NeuroTalk Support Groups - What do you do when your pain is off the scale?

Quote:

Originally Posted by Sophie_ (Post 768858)

Hi guys,

Thanks for all your messages yesterday, it helps believe it or not, todays blessing is, i'm glad to have found this forum where everyone knows what we're going through. This morning I put on some of those Lidoderm patches that Jenna mentioned, I forgot I had some so and i feel the benefit of them, it's just pure old fashioned back spasms, not like pre scs and thankfully no burning foot although there has been many a day when I would just love to walk on a cold tiled floor, even when it was minus God knows outside!
I sometimes do have more back ache if wearing tight clothes and yet I love me jeans so much! I can't even wear the support belt that much.

I ocassionaly do turn up the stim to overwhelm the antziness of my legs and that helps, turning it up for the backache is more of a nuisance than a help though this is why my Doc is considering the second stim (and for right leg), it hasn't really helped my back much. Restless legs is horrible, often keeps me awake all night but last night I took a sleeper, some of those breakthrough pain meds and I'm happy to report today I feel much better, yippee, I even went to work this morning!

Thanks for all your support

Sophie :)

Hi Sophie,

I know exactly what you mean when you say that you find the stim a bit of a nuisance for your back. I dont get much coverage there and if and when I do its so bad I have to turn it down. I get some good relief in my legs, but only when lying down or sitting for a while. When I go out to walk I barely feel it and if I have to turn it up high to actually feel it my legs feel numb and basically its impossible to actually walk properly with it that high.

I was told by my Dr that it wasnt great for back but great for legs. Had a programming session two weeks ago but unfortunately they are not working the way I thought they would. My Rep changed the sensation too and boy is it uncomfortable. So Ive emailed her again (she comes over from UK) to ask when her next appointment session will be and that I want to come back in again!

Glad to hear that you got to work today, well done :)

Jackie :)