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-   -   New and just found the right forum (https://www.neurotalk.org/scs-and-pain-pumps/163565-found-forum.html)

Rrae 02-13-2012 10:55 PM

Quote:

Originally Posted by Paulb_47 (Post 851306)
Ginnie, thanks and I get lost easily on this site. I'll post something and forget where I posted.

Here's a tip and I hope it helps....
If you go to your profile page and look under 'statistics', choose the option that says 'find all posts by Paul'..... this'll bring up all your posts and where you've posted them.

You probably already know this :rolleyes:

Rae
:hug:

Mark56 02-14-2012 01:38 AM

Paul.... This too shall come
 
It is terribly difficult to be a patient patient. I found it thus when I was awaiting the Permanent after having had the blessing the God touched peace of pain under control during the Trial. Time will pass and all will be well, anyway that is my prayer for you.

Now do not get me started talking about the old VCR tape machines and my machinations after a repair bill of $99 turned the very next tape inserted into confetti. Your description mimics my response to that poor machine...... garbage fodder it became.....

Yup,
We still laugh about it to this day,
Mark56:D

Rachel4444 02-14-2012 06:14 AM

Quote:

Originally Posted by Paulb_47 (Post 849965)
OK, it was fast. I get the surgery for the permanent implant in two weeks! I had my appointment with the Neuro-surgeon today. He was funny. He looked at my MRI for 4 seconds and said "yep, you do need the stim". So, the 23rd is when I go in.

I think I may even have the week and a half I need before my wife has her surgery. That would give me a chance to heal a little and get turned on. I should be able to do light duty in taking care of my wife at that point. (Light cleaning, draining tubes, heat it up type cooking).

There are up sides to mastectomy? Well, sort of. My wife has never had large breast. I could care less but reconstruction surgery is based in part on cosmetic surgery. They simply don't have implants that would be small enough for my wife. So, she will be 'enhanced' courtesy of insurance. I am teasing her unmercifully about that.

Wow Paul, great you have your date for your permanent implant so quick!! I'm just recovering from mine, I had my operation on the 4th feb 2012. It is quite sore after, just to warn you, but it's a different pain to all our normal pains, at least we know the operation pain won't last! It's quite difficult to get comfy. However I had a real turnaround on about day 9 or 10 ish, things are a lot easier now, so will hopefully be good for you to help your wife xxx

I've had a Medtronic machine put in, it's a permanent battery which I believe I will need changed every 2 years ish. Don't be too worried if you don't get the correct stimulation straight away, they explained to me that due to the operation swelling in and around the spine the electrodes can move a bit. Once the swelling has gone down a bit it will work better. I regret not asking enough questions when they were programming it, may be worth you jotting down any questions you have so you make sure you get them answered - its so easy to forget when it's so new and there's so much going on around you :)

Hope it all goes well for both you and your wife, thinking of you both x
I'm getting my staples out this evening which I'm looking forward to!
All the best
Rachel :grouphug:

Mark56 02-14-2012 09:40 AM

And for you Rachel
 
The surgical swelling and pain will commonly abate a bit at a time until you do not notice it at all anymore. This is when the stim becomes truly noticable as addressing your nerve pain.

All will be well,
Prayin,
Mark56:hug:

ginnie 02-14-2012 10:03 AM

Thanks Rrae
 
Thank you for the tip. No I didn't know that. If you really knew how inexperienced I am on the PC you would laugh. This tip will help me not to get lost. I wrote the tip down so I won't forget. Once I do things a couple of times I can remember. Thanks again Rrae. hope this valentines day, that you get lots of hugs. ginnie:hug::circlelove::yahoo:

Paulb_47 02-14-2012 12:34 PM

Thanks Rrae, that will make things easier.

Just 9 days until the permanent. They will not turn me on for a week after surgery. I guess that is to give the swelling time to go down some. I usually heal fast. For the temporary, the spear in the back feeling was gone in two days. It still hurt but I was too enamored of the stimulation to notice.

eva5667faliure 02-19-2012 10:02 AM

dear paul

this may sound off
i'm sorry to read the extent of your
pain and have nothing but
sadness it is so prevalent
the reason i am here
i am wondering how
pamela is doing
the support @ neurotalk
is a blessing
hope you experience the same
stay well my hiccup in the
road came when i found my lump
when that is completed i resume
taking care of my failed acdf and pcdf
both times level 5/6-6/7
cage and plate/screws
still haven't fused
i was wondering about Pamela
wishing you both well

Mark56 02-19-2012 05:25 PM

Adding more prayers and prayers and prayers for Pamela and Paul. May all be well, may all be well, and may all manner of things be well. St. Julian or Nor'ichMark56:grouphug:

Paulb_47 02-21-2012 11:04 AM

Two days.
 
Two days. I'm nervous, frightened, anxious, hopeful, losing patience, and generally confused by all of that. 02/23/12 is my date. Pamela has her surgery the 28th. I won't even be turned on yet! We are going to have a lot of help but this just compounds the fretting. I'm not sure I'll be able to visit her in the hospital and she could have to stay a couple of nights. They are saying one night but holding out the option. With Pamela, it seems we will be working through emotional stuff more than the physical. She is getting help on that front also.

We'll get there but now I want it to be two months from now. It will be nice to have all this behind us.

ginnie 02-21-2012 11:12 AM

Hi Paul
 
I hear you Paul. You are not alone, and your wife is right here with us too. I know you are frightened by all of it. This is hard to endure for both of you. I wish time would be behind this issue too. Nobody wants to go through these things. It is hard. I screamed, cried, and genuinely went nuts before my surgery. This site helped me to calm down a bit. I did get through it, and so will the both of you. We will be right here to talk to you anytime. You can call me at home if you need to. I am stuck in a chair because of my walking issues, but I can always listen. Try to bring peace into your soul. Many good folks are not praying for you. All of us are right this minute. Give each other a hug, give each other comfort. We are hugging you through space and time. We are composed of star dust, energy, and that is reaching out to you. ginnie


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