[melly27]

Hi everyone i was wondering if any of you have the new generation of neurostimulators made by Medtronic? I have the new Restore Sensor with exclusive AdaptiveStim technology!

How it works

The choice of continuous motion

RestoreSensor™’s exclusive AdaptiveStim™ technology listens and learns from the individual patient’s stimulation needs, then responds by automatically adapting settings each time the patient changes position. A recording memory mode remembers these changes for the future. The result for patients is a therapy which integrates more fully into daily life and movement.

I had it implanted on the 5th Dec 2011 and this week have been to see the Reps to have adjustments made for various positions ie walking, standing, sitting, lying on back, right side, left side etc, the machine changes on its own when i go from standing to lying, if on one day the pain is worse i can manually change my settings and the machine will remember that setting very clever stuff They only problem im having is that everytime i bend or reach for something the neurostimulator turns off for about 60 seconds until i resume the position i was in prior, ive phone the Reps and i need to go back this week for some more tweeking its a Transmission setting that needs to be reset.

For me its early days the day of surgery i only had one setting done as i was very sick and groggy! My next appointment wasn't until the 23rd Jan (on arrival the reps had not turned up) therefore i was sent away with a promise i would be seen the end of that week. I went back on the 27th where i finally meet 2 new Reps who by the way were fantastic (i was beginning to feel disappointed id had my new friend for nearly 8weeks with one setting which was giving me coverage in the wrong area so hadnt used it much) But once the Reps got to work and re-programmed me ..... Happy Days!!! I havent turned it off since, like i said earlier its a lil frustrating that everytime i bend or stretch it turns off but thats going to get sorted too, So i am excited to see how much coverage and relief i get over the next few weeks, the Reps have said it can take a few if not more attemps to get all the settings right for your needs!

If any of you wonderful people have this type of Stimulator id love to hear how you are getting on with it!!!!

Just to recap i suffer from Lower Back Pain, Abdominal, Pelvic, Kidney and Bladder Pain so i need coverage around my trunk , my paddle leads have be placed at T7 of my spine.

Hugh Gentle to hugs to you all Love Melly x

[Sophie_]

Hi Melly,

It's good to hear that your Medtronic implant is working well for you and you are and seem happy with it. I had my Medtronic inplanted December 2009. It worked very well for the first 5 months and then it just stopped, I had it revised and no luck, I had injections and no luck so in the end my Comsultant decided to take it out... At the moment I have nothing/nada and the pain isn't good. It varies from rotten to unbearable and I can't do anything until the pain subsides.
My left leg is hopping with pain. It throbes, it spasms and I feel the need to drag my leg around, I've even been to my Consultant and he can't give me anymore medication because of all the meds I'm taking.

So really, really I hope your Stim works better than mine. Would you let me know how you get on with it.

Take care and the very best of luck

Sinéad xx

[Mark56]

I am beating large tympani tunes for maximum attention on the whole idea of involving the patient personally in the programming phase of permanent implants. Heather aka Coral Toe was allowed to program her own unit recently and she, like I , finds herself thrilled with the results.

A new poster on our forum, Paul aka DY something something, is a manufacturer employee, so I have done my level best to cause his ears to burn or his eyes to water as we take the "let the patient drive" mantra to new heights of attention. More patient action at the controls in programming sessions is our goal. Endless tweak sessions which are games of chance at best impress me not at all. If I now sound wholly jaded, then alongside my pain management specialist I am as jaded as they come. We feel as a duo patient needs would better be served by patient controlling the program sessions......

So Melly, I am thrilled for you some relief has been attained!! Additionally, I wonder whether your needs would be better met with attention to your fingers dancing on the computer keyboard in a "tweak" session. I rant, rave, and soapbox all I can anymore seeking a better implant outcome for ALL!!!

Sophie- you dear heart, I am continuing to pray for your solution-
Mark56[one for each of ya]

[Rrae]

Thanks for sharing this Melly! Good stuff!
I've heard that they were coming out with memory features (maybe YOU were the one I heard it from in a pryor post or something )

This is great! You are our first living testimony of having this new piece of technology. I hope you get tweaked to perfection and that this new little device can help get your quality of life back!
How very exciting this is to learn about!

Rae
Me too, Sinead I've been thinkin of you and praying for your situation to improve sooner than not. I continue to pin my hopes on the fact that something just HAS to be right around the corner! This just can't go on.

[pooh_ac]

This sounds wonderful! I have an older Medtronic unit, installed this last one in 2006 so will soon be hitting EOL with my battery Wanting more info as I would prefer not to have my leads removed and new ones placed when I do hit EOL! HOWEVER I believe that Mark is right about letting us "drive" the settings.[/I]
zzzzzzzz

[bcyak]

Congrats on the great experience with your SCS system. I hope the reps are able to figure out a way around the bending issues you are having.

The adaptive technology they have developed is a great step forward for the patient experience. Not having to manually switch between multiple programs must be very convenient.

I wish you the best in your pain coverage moving forward.

[Mark56]

There you are Brent! Hope you are well.

Mark56

[ElizaJane23]

Hi Melly - please do keep us posted on how it's going. Always like to hear what may be possible in the future. Even those of us with stimulators already implanted could change manufacturers when our battery needs replacing. Thanks Melly!

[lynn1667]

Hi Melly,
I just had the surgery in January with Medronic and the new battery. My doctor said that this would be a great feature for me because of the activities that I still tried to do before surgery. They just "released" the battery last week and WOW technology today. That batteries changes frequency just when I stand, lay down, or sit. Still need to go in and get tweeked again (the rep made a comment that I'm married to them for life). I need it to be in a more concentrated area from the butt check to the knee and they seem to hit the knee area to strong. I have had multiple back and neck surgeries and the pain would come back. The stimulator was implanted in the T4-T7 area. I guess after the surgery pain goes away we should feel better. Anyway glad that you are on the road to recovery. Hope you get the rep to tweek you so that you start to feel more relief. I just love that I found this site. We know and feel each other's pain and everyone is willing to help!!
SO ONE BIG Keep on healing!!!

[ElizaH]

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I am thankful to have found this. I have the AdaptiveStim and I don't have positional problems this time, but I had terrible ones with my last stim. The leads are ever-moving until they settle into place with the scar tissue which can be a few months, but it will happen The AdaptiveStim had been awesome for me, amazing relief compared to the other one, I havent had positional problems with it so far, but I did have another one!... BIG TIME!!

I had a Medtronic SCS implanted in 7/09 and had a lot of the typical shocking issues with movement and had the leads move on me so I had a paddle lead and the AdaptiveStim implanted on 1/5 of this year- same as you! I believe my rep said that i was the 2nd in NYC. which made me slightly** uncomfortable but pretty excited to have it!

About a week and a half ago I was sitting down (not moving a muscle) and the thing cranked itself up on its own and began pretty much electrocuting me on its own will. It would do this on and off as it pleased at incredibly high levels and sometimes would just not turn itself down, clearly I began carrying my remote around in my hand, but I had to meet with Medtronic to turn the AdaptiveStim feature off for now and revert back to the standard settings to give my leg and brain a break. Since then I have been in a pretty large amount of pain and have been experiencing a few strange neurological side effects (these are hard to completely blame on this as I injured my RSD leg the next day,what luck! but i was very uncomfortable up until then)
Has anybody heard of this??
Positive Side of this SCS: I had tremendous relief up until this incident.

I hope you are enjoying it better by now!
Best,
Eliza