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-   -   Problem with leads (https://www.neurotalk.org/scs-and-pain-pumps/150467-leads.html)

Sophie_ 05-26-2011 03:35 PM

Problem with leads
 
Hi guys,

Still in deep trouble with pain, I went to work this morning and I had to come home early, when I was sitting I wanted to stand, when I was standing I wanted to lie when I was lying I wanted to get back to work, as long as I don't move too much it's much easier. I sent my consultant this morning and he rang me back this evening he's great how many consulatants would do this. He was sorry to hear I was in so much pain. He's in London at the moment but he wants to see me himself so Monday or Tuesday.
I'm a bit more at ease this evening having spoken to him he's such an angel.
I've heard about the whole leads versus paddles things and I wonder wouldthe paddles be better, even for my next SCS.

How is everyone else this evening Jenna is trying to study for exams and up to high doh.

Love to all,

Sinéad xxx:hug:

irljenn 05-26-2011 04:23 PM

Sinead ! so glad that we at least have an excellent caring consultant he is just like a gentle giant!! and i know he will resolve your problem next week.

to think we did not even know each other a few weeks ago! how quickly we can form our friendships for life on this site even if i wish I did not have to meet you because of the "pain" in our lives!

Here is hoping that next weeks comes quick enough for both of us! and have to say UCD are great i sit my exams in a separate room to everyone else so i can put my feet up walk around and use my "mark" cushion to get me through and I also get an extra half hour to do my exam which i won't need as i really don't know enough to stay that long. tomorrow is business law and i intend to use the word "etc" lots and hopefully that will give the examiner the impression i know a lot more than i do!!

We have a group college forum on fb and i did post today that i would miss my fellow students as they are packed liked sardines into one big room with so little room. i have told them that i have a couch to do mine on with candles lit and nice backround music!! now i doubt they believe me but nice to wind them up a bit.

on a good note the ketamine is giving me some relief tonight but about to put charger on which means sitting straight for next 2 hours which wont be great for me.

lots of group prayers for me and if you can ask the man above to make sure the two topics i know are on the paper i might be ok!

Mark56 05-27-2011 01:46 AM

Oh my friends
 
Dear Jenna and Sinéad- That the consultants may meet your needs and be present at the scheduled appointments so the relief of ready aid for your difficulties be forthcoming. May work become more tolerable where now it is hard [ I was known as the lawyer who lay on the floor with pillows and my computer propped up on my thighs..... bad on the carpal tunnels ]. Ultimately I did obtain a reclining chair for my office, but I had to use cushions with it due to the PAIN.

May those remaining studies come into fruition such that you feel confident and prepared, for your mind IS clear and your thoughts are ON POINT regardless of the queries presented.

May both of you know times with reduced and managed pain. Oh, and know this, that I am praying for you in your situations.

CARING!:hug::hug:zzz
Mark56

tinkster 05-27-2011 05:02 PM

Quote:

Originally Posted by ron h (Post 771580)
hi. i know some. I max the power. I have been to tech alot times. Now they say leads have moved. Now new surgery to move leads. Mine shoot vibs into the ribs. Ever step shoots from foot to armpit. i have to take an extra norco and laying ball helps. To let you know your not alone. pain is bad
ron h :grouphug:

Hello!
I was wondering, when you say they think your leads have moved... did they verify that through xrays?
I do not have paddle leads but it was verified that my leads have not moved, which I am greatful for. I do have a wonderful rep that will meet me at any appt. and tweak, adjust, or what have you my SCS until we get it right. :D
I am still not receiving the % of pain management I would like via the SCS yet but I am hopeful. Since the surgery approx 3 weeks to move the battery, my back does feel better at that site.
Blessings....

Sophie_ 05-27-2011 05:23 PM

Leads moved? I dunno
 
Hi Ron,
Im meeting my consultant early next to decide what to do, I've been in terrible pain right across my back over a week now and it's really bad, i can't really do anything with it. I wouldn't mind but up to that I had been okay, I knew the back wasn't what the Dr was hoping for in terms of relief but I could manage it. The last time I spoke to my consultant he decided he would probaby put in another stim but as I was coping it wasn't urgent, now I don't know what to think, I guess you're right he'll do some x-rays see have the leads moved and take it from there.

How are you getting on? Any hassles? i hope not.

All the best,

Sinéad

ron h 05-27-2011 06:07 PM

hi all
last time at the Dr. he did x-rays. he said look like they are same place.
June 11,2011 meet with tech to adjust stim. she tried ever thing. i have one lead working and one program that works. Dr. said need to move leads. I'm waiting on workman comp to clear for surgery. paperwork doesn't now pain.
i have rechargeable medtronic. i hope everyone feeling the best you can. mine still vibes in the ribs.
thanks to everyone
Ron h:grouphug:


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