Dear Alt-

It is so incredible how revelation comes to each of us. The notion of being fully healed is not the grand quest it was for me in the early days after the wreck. So much has become apparent, and as a consequence of yielding to whatever God had for me. Amazing how much impact one can have on another when from a wheelchair, looking up and responding to an inquiry how I feel today, responding regarding my feeling of blessing and inquiring how the other feels. Or if not in the chair, leaning on my cane, and still sharing with another who seems quite fit after all, and they BEAM gratitude for someone opening the door to a discussion regarding blessings and it is not someone who used to be fairly athletic, but a person who truly appears to be hobbled.

So cool how in all of the grand plan, we each come to our point of reaching out to another to help one in need. Truly, having to go for another IME is a hassle, and it will work for the good in your case, while the Trial must be allowed to proceed...... THEN, when you think it is all settled down to a slow simmer..... you find yourself propelled into a place of sharing with someone who really needs it. This is how it has worked for me, even today, as I was so in pain on the way home from work.... had a difficulty and delay at a hardware store trying to exchange something, then realized our daughter had all but drained my car of fuel, so I stopped at the nearest gas station, ONLY to run alongside a longtime dear work friend [former company] and we had moments to share with one another and I was able to remind her I felt blessed. Maybe she needed those words this evening. Perhaps THIS is why I was delayed, though I just wanted to get home to my bed and lie down.

What a blessing indeed. May your purpose in all of this be openly and readily revealed to you so you have not one doubt....... not one. AND, may you feel a great deep warmth in your heart because you were placed at exactly the correct spot and precisely the right time.

Prayin,
Mark56zzzzzzzzzzzzzzzzzzzzz

Welll wc is denying my stim. trial. I now have rsd in left foot and dr. says that my internal issues are more then likely rsd related. Yah! What Now?

I trust that your doctor is advocating strongly for you. It takes up quite a bit of time but is part of his job. Dealing with W/C is a pain in the tush. My last job was with a psychiatrist and he wouldn't even take W/C patients due to no pay/slow pay/and certification problems. Don't throw in the towel yet. Best wishes.

I have a st Jude eon stim. I love it. It is hard enough to get these approved through regular insurance. I can't imagine workers comp. I hope you get it worked out soon. It sounds like you need relief!!

I'm so sorry to hear this. I know you've been waiting a long time on this.
Please hang in there and don't give up. It may take more time and paperwork, but with the right people backing you up, somehow this could come thru for you.
Stupid work comp. I know how they drag things on. They shouldn't have the final say. It's just not right.

Caring,
Rae

So SO hard to wait for work comp responses and they take a lot of pushing from both DOC and the LAWYER, so much hard work goes into the persuasion then patience in the waiting. I am a Work Comp result, and now that I am officially DISABLED imagine this, the Work Comp set aside Medical Savings Account administered under Medicare guidelines and Medicare itself [now my primary provider of medical coverage] receive claims from a lab for blood work and each point the finger at the other saying this is covered by the other side under Medicare guidelines....... Is this a GO FIGURE moment????

So Alt, I PRAY for you and the decision making by those in control that you be approved, then ultimately provided best possible care for your pain regardless of the causation issue relevant to the commencement of the injury. If Work Comp can be proven to be responsible because but for the injury which produced the RSD, you may be able to help lawyer with the idea of finding law on such a point..... one never knows. But if origin/causation lays within the scope of the injury, Fight As Though You Are Inspired by Patrick Henry!!!!

Prayin,
Mark56

Be careful and cautious when getting the scs... I'm 22 (18 when had the device implanted) and just received a letter saying my device has been recalled. I have been in remission with flare ups from crps, and now have to get an explant. The scary part is not knowing if the surgery will cause the disease to come back in full force! If i would of known that the scs was going to cause so many problems, i would of never considered it.

alt, I sure hope things move along for you soon so you can get relief from your pain. As you all know, I had 2 St Jude stims implanted in me a year ago (cervical & thoracic). I would not have been able to continue working this last year without them. Although I still have a great deal of pain (areas the SCS don't reach and other issues), it has been reduced tremendously and for this I am grateful.

I am fortunate that I have my husband's good insurance to cover me and do not have to deal with WC. They are ridiculous to think they know what is best for the patient.

I truly hope you get resolution VERY soon!
Nanc

Welcome! And thanks for sharing! I'm so sorry to hear this. Did they say why they were mandating these recalls? I can imagine how you must be feeling about this. What brand do you have?

Please stick around and let us know how this unfolds. How very frustrating to get this letter after having your unit these past few years and everything seems to be going well with your remission. Just plain stinks

Caring,
Rae

stay close to the doctor you trust
if you don't have one i hope you
can find one ASAP
educate yourself
the best you can
God guide you to
the help we all need
trust in yourself

someone who cares