[kat308]

I just had a permanent scs implanted at the end of November. Over the past couple of weeks the scs is making my pain worse and making my hands and feet burn more. Could this be just a programming issue? I see my pm next week and will mention to him and I will be meeting my rep as well. This is all new to me.

[Rrae]

Welcome aboard!

Absolutely let it be known that you are having these issues. More times than not, we need tweaked a few times, as the scar tissue is forming and crowding the leads.
Try not to get discouraged. The healing process can take awhile.
Don't leave the appt until you feel completely satisfied witht the re-programming. That's what those reps are there for.

Please stick around and let us know how it goes!

You'll find lots of support and great feedback here!

Rae

[Hannabananna]

Originally Posted by kat308

I just had a permanent scs implanted at the end of November. Over the past couple of weeks the scs is making my pain worse and making my hands and feet burn more. Could this be just a programming issue? I see my pm next week and will mention to him and I will be meeting my rep as well. This is all new to me.

Hi there and a big welcome to the forum. You found a great place...congrats on your search.
There is so much that goes on the first two weeks and that is also the time of most pain. Yes please mention every little thing to your rep. He is going to print a read out of the SCS activity and that stays in your file for comparisons against future read outs.
As each of us heal differently ...FOR ME..my SCS created more pain also until I was able to rest properly...translate here to "do nothing" which was very hard as I had to work.
It's new...it's scarey...it hurts...they should take an x ray too to look at the position of the SCS and battery...keep us updated...we are all interested and here for advice and comfort.
Johanna*

[yellow]

Hopefully it's just a programming issue- you didn't have this problem during the trial, right? I've noticed that "bumpier" programs can give me a kind of burning cold feeling, not sure if that's what you're experiencing or not. But I hope it's easy to fix whatever the issue is, I know how frustrating it is to not be able to use your SCS much because it's causing more pain

[kat308]

Thank you all for you input. I have been resting and pretty much doing nothing during the past month since my surgery. Too much surgery pain! I unfortunately was unable to test drive this for a trial because when they tried to feed the lead into my cervical area, they could not do so and my surgeon didnt want to force it and cause more damage. So, we had no way of knowing how my body would react to the permanent implant.

I am seeing my rep on Thursday. It is just making my already bad pain worse. My hands burn worse when it is on no matter what the stim level is set at. I am so disappointed. However I am hoping it just needs to be reprogrammed.

Again, I truly appreciate your input.

Hi and welcome.......this does sound like a programming issue. See your rep and do some tweaking and take it from there. It's amazing when it works well!!!!!! Keep us updated how your apt goes

[Mark56]

Goodness,there are times when I am irritable or tired or whathaveyou and the stim will be just one more aggravation I don't want to handle, or can't handle with its "happy buzz" so I turn down the signal to the point where it is just doing its job, but not adding to the cacaphony which is irritation.

Just a thought,
Mark56

Originally Posted by Mark56

Goodness,there are times when I am irritable or tired or whathaveyou and the stim will be just one more aggravation I don't want to handle, or can't handle with its "happy buzz" so I turn down the signal to the point where it is just doing its job, but not adding to the cacaphony which is irritation.

Just a thought,
Mark56

Yes Mark totally agree too. It's the best in the world but can also be the worst if you let it .........but wouldn't be without it either

Happy New Year Mark and to Chloe and family