SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 07-09-2011, 02:09 AM #1
wdt5150 wdt5150 is offline
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Crazy Confused Pain Pump or SCS

I have a appointment Monday to see if I can get the SCS and still I am reading about the difference in how people had had with each , the pain pump and the scs and then I really get confused.
I have read that if you get the scs horse riding will be out , that is one thing I hope to get back to doing , as for my wife and I used to train horses together and I used to go on calls with her on horses being sick or down very interesting by the way.
I miss my kids activities and going to church sometimes I get to go to the 11-12 sometimes but cant push through the pain for all.
For as the horses we lost the first horse we got a few years ago and this past year she bought me a new one "trying to help with my therapy" and I really want to ride her on a trail ride with the family.
I know according to my past doctors nothing is going to fix the problem but I was hoping that one of these was going to allow me to return to some what of a life I used to have.I know by what I read that this is why the trial is a part of it but being that we have gone through 175,000.00 in the past three years all of the savings have depleted and as they do you seem to be really looking at what will be the best long term solution for yourself and your family as if the stress wasn't enough.It seems both are very costly and I don't know if insurance will pay for it but it seems that the pump cost more in the long term.I am going to discuss all of this with the new doctor Monday and I really want to thank all of you for your information about both as in both of them it seems to be very complicated with what kind of out come you may experience.I really hope all of you get the relief you are searching for and am very grateful to God and the doctors for the ones that have received a more painless life because I understand there is a shadow in your heart when you live in pain that no one understands.The stress and emotions alone change a person.For be it I am one that has had may changes in the way I look a things.But it all still confuses me though.
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Old 07-09-2011, 12:09 PM #2
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Default

Hi ~ I'm sorry you're having these problems. Spinal pain is awful, and affects all areas of your life.

I had the SCS implanted for 6 months -- I had to have it removed due to the fact that i didn't have enough "fat" content in my body to hold it in. It tried to work itself OUT of me. UGH. Anyway, you need to know that the SCS works best with nerve-type pain -- it isn't as good for mechanical pain. For me, I found that the stimulation actually made the sciatic nerve even MORE painful -- it irritated it more for some reason. I kept adjusting the strength of the stimulation, but it didn't seem to matter.

After I had the SCS taken out, my pain doc tried the morphine pump on me. That was WONDERFUL -- the drug goes right to the nerves and "numbs" them. I actually had a couple of days of being pain FREE. But THEN the doc said i couldn't have the pump because it was bigger than the SCS, and my body wouldn't hold it in. Which made me wonder why they tried it on me in the first place!!! DUH.

If I had a choice (and you may not) I would opt for the morphine pump. But that's just me. The SCS might work great for you. At least go thru the trial period to see if it does work -- but make sure during the trial that you give it a good workout. They gave me so many restrictions during the trial, that i didn't get a good assessment of pain relief. Then after having it implanted and after I got back to my 'normal' routine, I found that it didn't give me pain relief at all. So I shouldn't have followed their restrictions to the letter.

Best of luck, and let us know how you come out. Take care & God bless. Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



Often the test of courage is not to die, but to live..
.................................................. ...............Orestes
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Old 07-09-2011, 05:10 PM #3
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Heart Hi there

Hi Leesa,

You really have been through the mill, you have suffered way too much pain in your life, you are obviously a very strong person to have coped with all of that back pain and then the breast cancer. Where do you get your strength from if you don't mind me asking? Where are you now with the pain relief are you on Oral medication?

I wish you the very best and I hope you're doctors find some way of finding pain relief for you.

Love and god bless

Sophie, xxxx



Quote:
Originally Posted by Leesa View Post
Hi ~ I'm sorry you're having these problems. Spinal pain is awful, and affects all areas of your life.

I had the SCS implanted for 6 months -- I had to have it removed due to the fact that i didn't have enough "fat" content in my body to hold it in. It tried to work itself OUT of me. UGH. Anyway, you need to know that the SCS works best with nerve-type pain -- it isn't as good for mechanical pain. For me, I found that the stimulation actually made the sciatic nerve even MORE painful -- it irritated it more for some reason. I kept adjusting the strength of the stimulation, but it didn't seem to matter.

After I had the SCS taken out, my pain doc tried the morphine pump on me. That was WONDERFUL -- the drug goes right to the nerves and "numbs" them. I actually had a couple of days of being pain FREE. But THEN the doc said i couldn't have the pump because it was bigger than the SCS, and my body wouldn't hold it in. Which made me wonder why they tried it on me in the first place!!! DUH.

If I had a choice (and you may not) I would opt for the morphine pump. But that's just me. The SCS might work great for you. At least go thru the trial period to see if it does work -- but make sure during the trial that you give it a good workout. They gave me so many restrictions during the trial, that i didn't get a good assessment of pain relief. Then after having it implanted and after I got back to my 'normal' routine, I found that it didn't give me pain relief at all. So I shouldn't have followed their restrictions to the letter.

Best of luck, and let us know how you come out. Take care & God bless. Hugs, Lee
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Old 07-09-2011, 11:50 PM #4
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Default I hope you find relife

I feel ,for you and hope they can get it to help.
I will put you in my payer list.
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Mark56 (07-17-2011), ron h (07-15-2011)
Old 07-14-2011, 11:17 AM #5
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Default Mondays visit

Went Monday and was advised due to the scare tissue it may not be able to do it, he is calling the company to see.
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Old 07-17-2011, 09:43 AM #6
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Thumbs up Doggone it!

Scar tissue is a booger [first time I have used that one], we need some rocket scientist [there are a few unemployed in this country now] so why not come up with a way to pierce scar tissue to thread leads? Something like a flexible straw channel to allow lead flexibility and such similar to the sheath of the carpal tunnel????

Well, gotta go before my rocket explodes.
Mark56
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