SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 02-07-2013, 02:15 PM #11
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Thanks so much to all of you, it means a lot I am determined, sometimes to a fault. But I have my spring break from classes not the week immediately after the surgery but the one after, so that'll allow me some more time with recovery without feeling guilty, which is a good thing And I'm trying to line up as many of my hours as I can before the date. The great thing is that working with kids is always such a joy and blessing, so it never truly feels like "work".

It was funny at the end of my appointment Tuesday that my doctor asked me if I still get the pain in my back when I'm laying on my stomach, because I had tested that just the day before for that reason! I thought that before I agree to any surgery, I better make sure I feel it on my stomach or it'll be pointless. Maybe I have been through this a bit too many times if I'm thinking like that...
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Old 02-08-2013, 08:51 PM #12
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I had a revision last month. The battery replaced and leads moved up. Working great, not even a reprogramming yet. Now, if I could get rid of the narcotics without withdrawal issues life would be almost perfect! Anyway, leads higher up is much better!
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Old 02-08-2013, 10:18 PM #13
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Thumbs up Prunes

Yep NJ, prunes. Did I say................. prunes?
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Old 02-09-2013, 10:31 AM #14
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Quote:
Originally Posted by Njbackpain View Post
I had a revision last month. The battery replaced and leads moved up. Working great, not even a reprogramming yet. Now, if I could get rid of the narcotics without withdrawal issues life would be almost perfect! Anyway, leads higher up is much better!
my dear njbackpain
as someone who worked hard for my
sobriety 20 plus years i am in awe
at you all
my decision not to have any more surgery
is a decisions that was long and hard
my doctor in the end recommended
a pain pump and this is how i found
these wonderful true real persons
who are experiencing success with SCS makes
me fell so good to know there are
these stories
still not enough for me
not to many stories about
pain pump and that entails
continuing drugs NO THANKS
my success rate was 75% mechanical
and the hope to be taken off the hard core drugs
i'm on (not so lucly in MY case)
however in your case
i pray for you coming off your meds
i pray your withdrawal symptoms
passes quickly as i am a slave to mine
extremely upset after all my years of
mental clarity i am in a fog by the end
of the day
so with all that said
i hope and pray your tapering
down on the meds you don't suffer
those terrible horrible withdrawal
it be replaced with a good feeling
in your tummy and thru your body
the Lord lift some if not all the pain
in that too
you have been very helpful
in your story
i wish the pros who make these
powerful drugs we are on like myself
the fact is i am a heroin synthetic addict along
in the sense we all understand and
with all the other meds is depressing
and wondered why "they" haven't figured out
the formula to help us in our withdrawals
makes me nuts and because i will have a
long relationship with my pain specialist
does not sit with me well
my surgeries outcome not good
seriously took my life from me
my bliss cooking gone
and so on
my experiences with all the excruciating
test i had to help him with my surgery
was senseless in my outcome
don't ever want to have a disco-gram
or a meylogram or the umteen emg
this lady is done done done
oh and by the way
did i tell you i'm done

God Bless
may he comfort you
as our JESUS CRIST
suffered all forms of
pain not only on a physical
level
a great man

someone who cares
thinking of you as you taper
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Last edited by eva5667faliure; 02-09-2013 at 10:48 AM. Reason: typo
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Old 02-09-2013, 10:33 AM #15
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Quote:
Originally Posted by Njbackpain View Post
I had a revision last month. The battery replaced and leads moved up. Working great, not even a reprogramming yet. Now, if I could get rid of the narcotics without withdrawal issues life would be almost perfect! Anyway, leads higher up is much better!
I'm glad it's going so well for you! It's funny because in my first revision they moved the leads down, and that was the answer, so just the opposite. Now they think moving them up a little (not as high as they were before) might help. Needless to say I'm a little wary about that option actually working. But who knows? Based on everyone's stories here alone we can see just how differently these devices react in different people's bodies. It's really pretty interesting!
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Old 02-09-2013, 11:29 AM #16
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Quote:
Originally Posted by Mark56 View Post
Yep NJ, prunes. Did I say................. prunes?
my friend
is there any thing you can share
or did this go right over me head
ha ha
but seriously
are you serious mark?

that someone who cares


by the way i love prunes
try them after being in the
freezer
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Old 03-05-2013, 10:54 PM #17
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I found out today that I got the pre-approval from insurance for revision/replacement!! I've been having to go back and forth with insurance over procedures that I had in November and December, so I was really worried that that would impact the approval for this surgery. It's such a relief to know everything's a go. Only 9 more days and hopefully I'll have 2 correctly working SCSs again!
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Old 03-05-2013, 11:07 PM #18
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Heart Wondrous

Thus we will pray you fare well in and through all of this from the pre-op physical through the last invoice insurance must pay. May all manner of things be well.
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Old 03-06-2013, 12:03 AM #19
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Nj yours moved up and work great . Mine moved down and is awesome lol. Not a single reprogram here either. The trial for cervical was a success, so I shall have two also!

Can't wait!!


TK

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Old 03-14-2013, 07:14 PM #20
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Well I'm recovering in my hospital bed after what appears to be a successful surgery. They ended up going with the whole new unit after testing out the old one in surgery and there not being any difference. I'm ok with it, though. The recovery is longer but it should save me from more problems in the future because the leads have 16 points vs 8, which gives a whole lot more options for programming. My rep said my doctor's implanted about 15 of these units now.

The new remote is super fancy! I can't believe how different it is from the old Boston Scientific remotes (which I still have for my cervical SCS- so no worry about confusing remotes anymore). It's white and has a color display screen and more buttons as well. I have to figure out how to post a picture to show you all.

So far seems so good with the coverage, but I haven't had it on much yet because I've been having a bad time with nausea, and any stim is just aggravating that. My rep will be back in the morning to give me more programs. I'm in what's called extended recovery, which means not technically admitted but "kept for observation" overnight. So the room is not a traditional hospital room, but I'm at least in a quiet area which should help tonight.
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