[Sophie_]

Hi guys,

I haven't been on much this last week, I've been working fulltime for the last two weeks and when I come home in the evening completely wiped out, all I want is to lie down. I like my job and I love to have that purpose to get up every day. I've had enough of being off work.

I'm still waiting on the pain relief from the SCS revision surgery I had almost a month ago even though my stim is working better, it hasn't helped with the lower back pain much. Two weeks after the surgery I went back to work fulltime.

Every time i try to take a step it's like as if someone is stabbing me around the part where I had the surgery, I still have that ring of pain around my hips, i still have spasms galore they are bad in my left thigh (bad leg) and I'm sleep isn't great. I get this awful twitching anywhere really when I am at rest and sometimes my entire body just jumps! It's frightening in the middle of the night a can tell you! I'm back to see my Consultant next week and I'll fill him in.

I'm feeling a bit down at the moment and I guess I just wanted to hear your words of wisdom and a hug. My hubby is great and he's trying his best but I know he hates to see me like this.

Love to all

Is mise Sinead xxx

[Saffy]

You are incredible to be going back to work. Maybe you shouldn't have pushed yourself so much Sophie. Your body AND mind need time to heal from any form of operation. What is itmyou do?

Xxxxxxx sending love and hugs

[Mark56]

Awww Sophie-

I am sorry to know you are experiencing post revision issues like this. I just wonder whether your consultant had given you the "all clear" to return to work that soon after the revision, or whether they would have recommended you give it a while longer to get beyond the surgical pain phenomenon.

Even so, well over a year after my implant now, I can lie in bed at night as we prepare for rest, and look down at my feet, which mind you are "offline" to sensory perception and the darndest thing is that the toes will move involuntarily according to the amount of stim running through me at teh time. Spasms and knife like pain post surgery pretty much went away in the four months post surgery, but the underlying burning of the nerve pain persisted.... which is why I have the SCS. Sometimes, my leg or legs will involuntarily jump or twitch, and I write that off to a spasm but the pain is stim controlled.

I pray for you especially since, you brave soul, you have returned to work full time.
Prayin,
Mark56 zzzzzzzzzzzzzzzzzzzzzzzzzz

[Saffy]

I really don't think you should be at work right now Sophie .. can your Doctor not sign you off. Mentally, emotionally and physicially, you've been through an awful lot lass, and you need to look after YOU .. they wont thank you at work for pushing yourself like this and I'm sure you can find some distraction at home to keep you from getting bored.

You can still get up every day as per routine .. but maybe take a little walk .. do something nice for YOU .. and build up your strength.

xx

[Mark56]

Originally Posted by Saffy

I really don't think you should be at work right now Sophie .. can your Doctor not sign you off. Mentally, emotionally and physicially, you've been through an awful lot lass, and you need to look after YOU .. they wont thank you at work for pushing yourself like this and I'm sure you can find some distraction at home to keep you from getting bored.

You can still get up every day as per routine .. but maybe take a little walk .. do something nice for YOU .. and build up your strength.

xx

Too much too soo does tend to aggravate the tender spots.
Mark56

[Sophie_]

Thanks guys,

I'm off now for three weeks and I'm hoping this will help me feel better, right I'm feeling very wrecked and sorry for myself, I don't like feeling sorry for myself, I hate it. Im so tired so I've been sleeping yesterday and today, hopefully tomorrow I'll feel better, get out and get some energy. I dunno, I really hate this pain when it gets me down. We all feel like this from time to time.

Thanks again

S xxx 

Originally Posted by Saffy

I really don't think you should be at work right now Sophie .. can your Doctor not sign you off. Mentally, emotionally and physicially, you've been through an awful lot lass, and you need to look after YOU .. they wont thank you at work for pushing yourself like this and I'm sure you can find some distraction at home to keep you from getting bored.

You can still get up every day as per routine .. but maybe take a little walk .. do something nice for YOU .. and build up your strength.

xx

[Sophie_]

Hi guys,

Thanks for all your words of wisdom and i so needed your strength to help me. Emotionally I feel somewhat better, not as ****** off. The last few days got me down. The fact that I may never get any better than what I am now, all of this pain and then trying to lead a normal life so I can pay the mortgage and the bills. I can't afford any more time off work and this got me down.
I was so wrecked tired from working solid for two weeks straight and yes Karen you're right I probably shouldn't be working full time but financially I don't have a choice, I'm lucky in my job that my colleagues are great, I have my own office and I can shut the door and lie down for a little while, it's not a physically tough job.
I'm not gonna lie and say yippi all is good again, it's not but I am feeling better. Paul and I are off work for a little while and now that my body is feeling a little better hopefully we'll get out and about, here and there and next week my consultant is going to hear exactly what's wrong.

Thanks again my friend, thank you for your support, it's appreciated..

love all,

Sinéad

[Rrae]

.............................

Sophie,
I am so sorry you are having a rough time of it lately. This place is wonderful to have, especially times like these. You know how much everybody cares.
I know you are a strong person, even tho you may not feel that you are.
I hope you come up out of this glum soon.... (glum ? did i say that? )

When I was trying to recoup from my revision, it seemed like an endless vortex of living HE** !! The horrendous back spasms would NOT let up and I was so close to giving up my job of 25 yrs and try for disability.
And then out of the blue my pain doc suggested I try 'Baclofen'....ah, great - aNUTHer medication . I thought the name sounded familiar and indeed it was what was used a few yrs back in my nerve block injections and I recalled that it did give temporary relief, but as you know, injections where off....I had no idea this med was in pill form.
I've only been on it for a month and my spasms are all but GONE.

....just thought I'd throw that out there - not sure what meds you take but maybe it'd be worth checking into who knows.

Just know how much we all care. Always here to pick each other up.
This place is such a God-send

Caring
Rae

[Mark56]

CARING SO MUCH FOR YOU SOPHIE!!!!! HUGZ THIS BIG!! Yup, : o)
Mark56

[Sophie_]

Dear friends,

Thank you all for your kind words of support and wisdom, i've had a few days of resting and doing very little and i'm feeling much better now. My mood is definitely more like me and i'm feeling stronger in order to cope with the pain spikes that often send me into a mental overdrive where I think I just can't cope. It really is good to have a place like this where we can all talk and share our pain and not feel judged.

Today my hubby and I drove to a Shopping Mall, had some coffee and a stroll around the shops, it makes a nice difference on a Tuesday afternoon when the queues (lines) are short and the car parking is hassle free.

I was tired afterward but who wouldn't be.

Thank you all again for your help and suppport and I very much appreciate it.

Later alligators... & love to all

Sinéad