SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 04-16-2012, 01:14 PM #511
anon21816
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Default Cant believe Im still reading this!!!

James, Im still amazed and surprised to be STILL READING you harping on about the SCS and CPRS and how it didnt work for you.

WE GET IT!!!! but please please please stop going on about it in every thread that you submit to. If you feel so strongly about it, do what some other poster said and start your own thread, that way we can all avoid it if we dont want to have to listen to the same old story over and over again....

Thank you

Jackie







Quote:
Originally Posted by CRPSjames View Post
I too am well acquainted with anger at being soaked, duped and made worse. In my case my anger is more directed at myself than the doctor who put me in a wheelchair. My advice is to do what ever helps you to work through that anger. Taking legal action my be the path that gets you there but it could also keep you tied to that anger which might negatively effect your recovery.

My prayer for you is that you do whatever you need to do to get better. I am so excited that you have finally found a solution and a doctor who can help you. For me-working real hard to reverse the damage, get out of the wheelchair and move on with my life is the answer.

Yesterday a friend, who had a similar result with the SCS, asked me how I can cope with all the anger of being maimed by the doctor who put me in the wheelchair. He commented that I am not yet back to the point to where I was prior to the implantation of the Spinal Cord Stimulator that caused the spreads. Amazing as it seems, I had never looked at it like that.

I just focus on where I am now and the fact that I am getting better each week, despite the fact that most people who experience serious CRPS spreads from SCS don't improve. I also focus on the fact that now I am a better consumer and advocate for myself. You are too and that is the best skill to acquire no matter when and how we acquire it.

The glass is indeed half full! I know your glass is half full too. May 2 is just around the corner.
 
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Old 04-16-2012, 01:49 PM #512
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good day all

blessings for the day

dear friends
i am sooooooo
angry my strength
soooooo limited
the pain not masked
enough for me not to
feel the task at hand
ginnie rrae all who
have been maimed
by their doctors makes
me crazy nuts
i get up everyday
swearing at my doctor
out loud
"what did he do to me"
that's all i cry out till the
slew of medicine i am
taking he started me on
meds i tried coming off of
and can't i need it i never
wanted them however
this pain is NOT in my head
i cannot live function
concentrate focus move
hug touch feel pick up
make love take the elevator
and this is while on my meds
drive my car
i have one way only rule
go on one way streets
find parking i can pull in
and my vehicle is long
mind you i must do what i
must
most times i am driven
so that was taken away
to a point
thank you God
i am alive
in the last few days
brother-in-law
had a heart attack
this morning will be transferred
my daughter is having her
colonoscopy
enough going on
for this mind to
let me get away
from the anger
ladies
dealt some extreme
adversities still
affecting me
it so much more worse
good point rrae
ginnie after i get
other important medical
issue we will leave it at that
i have seen a lawyer don't
know him but point
either i have to let go
and let God or take it to a
lawyer it is a difficult thing
i understand i yet to have
a cat-scan then show lawyer report
as of October 18th 2011 I HAVEN'T FUSED
my headaches oh my sweet Saraeve
and what she has gone through
i was there i know
God take care of them
help me move on
or if you are calling for
me to have changes or
i don't see it
help me please
i need closure
not let it occupy
my mind as it does
of course i talk with God
i'm in constant never stop mode
i find humor with my God
but he knows how sad i am
i am responsible i will
my family needs me i will
do my best
thank God
thank you JESUS
thank you friends
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Old 04-16-2012, 02:37 PM #513
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Default Dearest Ginnie:

Please know that you're in my prayers for your upcoming surgery.

I can really understand your frustration and anger over the needless pain you've had to deal with these many years. I, too, was mishandled by a dr. (podiatrist) when I was a young teenager. Just went in for bunion removal and he decided while in surgery that he thought my toes should be straighter, so he decided to break them all, shorten the bones and I woke up with pins sticking out of my toes.

I was in misery for months, hobbling around in a cast, and was very upset about his decision to do this. Now this was about thirty years ago, and I have had to have several surgeries to undo what that jerk took upon himself to do. I was young and naive at the time and didn't even think about a lawsuit as you expect the dr. to "know best", and it wasn't until several years past that surgery that the damage began to show up. Now the big toe on my left foot is hardly there and I have to mainly walk on my other four toes.

I truly, truly pray and hope for you that this surgery gives you much relief and resolution to your problem. It's a dang shame (trying to be polite here) that so many of us have been given more issues to deal with at the very hands of those that are supposed to heal and restore. God bless you
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Old 04-16-2012, 03:17 PM #514
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Default Hi Fionab

