SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-15-2011, 05:00 PM #1
Sophie_'s Avatar
Sophie_ Sophie_ is offline
Member
 
Join Date: May 2011
Location: Kildare, Ireland
Posts: 417
10 yr Member
Sophie_ Sophie_ is offline
Member
Sophie_'s Avatar
 
Join Date: May 2011
Location: Kildare, Ireland
Posts: 417
10 yr Member
Poll Supplements

Hi guys,

I'm wondering do any of you take any supplements? Most of us are on some sort of pain medication, meds for arthritis, meds of constipation, meds to help us sleep... you get the drift.

I read somewhere that taking opiods can strip you blood of potassium (sp?), and meds can exhaust us and what not, I also read that opiates can also cause depression and can strip your blood of something called l-tyrosine. L-tyrosine can also regulate body weight.

What do you think, are supplements a good idea and if so what would you consider taking.

I've been taking cod-liver oil supplements for many years but that's it, i feel like I take enough crap! On the other hand over the last 4 years my weight has ballooned and I can't lose a 1lb, i'd love to get rid of it but my Dr has basically said there's no point that i'd only upset myself more. This is one of the worst things about having so much information at out fingertips but hey.... questions are always there and i like information.

Feedback please, much appreciated.

Sinéad
Sophie_ is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (05-15-2011), Rrae (05-17-2011)

advertisement
Old 05-15-2011, 06:31 PM #2
irljenn's Avatar
irljenn irljenn is offline
Member
 
Join Date: Oct 2010
Location: IRELAND
Posts: 251
10 yr Member
irljenn irljenn is offline
Member
irljenn's Avatar
 
Join Date: Oct 2010
Location: IRELAND
Posts: 251
10 yr Member
Default

great subject Sinéad!!

I would love to find out about this as i really do feel i should be taking something to help my liver!! i am back on the ketamine and i cannot think how this is effecting me as i need it to help with this major pain spike of the last few weeks.

The weight thing is a problem for me also, never had a pic on me until this accident but now unable to move to do anything. would love some suggestions on this as i think when you dont think you look good this also effects how you feel.

Really great thread sinéad and i hope some of the experts can tell us what might help!
irljenn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (05-15-2011), Sophie_ (05-20-2011)
Old 05-15-2011, 11:12 PM #3
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Smile Kick the Opiods and the Nerve Meds

That was my major goal and achievement. Drive morphine from my system along with the neurontin and other pain management meds. In so doing, I did notice a drop in weight, that is, along with an increase in walking and riding my bike.

Such is not an attempt for the faint of heart or those who are unwilling to experience some pain the system will not handle; however, I have not popped a pain pill since last August 2010. Nope. Withdrawal was not fun. Ugly is a good word for it. My thread speaks of it.

Supplements, you bet- Cleo hogties me, forces my mouth open with a pair of pliers, and plops them, pill by pill in my mouth [ not really, but she is both conscience of great wisdom and my life manager- just ask her ]. We use the Juice Plus brand of supplements as they tend toward the natural, adding a few fish oil capsules, topped off with a few calcium and B-12 I think. She tries to keep me on this regularly, and I do try to comply.

I have no clue what the lasting effect of the supplements may be, but making the effort does tend to satisfy my wife of almost 38 years.


Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (05-17-2011), Sophie_ (05-20-2011), Twinkletoes (05-16-2011)
Old 05-20-2011, 06:17 PM #4
Sophie_'s Avatar
Sophie_ Sophie_ is offline
Member
 
Join Date: May 2011
Location: Kildare, Ireland
Posts: 417
10 yr Member
Sophie_ Sophie_ is offline
Member
Sophie_'s Avatar
 
Join Date: May 2011
Location: Kildare, Ireland
Posts: 417
10 yr Member
Smile Supplements

Hi guys,
I dropped into Holland & Barrett last week for a chat with their expert, I explained the meds I was taking and the problems I'm having. I think most people on here are taking something for the dreaded opiate constipation so that's covered. She then suggested some cod liver oil or omega 3 oil in capsule form to aid stiff joints etc. I partly guessed this one. I also got some Korean Ginseng for energy levels, I've taken this occasionally coming up to exams and find it good.
I dunno if they are doing me any good yet, time will tell but I'll try, the hopefully can't do any harm.

I checked out this stuff online before I decided to take it.

If anyone else has anything else I'd be grateful.

All the best,

Sophie xxx
Sophie_ is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (05-22-2011)
Old 05-22-2011, 04:10 PM #5
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Smile As for the dreaded constipation.....

