SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 06-15-2012, 02:15 PM #31
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Heart Mark,

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Originally Posted by Mark56 View Post
Tomorrow!! See my pain management specialist to learn What was the discovery from the surgery two weeks ago today, then How he has in his mind it can be treated, because two weeks ago he told me the problem in my C7 space was definite, viewed absolutely, and treatable.

I am excited to learn. I want to leave this pain of the right arm behind. I thank God for helping us to this point, and look every forward to the blessing of the means to address this debilitating pain..... because Ger, I do not desire at all to be seen as easy pickins by the deceiver. Such a path I depend on faith in the Father, the Son, the Spirit, and the blessing of she who bore Him to forever close such a path to me. I am God's.

Praying,
on knees,
Mark56


I depend on my Faith in the Holy Trinity and to Mother Mary to close this path for me as well. I know only too well how "he" has tempted me; deceiving me how easy it would be to never feel pain and suffering again. We are all being tested; even the "devil" tested Jesus on the mountain.

I pray daily God will guard and keep safe all those suffering from despair, despondency, depression and hopelesness.

Also, Praying your appointment today will bring you good news and the beginning of treatment for this awful pain your arm is causing you.



Gerry

Last edited by ger715; 06-15-2012 at 02:42 PM.
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Old 06-16-2012, 07:52 AM #32
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Originally Posted by ger715 View Post
I depend on my Faith in the Holy Trinity and to Mother Mary to close this path for me as well. I know only too well how "he" has tempted me; deceiving me how easy it would be to never feel pain and suffering again. We are all being tested; even the "devil" tested Jesus on the mountain.

I pray daily God will guard and keep safe all those suffering from despair, despondency, depression and hopelesness.

Also, Praying your appointment today will bring you good news and the beginning of treatment for this awful pain your arm is causing you.



Gerry
Being lifted up gently before those who bring us JOY, LIFE ETERNAL, LOVE BEYOND MEASURE is my means to survival these many years. When one inquires "How have you made it through all of this? I smile, and reply, well, I am blessed. Have you not said you pray for me?" The mutually shared joy at recognition prayer is well worth the while leaves each of us KNOWING living God beyond the church doors and into daily life is vital to the ongoing stream of life in the BLESSED LANE. I rather like living in the Blessed Lane rather than the Fast Lane. Life this lived is Far More the Worthwhile....... and GER, it is so lovely a thought pondering you and your husband standing before the painting sharing moments of peace and prayer, reaching out for one another and the HOST for whom you pray. Humbled am I to be thus counted.

Gifting your prayers to me along with ALL of the many coming by way of many more found fruition in yesterday's Doc appointment. Sure, the night before I had, as Cleo described it to Doc, suffered pain of the arm at a 20 on the 10 scale. Pain is so subjective, that is all by which Docs have to learn how the pain report may be. That night before, I had to increase meds, including relaxation meds to be able to drift to sleep so the arms of Christ could receive me in rest to salve my wound, calm my crying.

Next week according to Doc's plan, an early week cervical spine CT scan to zero in specifically on the area to treat, then meet Thursday to set the course for remediation through surgery we believe. Treatment is in sight.

How glad am I and blessed to have my Boston Scientific Precision Plus SCS to handle all of the lower body pain, else, with this arm I should have gone purley mad by now. So blessed am I, and to have my dear Cleo alongside to hold me as I sobbed along with our daughter. I felt so bad my sobs made them cry as well. Even so, love poured over me as a wash meant to convey care and hope for a brighter future beyond this, hopefully, last obstacle on the near horizon of that undulating road we know as life spiced with pain.

Oh My God, how I feel so blessed,
Mark56
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Old 06-16-2012, 04:08 PM #33
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Unhappy Tears.....

Mark, it truly saddens me to know that you were in such a state the other night. I am so sorry.
Your most precious women were there for you, sharing in your tears.
Your faith remains strong and you continue to confess your blessings, which keeps clear the channel between you and God's healing touch.
He will wipe away those tears. Your day will come via any means necessary. If your healing comes with surgery, then so be it, but please God let it come SOON.

May your Father's Day be Blessed to the Fullest measure!

Rae
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Old 06-17-2012, 12:40 AM #34
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Default Praying for you, my friend...

Oh Mark, I'm so sorry that the pain has been off the charts for you lately! It's hard to stay strong when your body is rebelling against all your positive thinking, hope, and desire to just be able to function reasonably well. Praise the Lord for your loving family there, holding you through the agony....I'm sure that you have been the strong one there for them so many times, and they are more than glad to be able to just hold you through this rough time. Lately I've made a list of those here amongst us and their respective prayer needs, and bringing each to the throne of God in prayer. You are certainly on the list! I don't know if prayer always changes "things" but I know that it changes "people". If nothing else, it changes the way we perceive our situations, and I also believe that prayer unleashes the grace of God in our lives, as we exercise our faith by believing that He is in control and trusting Him for the outcome. There's not much else I can do, but I can always pray, and you can be sure that I am praying for you (and for each of us) daily.

Gentle hugs,
Jan
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Old 06-17-2012, 02:31 AM #35
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Heart God Changes

Thus it is so Holy a moment to witness when God brings change in a person. I, too, believe this is penultimate JOY!

Doc placed me on a stiff course of Decadron, then we agreed mutually I should take Vicodin, a mild approach to pain management until, AND ONLY UNTIL, Doc Sacha can bring the plan for relief to fruition after our consult next Thursday. He has arranged a CT Cervical Spine for early in the week to get this rolling, as neither he nor I wish to see a permanent nerve injury in this right arm.