Thank you. I have a little more time now to collect myself. The paperwork got to me but they scheduled me in exactly when I told her NOT to. She took it upon herself to put my surgery date at a time she wanted. so I changed that today for June 19th. I have another person, my caretaker to consider when making appointments. I would never ask her to get up at 3:30 a.m. to get me there by 5 a.m. So I can calm myself and relax a bit, make sure things are in order. Pain specialist, and getting equipment needs to be taken care of also. I actually feel a bit better, not being rushed into it. Everything will work out now, as all the details won't have to be rushed. Also I have time to research fusion, which was to be part of the surgery 4 weeks after the first surgery. I am not so sure that is an answer. Thanks for caring fionab, I will get it together, and get under control. I am glad I have my friends here. ginnie
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Old 04-16-2012, 06:39 PM #515
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Quote:
Originally Posted by ginnie View Post
Thank you. I have a little more time now to collect myself. The paperwork got to me but they scheduled me in exactly when I told her NOT to. She took it upon herself to put my surgery date at a time she wanted. so I changed that today for June 19th. I have another person, my caretaker to consider when making appointments. I would never ask her to get up at 3:30 a.m. to get me there by 5 a.m. So I can calm myself and relax a bit, make sure things are in order. Pain specialist, and getting equipment needs to be taken care of also. I actually feel a bit better, not being rushed into it. Everything will work out now, as all the details won't have to be rushed. Also I have time to research fusion, which was to be part of the surgery 4 weeks after the first surgery. I am not so sure that is an answer. Thanks for caring fionab, I will get it together, and get under control. I am glad I have my friends here. ginnie
many shoulders lean on them
you'll find mine
no throwing in the towel
many prayers that follow
so like you said
you can relax
do it
with love
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Old 04-17-2012, 08:18 AM #516
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dear friends

humble must i be

blessings for the day

thank you God
for a day i woke up
going to see my
skin doctor
dermatologist getting ready
daughter arrived
there are 2 places i am
concerned about
thank you LORD
be back
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Old 04-17-2012, 02:22 PM #517
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Default Hi fionab

It bothers me that the toe surgery was done to you. We put our trust into these physicians hands, and sometimes they don't do the right thing. I am sorry that happened to you, and that he did something that was so wrong. That is again why I am glad for a bit more time to research this thing that will happen to me. So far he told me three incisions to repair, but not the name of the proceedures, nor is anyone yet, wanting to take care of the post op pain. Well someone darn well better or there won't be any cutting on me at all. I don't walk blindly into anything anymore. I will have time for a bit of research, Doc. smith has given me some information on web sites, for ankle problems that I am researching today. How he finds all that information so quickly for me is amazing. Hope you are OK today too. Your toes are precious, as all our body parts are, we sure learn in a most difficult way sometimes. Have a good night, sleep good. My angel is visiting Malinda, keep her in your thoughts tonight if you would. She had an 8 level fusion today in her back. She is in my thoughts today alot! ginnie
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Old 04-18-2012, 11:28 AM #518
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dear friends

blessings for the day

nothing by chance

all okay with skin concern
skin cancer
someone i have seen before
never noticing the oncologist
6 month check-up
as i look to see what floor
who's name do i see is
my oncologists other office
same floor 2 doors from each other
oh my God what kind of a
chance is that someone
please someone
God help me stop thinking
they are in the same building
carry me LORD if you aren't
already
i make no stories up
i need my mind back
it must stop
consumed when having
a painful day being reminded
drives me nuts
thank you
for another day
my family
with their own personal
struggles that only
submit to you GOD
on my knees submit
talking to my shrink
blessed i have a
doctor overseeing me
it kills sometimes
letting go
the answer
not before i get a
valid complete
clearance i fused
till then tend to other
doctors i still need
going to put on back burner
i am sick of it
but it is what it is
at the end of the day
thank you GOD
thank you JESUS
thank you family and friends

have a blessed day
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Old 04-19-2012, 12:05 PM #519
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dear friends

in GODS time

blessings for the day

thank you for allowing
my brother-in-law
the opportunity to live
his only child my nephew
George and him i wish
a long life together
has successfully had
a triple by-pass
thank you LORD
give me strength for
whatever the day brings
my 13year old home
with momma she has
a cold with fever
hanging on
awaiting the pool
to open and see
how far in i can go
without feeling pain
it is exercise i can tolerate
till then still bed ridden
my head feels best
laying down i don't
have that pressure
of cinder blocks were being
placed on my head
and it getting heavier
and heavier as the days
goes by but all for
a reason we endure such
adverse situations
only God knows
so let me be thankful
grateful learning
trying real hard the
the accepting things
i cannot change
just do the best i can
and be honest
i wish all a blessed
rewarding full day
thank you God
thank you Jesus
thank you for my family
God Bless
thy will be done
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Old 04-19-2012, 11:54 PM #520
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Heart Humility

In awe I live
ever wondering HOW HE could give
compassion so wondrously free
for the taking by you and by me
as we last in the stillness of grace
being brought to a wonderful place
where the fear of cancer is gone
for the victory by God has been won
and the trembling inspired by deceit
full replaced tears on our cheeks
as we look in the mirror, reflect
on the peace as he stands us erect
to raise arms though they ache giving praise
for the Trinity work in This Place
where we share and delight in His grip
on our hearts 'cause we never can slip
from the one who on cross erased all our failings
as He gave up Himself to the nailing
knowing we who came later, much later than He
would fall prostrate in humility
as with thanks we'd be filled with the glow
of a heart purged and whiter than snow.

May God's grace, peace, love, generosity, caring, compassion, healing, and comfort surround all who here post, their families in need of care and healing, their caretakers who provide help and transport, the physicians who, though stressed, be filled with a vision of God as again those in our number are lifted up in everlasting prayer for help, health, freedom from fear, from pain, from toil which exacerbates pain..... may all of the children of all ages here on these pages be blessed as if surrounding Christ who pled "suffer the children to come unto me" for here we all are gathered as one around this globe.

Peace be unto all,
Praying,
Mark56
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