[Spiney95]

I have a friend with a medical problem that I have been trying to help her with since I got home from the hospital. I spent about four hours on the phone today, moved improperly, sat improperly and let myself get stressed out but the job is done.

The Fibro is raging now. I hate the Fibro monster. He/She is unrelenting and raises it's ugly head at the slightest excuse. When it gets this bad, even the morphine won't touch it. I won't go across the street to the ER for a shot as I refuse to deal with the humiliating and degrading lectures they give concerning not providing pain mgt.

Per history, I am more vulnerable to this degree of "flare" for several months after surgery. The body over reacts to the "violation" it just experienced and the Fibro monster sets up residence until he/she tires and moves on. In the midst of it all, my butt continues to buzz. The Fibro monster can no longer aggravate the neuropathy that is GONE. While my upper body rages, I am at peace from the rib cage on down to my toes. I am blessed.

OK Monster. Bring it on. I am stronger than you and am prepared to wait you out.

Spine

[eva5667faliure]

Originally Posted by Spiney95

I have a friend with a medical problem that I have been trying to help her with since I got home from the hospital. I spent about four hours on the phone today, moved improperly, sat improperly and let myself get stressed out but the job is done.

The Fibro is raging now. I hate the Fibro monster. He/She is unrelenting and raises it's ugly head at the slightest excuse. When it gets this bad, even the morphine won't touch it. I won't go across the street to the ER for a shot as I refuse to deal with the humiliating and degrading lectures they give concerning not providing pain mgt.

Per history, I am more vulnerable to this degree of "flare" for several months after surgery. The body over reacts to the "violation" it just experienced and the Fibro monster sets up residence until he/she tires and moves on. In the midst of it all, my butt continues to buzz. The Fibro monster can no longer aggravate the neuropathy that is GONE. While my upper body rages, I am at peace from the rib cage on down to my toes. I am blessed.

OK Monster. Bring it on. I am stronger than you and am prepared to wait you out.

Spine

that sounds horrible
i was forced in letting out what
we call that monster
i try real hard to keep it out of our lives

God Bles

[Rrae]

I feel your pain and it frustrates me to tears and anger.
I can pay the price dearly the next day for simply sitting in the wrong kind of chair while visiting with a friend....... which is why the social life is for the pits. and I don't go out much. Eventually, they are bound to think I'm either stuck up or 'too busy' to go visit them.

So, again I say BLAST that MONSTER!!

[Spiney95]

Thanks guys. While I am pretty miserable (physically), I am trying to focus on the knowledge that if this had happened two weeks ago, I would be flaring from head to toe. Really. This IS major improvement.

There are no magic bullets, for me anyhow. I have multiple sources of severe pain and current medical tech. can not address them all. This implant sure has pulled a big chunk out of the mix and it is a miracle. I knew I was pushing the envelope and could easily go into a major flare. Sometimes, we just have to do what we have to do then try to suck up the consequences. I'd do it all over again.

Another interesting side note. My bladder function has improved with the scs. I was not totally incontinent but had "issues". Due to surgery related nerve damage, I have reduced sensation in the saddle region. I never experience bladder urgency. If I wasn't careful I would not empty completely and was subject to frequent UTIs. Thankfully, I do feel pressure when the bladder fills and can get to the toilett before I would spontaneously empty. I was real close to having to cath. Now, the number of times I "go" per day is appropriate with my fluid intake. I only wake up, needing to use the bathroom, once per night rather than every 1-2 hours. Now I just need to be certain that I totally empty. I told Pain Man about it and he just smiled. He said it was an infrequent bonus but never mentioned it because he didn't want to get my hopes up on a long shot. He wanted my focus on the successful trial. Life is good.

[Mark56]

OK Gang, we need to pay a visit to Spine in Wherever Indiana.... or is it Kentucky... or maybe Ohio..... oh well, back there somewhere. Thankfully we can transport via NT to pay a visit and to do the Monster Smash [do you remember that song?]

Pain Monster, here we come!!!! Ta da da TA!! Charge!

[oops, wrong one] emonstratio n:

[Spiney95]

I do appreciate each and every one of the troops. Your support has been so important and badly needed. The beauty of these boards is that we can read and reread the info., love and support over and over as needed. That can be a life/mind saver in the middle of the night when our lives seem to become more confusing.

I will let you attack the Monster as I try to behave myself and confine my battles to the spirit realm. In the end, that is where the answer usually is.

I know I am not the only one who has dealt with these issues while living alone. I get so confused as it seems like everything I do violates BLAST in one form or another. It's strange. Now that the neuropathy has been buzzed away and I am recuperating from the procedure rapidly, it all seems to be crashing in on me. NOW I feel exhausted. NOW I am having a difficult time trying to figure out how to do routine tasks. I feel frustation and confusion when all I should be feeling is relief and gratitude.

Thanks for listening. Thanks for being there. You are all so wonderful.

Spine

[Rrae]

Originally Posted by Mark56

[oops, wrong one] emonstratio n:

It's SO good to have you back, Mark!

[ger715]

Originally Posted by Rrae

I feel your pain and it frustrates me to tears and anger.
I can pay the price dearly the next day for simply sitting in the wrong kind of chair while visiting with a friend....... which is why the social life is for the pits. and I don't go out much. Eventually, they are bound to think I'm either stuck up or 'too busy' to go visit them.

So, again I say BLAST that MONSTER!!

I have been dealing with exactly the same situation you posted. Strange when you see it in print as you see a "that's my problem too" moment. I am uncomfortable finding a place to sit; usually a chair with arms helps take some of the pressure off the spine; but eventually you feel like an "odd ball" and find staying home much easier.

Kinda dumpy mood today. The flu has been playing off and on for about 10 days now.


Gerry

[mg neck prob]

I dont know or understand these flare up at all. Since neck surgery in 2010---I have such severe flare ups--- takes my breath away.The last 2 months I been dealing with all kinds of strange symptoms. First it started with dermatsis,,then I still have eye twiching in right eye seen eye dr said it happens--- now both eyes are twiching for over 2 months. Then I had a pain in the pectoral muscle lasted a few days--now im back to right shoulder and serve pain between shoulder blades. Just this morning I have dermatsis back behind right ear a big red patch and can barley type on the computer due to neck and shoulder pain. Also my 4 finger in numb. I have no clue whats going on in this body---it has never been the same since surgery. Im getting anxiety which I never had before and I know its because of the severe pain.

[Mark56]

Originally Posted by ger715

I have been dealing with exactly the same situation you posted. Strange when you see it in print as you see a "that's my problem too" moment. I am uncomfortable finding a place to sit; usually a chair with arms helps take some of the pressure off the spine; but eventually you feel like an "odd ball" and find staying home much easier.

Kinda dumpy mood today. The flu has been playing off and on for about 10 days now.


Gerry

Dear Gerry-
Prayin for ya dealing with that pain and icky flubug.
mark56