SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 08-07-2012, 12:19 PM #2
Spiney95 Spiney95 is offline
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Join Date: Feb 2011
Posts: 599
10 yr Member
Spiney95 Spiney95 is offline
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Join Date: Feb 2011
Posts: 599
10 yr Member
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Quote:
Originally Posted by besidemyself View Post
I am new to this site and have an extremely frustrating situation. I was in a boating accident in 2004 that severely damaged the entire upper left side of my torso. After spending 2 weeks in intensive care out of state until I was able to travel back home and 5 weeks out of work, my primary doctor immediately referred me to a pain specialist. The permanant damages I was left with could not be cured by surgery. After exhausting any and all options over the course of years to remedy my pain issues (there are 3 different diagnosis for the permanant damages), I tried the stimulator, and the pain pump was the only other option for me to get the best pain relief. This is my dilemma.

In Oct 2011 I finally had the pain pump implanted. If any of you have the pump, you know the pump requires ongoing forever maintenance from your pain doctor. In January 2012 I discovered the pump had been FDA Class I recalled in June 2011. When I called my the doctor to address this with him, he would no longer take my calls. His "office" denied any knowledge of the recall, but I couldn't get the doctor to take my call or call me back. I was forced to get my primary doctor and the insurance involved and I had to move to another doctor. The experience I had with doctor 2 was devastating to say the least. I became quickly apparent he didn't want me as a patient. I felt desperate. I won't go into details, but after 2 1/2 months with dealing with him, I again had to work with my primary, who again had to refer me to another pain doctor, which is now outside our group. Dr. 3 sits on the California Board and immediately questions why I'm at doctor 3 and I had to explain to him my treatment from Dr. 1 and Dr. 2. He told me that he understood what was going on... Dr. 1 and Dr. 2 were pervious partners. He also said that I have a "ticking timebomb" in my body and must immediately get my pump replaced.

I can't get an attorney to take this on because the pump hasn't injured me "yet"... I feel so desperate.....Has anybody dealt with a situation like this before???
I assume this is a Medtronic pump. The way the FDA wrote up the recall, stated that all devices on the shelf were to be recalled and not inplanted in future patients. The recall did not cover patients that currently had them. They are to be removed and replaced as needed. In other words, the way things stand Medtonic does not have to step up to the plate until you go into crisis. Many ins. companies will not get involved or pay for replacement surgery to prevent a problem that has not and may not happen. Hopefully, that will not happen. Prayers and best wishes.
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