I tended to eat copious amounts of Prunes. Thought they would be absolutely awful, but, you know, they were not all that bad, and I reckon I acquired a taste for the slimey fruits. Eating them along with some dried apricots, gave for a bit of variety and did produce the intended results. Fish Oil, yep, my wife has me on that, Calcium, B12, and these supplements branded Juice Plus [actually capsules of dried granular fruits and veggies]. She commands, I take.

Once I got away from the dreaded opiates completely through doc monitored withdrawal, the constipation went with them, but then you can read that messy saga on my thread around last August and September. Ick.

Supplements, they are Ok by me,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sophie_ (05-28-2011)
Old 05-28-2011, 12:22 PM #6
Saffy's Avatar
Saffy Saffy is offline
Member
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Saffy Saffy is offline
Member
Saffy's Avatar
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Default

My daughter works for Holland & Barrett ... will speak to her too.
Saffy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (05-28-2011), Sophie_ (05-28-2011)
Old 05-28-2011, 12:40 PM #7
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Thumbs up It is a small world after all

Wow Saffy, your daughter works for Holland & Barrett, what a small, small world in which we live..... truly.

May all have a good weekend!
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
Old 05-28-2011, 04:45 PM #8
Sophie_'s Avatar
Sophie_ Sophie_ is offline
Member
 
Join Date: May 2011
Location: Kildare, Ireland
Posts: 417
10 yr Member
Sophie_ Sophie_ is offline
Member
Sophie_'s Avatar
 
Join Date: May 2011
Location: Kildare, Ireland
Posts: 417
10 yr Member
Default Supplements and Prunes

Hi Saffy,
That would be great if she had some ideas to help us, I read somewhere that opiates can strip your body of postassium and apparently our bodies need potassium to help our nerve endings work (catch22huh?), I don't know if this is true. What else might be good for energy apart from ginseng, the opiates again love to make me sleepy and I have a full-time job (well it will be full-time again in a while)
As for the prunes Mark... seriously noooooo , it brings back awful memories of childhood, tinned prunes with custard and if we ate them my granny was give us a nice reward! I like apricots with my weetabix and porridge in the morning, but unfortunately they're not enough but i take the movical sachets.
Later alligators.... Silence of the Lambs is on tv and I haven't seen it in years, I can't believe how awful the fashion was in the 80's

Sinéad
Sophie_ is offline   Reply With QuoteReply With Quote
Old 05-28-2011, 04:47 PM #9
smae's Avatar
smae smae is offline
Member
 
Join Date: Jul 2010
Posts: 458
10 yr Member
smae smae is offline
Member
smae's Avatar
 
Join Date: Jul 2010
Posts: 458
10 yr Member
Default

For supplements/vitamins, I take:
Calcium
Vitamin C
Vitamin D (5,000 IUs daily)
Magnesium (250 mg daily)
Zinc (50 mg daily)
Omega 3 Krill Oil (300 mg daily)
Monthly B12 shot
Multivitamin
B-complex

I think that is it...
__________________

.


♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
smae is offline   Reply With QuoteReply With Quote
Old 05-28-2011, 05:17 PM #10
Sophie_'s Avatar
Sophie_ Sophie_ is offline
Member
 
Join Date: May 2011
Location: Kildare, Ireland
Posts: 417
10 yr Member
Sophie_ Sophie_ is offline
Member
Sophie_'s Avatar
 
Join Date: May 2011
Location: Kildare, Ireland
Posts: 417
10 yr Member
Default Your supplements

Hi Smae,

Thanks for your feedback, do you find calcium and magnesium helps, I suppose it would help in keeping bones strong which can't be a bad thing. Im already taking the fish liver oils, cod liver and omega 3. Not the zinc. The reason why I started this thread is because I take so much opiate meds and I wonder what they could be doing to our bodies, bones, liver etc. There are so many of us here that take the same kind of meds and I thought who else would know this kind of thing. When I ask my GP about this he says not to worry about it, he's probably right but.....

Thanks again,

Sinéad
Sophie_ is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Supplements to help Vowel Lady Diabetes / Insulin Resistance / Metabolic Syndrome 24 04-03-2018 12:10 PM
Supplements that help TOS? TraceyW Thoracic Outlet Syndrome 12 02-24-2009 12:54 AM
The six best supplements... Roseblue Vitamins, Nutrients, Herbs and Supplements 3 06-12-2008 04:00 AM
Supplements Lupin Peripheral Neuropathy 6 03-17-2007 12:36 PM
supplements, etc. maryfrances Parkinson's Disease 6 10-16-2006 08:42 PM


All times are GMT -5. The time now is 07:26 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.