Hi Rae......it sure is freaky, the muscle spasms. First they start as a vibration in the back,... As they get stronger, they move around the chest and totally encompass it..................
That's when the shakes start, like shaking chills.........and they vibrate and sometimes jerk down the top of the arms, butt and thighs.
Then,....man oh man, some one turns on the furnace and I am suddenly 105 degrees.................of course, then you sweat, and when the sweat starts to cool.........
bamm! You start getting cold and the spasms get even worse.....it's a nasty cycle.
I have tried Baclofen, Soma, Robaxin, Flexeril, Valium, Amrix, Tranzene and Xanax.................the only one that helps is the Xanax. It takes the edge off. I tried Klonopin too.
What works best is sitting in a hot bath tub or using heat packs with the Xanax.

I do believe it has something to do with the wires stabbing the chest wall...
Hopefully some day it will heal..........you are so right, when you say it takes over your life........
Thanks for being so kind....
Dawn