr012's Avatar
 
Join Date: Jul 2010
Location: midwest
Posts: 259
10 yr Member
Wink

Quote:
Originally Posted by irljenn View Post
Like Mark I am so happy that you have a chance of justice for your case . did not read that part of your story before but my got Tara you have been through it!!

Just came on to wish you and Jerry a very merry christmas and hope the picture of Gigi brings you both much joy and that somehow it will help you through this terrible pain you are in right now!! how long now before you can turn your scs on??

Well from little old, very cold and snowy Ireland I would like to wish you and Jerry a very Merry Christmas and Happy healthy and more pain free new year!


Nollaig Shona Duit!! Jenna
ThanksJenna, I added more pics of Gigi, they just sent me! And yes, they do make me feel more hopeful and motivated to keep getting better. I was feeling really down today because I had to miss my usual Christmas family trip to Grandma's house and Jerry is working today and tomorrow so its just me playing video games lol. But anyway, my mom called me and sent me the pictures and I heard the puppy for the first time! I know it probably sounds weird but it made me so happy and excited like this big hole in my heart was being filled up or something Here, I am sitting here in pain but when I heard Gigi and could see her it made me tear up. You all probably think I sound crazy right now but its been such a rough few months for us that we need this joy and little puppy right now I hope you have a great Christmas as well and get to spend time with your family! Oh yeah, I was in an accident 2 years ago and its been really complicated and upsetting because it involved a school bus and other cars. It happened on my way to school (college) in the winter and let's just say it changed my life forever and is why I ended up needing the stim I don't bring it up too much because it is very stressful and I still have nightmares about it. I won't be able to get my stim on until my appointment on Jan 7th! That is my post op appt. Well, take care and hope you have a good night! 'sTara
tchr012 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (12-27-2010), Rrae (12-25-2010)
Old 12-26-2010, 09:08 PM #13
tinkster tinkster is offline
Junior Member
 
Join Date: Dec 2010
Posts: 22
10 yr Member
tinkster tinkster is offline
Junior Member
 
Join Date: Dec 2010
Posts: 22
10 yr Member
Default

Quote:
Originally Posted by tchr012 View Post
Jackie, Thanks for writing me and thinking about me! I hope you also have a great Christmas and happy healthy New Year! Its funny because right before surgery when I was really scared they told me oh its just going to be like when you had a part of your herniated disk removed....no it was much worse! And the staples were awful and I hope I never have to have them again! And I underestimated how big the incision would end up being and yeah the pain is bad and I am still on pain meds. I am also having an awful time trying to sleep at night because I used to sleep with my stim on and of course it is off so it takes me forever to sleep and now the battery area is starting to hurt as well I really miss having my stim on...but I know it needs to be off right now.
My mom and brother came over with my christmas presents today and spent the day with me and that cheered me up However, my mom was patting me on the back and I was like Ow, mom lol and she felt bad but it was okay. Jerry sometimes forgets too and will hug me a little too hard or accidentally yank on me and I am like Ow! I am still sad about missing my family for Christmas but we explained to everyone I am just not ready to travel or be in a car yet. And its a long trip and there is snow which makes me nervous anyway (cause of my accident).
Oh yeah, I also got some good news about my lawsuit the other day, we sent my case to the court of appeals because of that one judge's ruling against me (I talked about it before how she said I should of gotten out of MY car even tho I would of been killed by the bus) and they reversed her ruling and so now I still have a case That was great news because every time I hurt and especially since I am still scared of driving and being in a car I am reminded of that accident and it would be great if something good comes out of all this mess! I just thought I would share that I am so excited to get my puppy Mom, is sending me pics on her phone tomorrow when they get her! I need to lay down cause I am starting to ache again Take care 'sTara
Hang in there! I can relate, my SCS surgery was the 10th of Dec. I still hurt, and still wonder, "its been so many weeks, I should be feeling better now". Not quite sure who's yardstick I am using to measure the feel better part of things, but when you feel as if you are hitting a brick wall, its discouraging. I am just now starting to feel my energy coming back, the battery still gets sore. I had the glue that closed my incisions not staples, the glued itched, but I think i prefer to staples .
Hang it there, hoping you are having a good day.
tinkster is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (12-27-2010), Rrae (12-26-2010), tchr012 (12-27-2010)
Old 12-27-2010, 01:06 AM #14
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Heart Dear Tara, Jenna and Tinkster

Here is my message of hope for all of you that the spost surgical pain will soon abate. Yes, it does take time, and a different rate for each of us, incapable of measurement and will try our patience until we think we have nothing left, BUT each day, each hour of each day your body will be healing even just a bit at a time, and maybe the next day you might feel, "hey, getting out of bed wasn't quite as hard this time" or "getting down to or up from the toilet or a chair wasn't quite so bad this time."

You will get there. I hope all of your caregivers taught you the tuck, roll and rise means of getting out of bed that I was taught after fusion. Roll to the side of the bed nearest to you, bring your legs up to a tuck and let them down gently over the side of the bed, then push up with your arm/arms until you are sitting up. Wow, you are that much closer to standing, then, use your legs to stand. Go slowly as you must. I know after SCS surgery no one said anything to me about it, but they saw I was already accustomed to doing it so maybe that is why they didn't try to teach me. It minimizes the pain of arising from bed.

