[Wibley]

Hi everyone,

So as many of you know I am in the midst of getting my Trial SCS scheduled, actually I have a meeting with my pain Dr tomorrow and that is to get the procedures scheduled. So, he said I needed to see the Psychologist, did that, he said I am "normal". Ok....

My Pain Dr also wanted me to see a Vascular Surgeon, whom I saw yesterday. Had a little quiet hissy fit in the office when after waiting 45 mins past appointment they told me that it might a 2 hour wait, since he is only in this office 1.5 days a week. Oh no, I said nope I will not wait 2 hours, guess what, I was taken into the exam room 15 mins later. Hmmmm

Anyhow, I liked the Dr. He was very cautious with touching my leg and foot and always asked first if he could touch an area, very considerate. The good news is that I do not have arterial or venous anomalies, the blue and purple leg and foot is just due to the CRPS and the nerves constricting blood flow. So that was goos news, however, he then asked if it was ok to check the pulse in my good leg with the same Dopler Machine, I said sure. Well a couple mins later he told me that my "good" leg blood flow is as bad as my "bad" leg blood flow, I just am not feeling any symptoms. OMG, not what I was expecting.
So tomorrow at my pain Dr apointment it will be interesting to hear what he says. I hope this does not derail my going for the SCS.

Has anyone else ever had this happen to them ?

Just once can I get some good news ????

[Rrae]

Well, shucks. I'm sorry to hear that your good leg doesn't have good blood flow....but at least you aren't feeling the symptoms there, so that's good.
The fact remains that your other leg is riddled with CRPS and if your Dr has declared you a good candidate for the SCS, then I would think it would still be a 'go'. Did he indicate in any way that this would pose a problem?
It should be ok, but let's see what your appt tomorrow brings.

Wishing you the best.....

Rae

[Mark56]

Heck, I was told it was gout. I did not like that DX, then far more recently, since my blood work, and I have had SO much, did not show positive for elevated uric acid, was told more reliably I am bilateral peripheral neuropathy in the legs. Can't feel the ground to save my soul. Use a cane for balance. Then there is the swelling of the feet and ankles and discomfort trying to wear shoes so I resort to crocs, and then go barefoot in my office...... Who cares? Better for me....

Bottom line, had this been the stopping point on the road of SCS Trial, I woulda still done the Trial because that nerve pain hurt so AWFUL BAD!!!! I feel blessed now that I have it. So what if I can no longer downhill ski, dance with my spouse, and so forth, I can live better and more tolerably..... AND, the good part is I withdrew from all pain meds and got my career back. So we own our own home again.

Prayin for ys,

A blessing, that,
M56