Hope your ok Tara, its been a while.........I hope Gigi is behaving herself:Dand not keeping you up at night either....

If you get a chance try to post and let us know how your doing....

In my prayers as always

Jackie:hug:

Just checking in
 

Hi everyone, sorry I have not been around in awhile. Thanks for asking about me and thinking about me :grouphug:Rrae, Jackie, Mark, and Pooh (and everyone else). I have been trying to keep up with everything while dealing with my health problems. I found out on Friday that my IC is so bad again I have to have another bladder distention done because nothing is going to help me right now. I am really not happy about it because it is very painful and messes me up for at least a week (causing more pain and issues), and I am really mad because this would not have gotten so bad if they would have let me just continue my meds back when I had surgery! Also, they put me on stuff because my bladder is not emptying right and they think it has to do with my stim surgery (although I don't know why) and I hate this new med because I can hardly sleep since I go to the bathroom every 2-3 hours :( I know this isn't a stim issue which is why I wasn't going to talk about it so I hope you don't get mad that I am posting about it. I have been really depressed and angry and sad and kind of keeping to myself.
The good news is that my stim has been working great, I even was able to go on a lunch date with my husband a few days ago and I try to walk every chance I get except it is hard because of the snow and ice since I don't want to fall ;) I am glad it is working and so glad I had the surgery! I am still sore and I do still have to take pain meds but only 1 pill about every 6 hours which is way better than having to take 4 different pills every 4 hours! Gigi is doing good, we had to get her a new bed because she is growing and tried to mess up the old one! She is very sweet but also likes to bite me ALOT and I have the marks all over to prove it ;) I am so thankful to have her though because she keeps me company when I am alone so much especially during the day! I will try to check in at least every couple weeks or so its just hard because I am feeling so bad and trying to get my school work from both semesters done and under control! And after I get this bladder thing under control I have to go to doctor for the other stuff and hopefully get that taken care of and feeling better. I guess its just one of those things, I get one health issue fixed and the others get worse so then I have to fix them too;)! Well, sorry this turned out so long I need to go lay down and try to work on school work. I will try to catch up on how everyone is doing later. I am thinking of you all and praying for you :) Take care:hug::hug::hug::hug::hug:!

TC Plz
 

b/c we care about u!!!!!:D:grouphug::hug::hug::hug::hug:z

AGREED Pooh
 

We DO SO CARE Tara, so please do not fret about bringing your issues here. This is a safe place among so many who CARE.

Praying for you,
Mark56:hug:Z:grouphug:

Good to hear from you Tara:hug: I am really sorry to hear that you are still unwell. Why do some people get so much hardship in their lives. I hope they can sort it all out for you and do it sooner rather than later. You are such a brave woman. All my woes just fade when I read about you and others that have multiple issues going on:hug: Please dont feel bad about coming on here and sharing that what we all do you do plus we all encourage each other too.

Glad to hear your still enjoying Gigi, Im sure she is getting really big now. Be careful if you have to venture out as you certainly do not want to have a fall on top of everything else.

Take care Tara and you are always in my prayers too

Jackie:hug:

We are like family!
 

Yes, everyone says it so well! Dear Tara! :grouphug:
Just because we are SCSer's, doesn't mean we can't talk about other challenges we face.....I think it's great that we are able to open up to one another and share what goes on in our lives.
If we kept this forum strictly to buttbuzz talk, well.....it would just be kinda like playin the same song all the time.
We NEED diversity!

Some days we feel goofy and act like idiots on here :Crazy 2: ....(except ME of course :) i'm the only one who stays on the straight and narrow :p).....

Other days we need to vent ANGER :mf_argue:.......

We are always picking each other up. Always praying for one another.

There isn't a single one of us who hasn't been down and out.
I'm like you, Tara, that sometimes I get so low that I just don't want anyone to 'see' me like that....... I hide under my covers......
I completely understand wanting to be 'alone'..... Just please don't make the mistake I've made in the past by isolating for TOOO long......it can cross over to a very dark place...... I think most of us know that 'dark' place I'm referring to.
We NEED 'fellowship'. To share in our ups and downs.

Today I feel high as a kite because my precious grandson (2 months old!) looked me deep in the eyes and gave me a MILLION DOLLAR SMILE for the first time ever! This was today! I feel like I'm on top of the world!
But you know what? Yesterday, I felt totally down and out. It was just a 'bad' day from the start and I had a yelling match with one of my twin sons..... and other issues were going on that had me in a mindframe of wishing that I could just walk right on thru the 'exit' door. Know whatta mean?

And this is how I see it.......I know that there are aLOT of people who come upon our forum while doing Google searches for info on SCS's and pain pumps....
By reading thru some of our threads, people can SEE that we still have many challenges and frustrations, even tho our stimulators can and do bring us much relief......we talk REAL talk....
There might be people who are under the impression that these units are miracles and cures......or perhaps they've been mislead by some 'salespitch' and don't realize how much is actually involved with getting these devices.

I know that when I was frantically online looking for information about these units, I wanted to hear 'real people' stuff......not the glorified, commercialized version. I wanted reality.
We are all in this together and we are constantly learning and growing from one another.
I could go on all night about how wonderful I feel about each and every person who comes here to share.....
And I love reading your updates. I so desperately want to see you be able to reach your goals and dreams (and you will!)......I'm just so sorry for all the things you are up against. But we all know you to be a VERY strong person.
You are a testimony unfolding right before us.

Just keep on being 'YOU' and don't EVER feel inhibited. You probably don't realize how many people you inspire.

Boy......I am really babbling on tonite aren't I!
I reckon I've got my point across by now.... :o and you MUST know how dear you are to all of us!

Caring ALWAYS,
Rae
:hug::grouphug::hug:

Absolutely well said Rae. You certainly put that out there to perfection :hug:

Soooo delighted to hear that little Aidyn has SMILED. Isn't it the most tremendous feeling in the world. My little grand daughter is just 7 months and has just got her first tooth. So great excitement. Doesn't it make you melt inside to see their little faces beam a huge smile. Fabulous!!!! I hope your daughter is doing well too Rae.

Jackie:hug:

Hi Tara- I vote with Rae and Jackie
 

You and your life story inspire others to the capacity to KEEP TRYING. You have brought those sentiments, those words, your heartbreaks and triumphs to the world..... th eWORLD through here. Bless you and Jerry, and Gigi, and may your weekend be a time of rest and peace.

Grateful,
Mark56:hug:z

P.S. RAE- that is so wonderful about Aidyn's SMILE. what a precious blessing of a moment for you!

Thank you everyone for thinking of me. I feel so bad that some of you are still having problems, when my stim is actually helping me for a change. I am still not doing very good with my other problems and like I said, that is why I have not been around too much. I get really overwhelmed and I was very depressed because I had to start facing certain things again and I want it to be over and me to be better. I have also been really busy with other issues as well and of course all of the school work! I have to meet with my lawyer next week about my lawsuit, and I have doctor appointments coming up and I think they are going to do the painful procedure on my bladder a week from Tuesday(I am dreading it and don't want to do it again). Gigi is good and I really think having her is what really helped me to recover so well. Although she is definitely full of energy and its hard for me to catch up with her at times lol. This is all I have time to write about for now, I am trying to read through posts and catch up to see how everyone is doing but it takes me awhile...