Until then, life is more manageable with both the strong steroid and pain med in the system. We will work to find God's answer, and humbly take His presence as a JOY in our lives.

Stim still a Big Wow in the lower half of the body, and we are fast nearing my two year anniversary of its implant, 30 June!! We will have to gather at Pooh's for one great BBQ!!!!

Thank you to all for many prayers, and I am so glad to be receiving them!!
Humbly grateful,
Mark56
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Old 06-24-2012, 02:52 PM #36
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Quote:
Originally Posted by Mark56 View Post
Thus it is so Holy a moment to witness when God brings change in a person. I, too, believe this is penultimate JOY!

Doc placed me on a stiff course of Decadron, then we agreed mutually I should take Vicodin, a mild approach to pain management until, AND ONLY UNTIL, Doc Sacha can bring the plan for relief to fruition after our consult next Thursday. He has arranged a CT Cervical Spine for early in the week to get this rolling, as neither he nor I wish to see a permanent nerve injury in this right arm.

Until then, life is more manageable with both the strong steroid and pain med in the system. We will work to find God's answer, and humbly take His presence as a JOY in our lives.

Stim still a Big Wow in the lower half of the body, and we are fast nearing my two year anniversary of its implant, 30 June!! We will have to gather at Pooh's for one great BBQ!!!!

Thank you to all for many prayers, and I am so glad to be receiving them!!
Humbly grateful,
Mark56
Praying for you Mark!!

Thanks so much to those who responded to my question about SCS "scarring-in"!! I feel more at ease now. I had so many questions regarding spinal cord stimulation but most have been answered in the many pages of this wonderful forum.

Last week was a whirl wind of doctor appointments ending with a long dicussion with my pain management doctor, "Dr. B".

Our dicussion started by his total understanding of my condition and laying out what he and my neurosurgen, "Dr Mac" had tried so far.

Earlier this year, after complaining with pain in my lower extremities, while undergoing injections and planning for radiofrequency for pain in my neck and arms, pain management did a lower exam and sent me for a lumbar mri.

The radiologists sent me right back over to Dr B and Dr Mac to discuss the results.

I was diagnosed with a intradural/Extramedullary Primary schannoma tumor at level L1-L2.

On March 31st, it was removed completely but the tumor had damaged a couple of nerves that it was attached to.

Later, scar tissue formed causing involvment of more nerves. I have back, butt and leg pain, numbness in toes, burning heels, and some bathroom problems.

Pain management tried blocks and sympathetic nerve blocks to no avail. My next step was to do a trial with the spinal cord stimulator.

About a month ago, I underwent a physiological evaluation and waited on approval from our insurance.

Last week began with a call from pain management. I will never forget that happy little voice on the other end that relayed the message.....

Approved!!!!!!!

My response....

Happy Dance!!!!!!!!

My SCS Trial begins tomorrow (Monday) and ends Thursday.

I am hoping that it will work as well as it has for most of you!!!!

Thanks again for this wonderful forum and the people that make it so!!!!!!
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Old 06-24-2012, 05:18 PM #37
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Laugh Dee!

That is WONDERFUL news! And you get to start the trial TOMORROW!!
This is very very exciting! Your doctor's are moving you right along and it sounds like they are working as a good team to see that you have this chance at better pain control.
SCS is notorious for helping lower extremity pain. I am one of the lucky ones who gets the stimulation to reach my lower back also and I hope this will be the case for YOU.

Remember, the MOST important thing about the trial procedure is good communication! Even tho you will be in a twilight daze from the anesthesia, you will still be able to think straight enough to tell him clearly where you feel the stimulation. Don't let them tape you up until they get it where it needs to be. The Rep will work with you as long as it takes.

Also remember that since this is only the trial, the leads won't be sutured in very well. They will put alot of tape on your back. When I got home, I secured the wires with tape to another part of my back in addition to what they had done so that if I caught the wires on something around the house, such as a doorknob (and you probably will! ), it wouldn't pull directly on the point of entrance. Lessens the chance of actually pulling the leads. make sense?

You'll no doubt be sore the first day or two, so don't let that frustrate your trial time, that's to be expected. By day 3 on, you'll enjoy playing with the settings. Be sure to take note of how well the stimulation is covering your original pain - that's what's really important. The settings can always be adjusted and changed.

Get a good nite rest and we'll anxiously be awaiting an update!!

Rae

Last edited by Rrae; 06-24-2012 at 08:31 PM.
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Old 06-24-2012, 06:14 PM #38
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Thanks Rae! I will have to get my hubby to pick up some extra tape! . Thanks again for such good advice!

I shouldn't have started my diet because i sure could use some chocolate right now!!!!!
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Old 06-24-2012, 10:14 PM #39
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Thanks Rae! I will have to get my hubby to pick up some extra tape! . Thanks again for such good advice!

I shouldn't have started my diet because i sure could use some chocolate right now!!!!!

Rae is right on about the communication during the procedure. I believe a good part of my unsuccessful trial was due to my wanting to get the procedure over with. Didn't do enough to really continue until I was sure I had really felt the area most needed was being felt.



Gerry
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Old 06-24-2012, 10:34 PM #40
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Rae is right on about the communication during the procedure. I believe a good part of my unsuccessful trial was due to my wanting to get the procedure over with. Didn't do enough to really continue until I was sure I had really felt the area most needed was being felt.



Gerry
Thanks Gerry!!! I will be sure to take the time needed to get it right!!
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