NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)
-   -   Stimulator moved?? (https://www.neurotalk.org/scs-and-pain-pumps/165714-stimulator-moved.html)

lynn1667 03-06-2012 08:56 AM

Thanks for the pep talk
 
Quote:

Originally Posted by Mark56 (Post 858176)
Though doc may attempt to chide, if the unit has moved, the cause is irrelevant as it could just as easily have been an ineffective creation of the pocket for its containment in your body and ineffective securing of the unit in the body.

Relevance is whether it has moved. A moved unit is a moved unit. If it, having moved, results in questionable operation, recharging, or program accessibility, doctor has a duty to inquire. You are the patient, and doctor operates under a duty of professional care so take no guff. Press the issue if you are concerned.

Give accurate information regarding your activities and take along a corroborator, such as spouse or good friend. Doc will perceive the scenario as best possible according to skill level and care, then hopefully you will receive treatment as required.

I may seem cranky, but trepidation when it comes to whether doc gives a %!#$ is beyond the pale. They must treat issues presented not hold judgment whether something is amiss, for they may just as easily be the cause. So, worry not, and go be seen for your need. Head held high. Expecting the best of care because you are the deserving patient!

How's that for a locker room spirit call?
Mark56 OO-AH!!:grouphug:

This makes me want to go out and kick some butt!! Thanks for the pep talk. This puts a smile to my face :) My husband is going with and he is not a happy camper about this situation. Anyway I will get back to everyone after I see the doctor. Shall be interesting ~~thanks for the support that one needs :grouphug:

fionab 03-06-2012 11:46 AM

Great that hubby is going with. Doctors seem to take me more seriously when my husband goes with. Bummer if the lead has moved but that may well be the answer to the unexplained pain you've been having. I would hope that moving the lead back to where it should be won't be as big a surgery as the original one:confused: Praying you get some answers and some RELIEF:hug::hug:

Mark56 03-06-2012 10:27 PM

Lest they be unnamed
 
Our wives make wondrous advocates for the hubby as mine so assuredly has! How blessed am I!

Mark56:)

lynn1667 03-07-2012 08:50 AM

I agree Mark
 
Mark I couldn't have said it any better!! Except for in my case my hubby :wink: My husband has been there for all of my surgeries--I think about 10 in the last 12 years. I think it is harder on him than me. He vaccums, does the dishes, shops and does the laundry--even when I'm not laid up. And my kids help me too, so I am very lucky. Ok enough bragging.
So 3 days until I see the doctor--can't wait!!! I haven't felt good since the surgery. Has anyone ever felt nausea everyday after the stimulator was implanted? Every day my stomach hurts and I feel nauseas. Since the surgery (Jan 3) I have lost 9 pounds. I really don't need to lose any weight--maybe at that most 3-4. Lost weight without trying. I wonder if my body is rejecting the stimulator and that is why it moved?? Just wondering.........
Thanks for listening :D
:grouphug: --Love the group hugs!!!

Mark56 03-07-2012 10:10 AM

More of them coming
 
Dear Lynn-

29 surgeries, the most recent, my stim implant June 2010, NEVER any post surgical nausea..... ever, even when they expected it after multiple deep back surgeries like discectomy/laminectomy/fusion. Doc has got to know of tis and help you cope, and I pray, OH, and so grateful your husband is so very supportive as is my Cleo.

As Karen and Sinead so often write, XXXXXXXXX
and also a healthy dose of :grouphug::grouphug::grouphug::grouphug::grouphug:
We who care for you here in Colorado,
Mark56 and Cleo:hug::hug:

Nanc 03-07-2012 10:37 AM

Quote:

Originally Posted by lynn1667 (Post 858784)
Mark I couldn't have said it any better!! Except for in my case my hubby :wink: My husband has been there for all of my surgeries--I think about 10 in the last 12 years. I think it is harder on him than me. He vaccums, does the dishes, shops and does the laundry--even when I'm not laid up. And my kids help me too, so I am very lucky. Ok enough bragging.
So 3 days until I see the doctor--can't wait!!! I haven't felt good since the surgery. Has anyone ever felt nausea everyday after the stimulator was implanted? Every day my stomach hurts and I feel nauseas. Since the surgery (Jan 3) I have lost 9 pounds. I really don't need to lose any weight--maybe at that most 3-4. Lost weight without trying. I wonder if my body is rejecting the stimulator and that is why it moved?? Just wondering.........
Thanks for listening :D
:grouphug: --Love the group hugs!!!

Hi Lynn!
I am with you, my husband has been wonderful with all that I have been through, which is so important to have that kind of support. I do not know where I'd be without mine :D

Question - does your stimulator stimulate your abdomen, or close to it? One of the programs on my thoracic one was set to stimulate a little too high and it really made me nauseous. They did that one program a little higher to cover my whole hip area. I had to stop using that one!

Good luck at the doctor!!
Nanc
:grouphug:

lynn1667 03-09-2012 08:39 AM

Hi Nanc
 
Quote:

Originally Posted by Nanc (Post 858820)
Hi Lynn!
I am with you, my husband has been wonderful with all that I have been through, which is so important to have that kind of support. I do not know where I'd be without mine :D

Question - does your stimulator stimulate your abdomen, or close to it? One of the programs on my thoracic one was set to stimulate a little too high and it really made me nauseous. They did that one program a little higher to cover my whole hip area. I had to stop using that one!

Good luck at the doctor!!
Nanc
:grouphug:

The stimulator is for the sciatic and the butt area and only for the right leg. The implant is in the thoracic area. They had it working at one point where I was getting some relief. But like everyone else I had to keep going and getting tweeked. The last time I went in and they couldn't get it to the area that I needed that is when we discovered that it moved. I still have the nausea feeling and the stimulator has been turned off for 2 weeks. The doctor's office called yesterday and changed my appointment for Monday. He had some kind of surgery this morning. :( Now I'm going to be shoved in with everyone else for Monday and probably have a 3 hour wait--you know how much I love to wait!!! NOT!!!
Anyway everyone have a great weekend and can't wait until Monday :)
:grouphug:

Nanc 03-09-2012 11:06 AM

Quote:

Originally Posted by lynn1667 (Post 859371)
The stimulator is for the sciatic and the butt area and only for the right leg. The implant is in the thoracic area. They had it working at one point where I was getting some relief. But like everyone else I had to keep going and getting tweeked. The last time I went in and they couldn't get it to the area that I needed that is when we discovered that it moved. I still have the nausea feeling and the stimulator has been turned off for 2 weeks. The doctor's office called yesterday and changed my appointment for Monday. He had some kind of surgery this morning. :( Now I'm going to be shoved in with everyone else for Monday and probably have a 3 hour wait--you know how much I love to wait!!! NOT!!!
Anyway everyone have a great weekend and can't wait until Monday :)
:grouphug:

Well, that's a bummer!! I hate when they have to change appointments around like that. Hope it is not too bad on you!!

My thoracic stim was really for the butt area and down my legs, they did that higher program to make sure they got it all since I started hurting a little higher...it was too high. I too had to go back for tweaking quite a bit, but they can't do much more with my thoracic one since I have extra lower back pain/pressure when I turn it up :( My cervical stim has been good for a while now!

Good luck and hope you have a great weekend too!
Nanc
:hug:


All times are GMT -5. The time now is 09:56 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.