Time is passing. You are healing. The surgical part will subside. Then you will be thinking in terms of "well now, what else can I do!"

Cheering for you all,
Prayin,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (12-27-2010), Saffy (12-27-2010), tchr012 (12-27-2010)
Old 12-27-2010, 11:12 AM #15
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Heart Thank you DEAR Mark!

What a wonderful post!
Thank you for the detailed description of how to get out of bed....I'm gonna stuff THAT in my left pocket fer shure!
All they ever told me was to do the 'barrel roll', which isn't that helpful, other than to indicate not to 'bend' while getting out of bed.....but a BARREL will just ROLL OFF THE BED and ON to the FLOOR
Tucking the legs up like you describe makes for a MUCH more 'graceful' way to get out of bed. No one ever told me about that. Maybe 'they' all just ASSUME that we all have the common sense on these things......but I sure as heck didn't

I'm even going to go a step further this time around and get a high quality lumbar belt to wear during my revision recovery......

Much appreciated!
Rae
Rrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tchr012 (12-27-2010)
Old 12-27-2010, 09:14 PM #16
tchr012's Avatar
tchr012 tchr012 is offline
Member
 
Join Date: Jul 2010
Location: midwest
Posts: 259
10 yr Member
tchr012 tchr012 is offline
Member
tchr012's Avatar
 
Join Date: Jul 2010
Location: midwest
Posts: 259
10 yr Member
Talking New puppy=great for my recovery!

Hi, sorry I haven't been on lately but I got Gigi yesterday and she has been keeping me busy! I hope everyone had a great Christmas, I spent mine in pain and sad but am doing much better now. I only got maybe 3 hours sleep last night because of mom forgot the cage and we had to watch her constantly. We also still have our cat because she goes to her new home tomorrow! She does not like Gigi so we cannot keep her it made me sad but I am doing okay with it now. I love Gigi so much and she fills up that hole inside me that I got after my hysterectomy and I kinda feel like a new mom in a way. She loves to cuddle and falls asleep in my arms or on my chest. She is also very playful and sweet and likes to play and chases after my husband. I am trying to keep in mind I am recovering though and trying to still be careful but its hard because when you see her you totally forget all the bad stuff that is going on I have hardly eaten or slept so tonight we are going to actually sleep and I am going to sneak some food while she is napping.
I am so glad to have her because the pain has been bad like I said and now my legs are burning pain and then numb because my stim is off. Also my incision still hurts too spasms and burning inside but they look okay. I can't wear a bra either because it catches on the incision so when company comes over I just double my shirts. I also am only wearing sweats anyway since anything against my incision is uncomfortable still but that is okay because I think people understand. Also, I still have trouble with bathing and have to have help. Mark, glad you mentioned the roll to get out of bed. I knew about that but not the tuck in your legs part they had me roll on my side push up with my arms and have one leg off the bed so that is what I have been doing. Sometimes I forget though and move a certain way and it will hurt so I am still learning. Since I didn't have the post op appt yet I really didnt get many restrictions except lifting so I just avoid twisting, bending and stuff like with the other stim surgeries. I also have been cutting down on my pain meds by cutting them in half and I think that is why I am hurting bad again too. Well, this is all I have time for because little one just woke up. I will catch up to the posts when I can. Have a great week everyone and to those recovering, I hope things go smoothly and you feel better very soon! And for those wating for news, I hope you get some news soon and things get scheduled! Take care'sTara aka Gigi's mommy
tchr012 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (12-28-2010), Mark56 (12-27-2010), pooh_ac (12-27-2010), Rrae (12-27-2010)
Old 12-28-2010, 09:12 AM #17
anon21816
Guest
 
Posts: n/a
anon21816
Guest
 
Posts: n/a
Default

Tara how great to hear that you have gotten Gigi......AND Ive just looked at your pics......she is just gorgeous. She will bring you hours and hours and hours of happiness and fun. Ive 3 dogs now, Westhighland Terriers, white one, well generally they are but not this time of year but I get so much joy from them and they are so lovable! Enjoy Gigi but also be careful. Its SO easy to forget your aches and pains when you are about to 'jump' to catch her or 'bend' to pick her up.....so just be mindful of all the pain you have gone thru and you dont want to mess that up!!! Im one to talk Im the worst one in the world when it comes to taking heed, I kinda forget but you know what I mean

Each new day is a day nearer to your full recovery AND a day nearer to your stim being turned on. Im amazed that you havent had it on yet, but hopefully once its on , hey presto, your life will be one BIG party

Happy New Year Tara and Jerry

Jackie
  Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (12-28-2010), Rrae (12-28-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Significant pain reduction in chronic pain patients after.. (study) Sandel Reflex Sympathetic Dystrophy (RSD and CRPS) 14 06-07-2010 01:20 PM
Pain Numeric Rating Scale May Be Only Moderately Accurate for Pain Screening CME/CE GJZH Chronic Pain 0 10-02-2007 08:23 PM
Pain Numeric Rating Scale May Be Only Moderately Accurate for Pain Screening CME/CE GJZH Spinal Disorders & Back Pain 0 10-02-2007 08:22 PM
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release fmichael Reflex Sympathetic Dystrophy (RSD and CRPS) 2 10-26-2006 06:35 PM
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release fmichael Chronic Pain 0 10-26-2006 03:35 PM


All times are GMT -5. The time now is 09:29 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.