NeuroTalk Support Groups - Hey Mark, how are you doing?

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Mark: Just a thought...

My best friend has suffered with MS for many years and with no insurance has had to deal with it by herself and with God's guidance. She has much nerve issues and has found that certain foods are triggers for her. She does a lot of "let's try this food and see how I do" and she's come to discover recently that foods (vegs.?) from the nightshade family cause her to have a bad flare up of nerve pain.

Maybe starting to pay attention to foods, ( ie, elimination diet), may hold some pain relief? She says that at times she can eat certain foods and no problem...other times, major nerve pain. Just a thought. So sorry to hear you're dealing with more stuff :hug::hug:

I'm so sorry to hear about the cont struggles and pain you are having. I'm happy to hear it wasn't bone cancer. It so often seems like we all experience a domino effect with all of our issues. One thing always leads to another. I have a friend who had gout and I know it is a struggle for him when he has a flare up. I hope your pain is only a flare up and that you receive relief soon. If he has any tips for you I will pass them along.

Hang in there!

Quote:

Originally Posted by CRPSjames (Post 871818)

Hi Mark,

I am so shocked that you have been diagnosed with a hereditary disease on top of all of you other ailments. I myself was screened for Radicular Neuropathy since I have an uncle who had the same symptoms as me, also later diagnosed with CRPS. That certainly explains your numbness of the feet. This may also explain the severe condition of your sister. Very good that you have such a thorough diagnostician though.

Wonderful news that you do not have bone cancer. I was so glad that you did not have a spread of your CRPS to your legs as you had feared. At least your left arm is unaffected.

A few dumb questions:

If your bad right arm has carpel tunnel, I am curious, where did your CRPS originate?

Another dumb question but is there no hope for physical therapy keeping what use you have of you bad arm? I only ask this because when I had a spread of CRPS to my wrist atrophy set in so fast that it became useless.

Can you reprogram your stim to get the Radicular Neuropathy and Gout in your legs and feet?

Are there any meds that work for Radicular Neuropathy?

Getting properly diagnosed a blessing? Yes. Now you know the enemy and with persistence and prayer you will develop a roadmap to manage this and continue your full life!

Hi Mark,

I can hardly believe a genetic disease in the mix. At least you have a diagnosis now.

I have one question to add to the list.

Have you considered speech recognition software to make you job easier. Not suggesting in any way that you give up on that arm, just a thought to help you at work or in any of your other written work.

Better days are ahead for you!!!!!

Yup, I am blessed, and Cleo shouted Hallelujah when doc told us what was going on, for we can handle these things....

He ordered a specific seven step blood screen for Gout to confirm, and specifically help him either in caring for me, AS HE MOST ASSUREDLY DOES- A SPECIAL THANK YOU TO MY DOC WHO IS A BLESSING, or to refer me to a rheumatologist to have things done, as in drawing fluid from a knee to determine the crystals in the fluid.

Watching diet, for nightshade foods are problematic as is red meat or organ meat [oh, darn, I cannot give up liver, because I already hate the stuff].

Dropping weight and exercising on my mountain bike will assuredly help.

Watching for helpful hints here from my blessings, you my friends who care, will help.

Yeah, acknowledging a heriditary part of this and taking it calmly will help.

DRAGON software will help. In fact, my specialist who administered the EMG himself is arm challenged, for he has a left arm which did not fully develop. I understand this well, for in our family, we have a gymnast who won many and stunning awards competing as a high school gymnast along all other young ladies, even so, still winning with her deliberate and well practiced routines. So my specialist said typing is a challenge for him, and he has used DRAGON for ten years to help in his practice and as a professor at University of Colorado Med School focusing on neurological issues. All we who have challenges CAN meet them head on and see an opening tunnel in the closing near distance, for in it there is a better life revealed.

Then receiving care and prayers from you, my friends,
Thus I am blessed,
Thus we together will move forward,
Thus God will show us blessing after blessing after blessing [Amen?],
Praying for you all,
Mark56:grouphug:

Right there with you on the liver

and, for me, you can add in "sourkrout" :vomit2:

(Have always wanted to use this lil' cartoon guy but never had a chance till now...thanks, Mark:D)

How about this little guy --->> :picknose: ...... that's what I think about artichokes :D

You TWO Make me LAUGH!!

And the bestest thing about laughter is that it does not cause pain while it is a true joy to experience. So, let's away with :vomit2::picknose::Deliberate::deadhorsebeat: and any other funneh stuff [like.... dare I?...... well, you know, vapors? Oh, there is no icon....:laugh::ROTFLMAO::Thats-Funneh::Crazy 2:].

Cheers! We should have a liver, sauerkraut, pick nose disgusting stiff kind of party...... now that would bring out the funny bone!!!! I can already feel Joan cringing from miles away!

:D:D:D:grouphug:
Mark56

THIS is exactly what has been missing lately! We haven't been playing with the smilies!
:holysheep: how could we let this happen? :Red eyes::boy(sad)::paperbag: oh my Lord! :Slip:
this font is very irritating innit? :eek:
Heaven's to mergatroid this is even WORSE :eek::eek:
..... and this pee green REALLY makes me want to :vomit2::icon_eek:
....I wonder if there's an idiot like me on every forum?? :lookaround:
SO, how many people have I irritated SO far? :Poke:

Ok, I've used my quota limit on the cartoons.
I'll go take my medication now. :cool:

Was just reading one of your posts to Kelly, I believe, and you said your right arm was not only becoming useless to use but also painful. I know you may not want to even hear this right now, but have you considered a cervical SCS like I have? They could do a lead for just the right arm, probably. My cervical SCS gives coverage for the hands and arms so may be good coverage for your pain. Just a thought...

Hey, that means you'd have "twins" like me :D

What a wonderful thought, Fiona.....

Doc has not spoken of it, and the specialist who did the EMG let me know my right arm nerves are going away...... devervating...... dying, then suggested in such simple grace and consolation [as he is one who was born with a left arm defect which ever prevented his ease of typing] gave thought a dictation software will become beneficial to me. I feel he was giving me the straight story, as this simple maneuver is SO painful, and my strength is all but gone. No grip. Gives me to wonder what will that be like as it may come. Then, I thank God I have a fully functional left arm which is strong and good.... I am blessed.

Doc said twins are not in the cards for me stim wise, and I can accept that, as I trust these folks with my being, for they have ministered unto me to bring me back from that brink in 2010.

Agape,
Mark56:hug:z