NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)
-   -   Anyone have side effects from SCS?? (https://www.neurotalk.org/scs-and-pain-pumps/184270-effects-scs.html)

dawngri 02-27-2013 06:27 PM

[QUOTE=Mark56;960320]To "thank" when you scroll down the list of posts to read, you may note a button in the lower right hand corner of the post appearing in the thread window. The button says THAnKS, just click it as it is a hot button, then voila, your name will appear in the post on the lower task line of the post showing thanks.

That is it!:hug:[/QUOTE
YUP, thanks Mark. I was having either a senior moment or a brain fart. One of those days.
dawn:hug:

Nanc 03-03-2013 09:16 PM

Quote:

Originally Posted by dawngri (Post 960171)
NANC............I had severe nausea with the trial, but turned it low and took reglan. I have found reports that it stimulates an area in the sympathetic nervous system that connects to the GI tract. It is rare, but it happens. And it happened to me. But try with the stim low enough to hardly feel it and take some thing for the nausea. Some people use Zofran too. That didn't help me, but it may help you.

After my permanent implant I went home that night and vomited for 12 hours. That migrated my wires and it was down hill from there. It was because of the high stimulation that they do in the OR and Recovery to check to make sure it is covering the areas. If the stim hadn't been that high I may not have vomited.

Of course I was very specific with the anesthesiologist. But they didn't take me seriously..............now I will never know if the SCS would have worked for me. Because my stimulator was stabbing my chest wall and I may have permanent damage.

But YES, you can have nausea, you could be the 1% that gets it.
So sorry, because nausea is nasty.

For RAE and MARK56, I can't says Thanks For This on your posts, my page isn't working correctly...

DAWN G

Hey Dawn, thanks for the info and so sorry that you had such trouble with your SCS. I had the stim on very low and still had issues. I really think it is the cause of my gasto issues. I also started having bladder issues the last couple of weeks. Dr tested me and it isn't infection. I have only turned the stims on once yesterday and almost immediately had to turn them off. The bladder pain...ugh! On top of all this, I started having a lot of pain around my cervical battery, which is located in my front/side (near my ribs).

I know I have said many times that my pain doctor was great, etc, etc...but not so much anymore. Long story, but I am trying out a new doctor later this week. I will discuss all of these problems with him.

Take care,
Nanc
:hug:

Hana 03-05-2014 08:22 AM

[QUOTE=Nanc;958808]Hello all! I was wondering if anyone has had, or heard of, side effects from SCS implants...like gastrointestinal problems, etc?

I have many, many allergies and a gluten intolerance so I avoid all the those types of foods. I am having "issues" and cannot quite figure it out. With the additional shooting pains in my abdomen and head, we think the RSD is spreading. But I have had trouble keeping food in me for the past 2-3 months or so and I have had constant nausea. Not sure if it is the spread or SCS causing the problems.
[QUOTE=Nanc;958808]Hello all! I was wondering if anyone has had, or heard of, side effects from SCS implants...like gastrointestinal problems, etc?

I have many, many allergies and a gluten intolerance so I avoid all the those types of foods. I am having "issues" and cannot quite figure it out. With the additional shooting pains in my abdomen and head, we think the RSD is spreading. But I have had trouble keeping food in me for the past 2-3 months or so and I have had constant nausea. Not sure if it is the spread or SCS causing the problems.

Hi Nanc, been feeling low and slow but wanted to reply here anyway! :hug:

I'm so sorry you are having gastro. problems that are unidentified. I don't have a stim yet, but I've had nausea, vomiting issues for years with my RSD and treatments. Many times it was meds, or extreme shocks to the system...(RSD hyperdrive)) Sometimes it was the meds to stop nausea/vomiting.
In Order for my optimal recovery:
1. Diglyceride licorice{LOL Deglycrrrhizinated} first as I start feeling queasy.
It comes as "RX Vitamins -Chewable Licorice nutritional supplement for the stomach mucosa" Maybe Amazon
2. Aloe Juice.. 2 TBS 2x a day... marvelous for coating the stomach and intestinal lining,ahhhh.
3. Ginger tea(few dollops of fresh ginger boiled) or Tulsi Tummy tea,
I try not to move too much. Calm..Quiet..any respite place to find. and always some music to help the mood. :) If that doesn't work I try
4. Gavison - 1/4 tab up to the full monte
5. Ondansetron= Zofran Rx. 4 mg prn...
6. Carafate Rx only.

Definitely make sure they look at your stomach and GI in addition to care around the stimulator. Ulcers cause all kinds of grief as does gastritis... I try to avoid the prescriptions because they cause other symptoms but we must do what we must.
I am being worked up for some genetic diseases now, after testing positive for MTHFR...not uncommon at all but combined with certain risk factors can cause all types of troubles... now I have GI issues not unlike you. I have gastroparesis, IBS, chemical sensitivity to so so many things... gluten intolerant, dairy allergy ... holy moly. So, I am working some with a ND who cares about all of this... will keep you posted.

Prayers for tummy ease..:hug::circlelove:

Hana

Nanc 03-13-2014 12:05 AM

Quote:

Originally Posted by Hana (Post 1054953)

Hi Nanc, been feeling low and slow but wanted to reply here anyway! :hug:

I'm so sorry you are having gastro. problems that are unidentified. I don't have a stim yet, but I've had nausea, vomiting issues for years with my RSD and treatments. Many times it was meds, or extreme shocks to the system...(RSD hyperdrive)) Sometimes it was the meds to stop nausea/vomiting.
In Order for my optimal recovery:
1. Diglyceride licorice{LOL Deglycrrrhizinated} first as I start feeling queasy.
It comes as "RX Vitamins -Chewable Licorice nutritional supplement for the stomach mucosa" Maybe Amazon
2. Aloe Juice.. 2 TBS 2x a day... marvelous for coating the stomach and intestinal lining,ahhhh.
3. Ginger tea(few dollops of fresh ginger boiled) or Tulsi Tummy tea,
I try not to move too much. Calm..Quiet..any respite place to find. and always some music to help the mood. :) If that doesn't work I try
4. Gavison - 1/4 tab up to the full monte
5. Ondansetron= Zofran Rx. 4 mg prn...
6. Carafate Rx only.

Definitely make sure they look at your stomach and GI in addition to care around the stimulator. Ulcers cause all kinds of grief as does gastritis... I try to avoid the prescriptions because they cause other symptoms but we must do what we must.
I am being worked up for some genetic diseases now, after testing positive for MTHFR...not uncommon at all but combined with certain risk factors can cause all types of troubles... now I have GI issues not unlike you. I have gastroparesis, IBS, chemical sensitivity to so so many things... gluten intolerant, dairy allergy ... holy moly. So, I am working some with a ND who cares about all of this... will keep you posted.

Prayers for tummy ease..:hug::circlelove:

Hana

Hi Hana!
Thanks or your reply. Sorry you are feeling low lately :(

I did have my SCS's removed in January because of some issues I was having with them and the effectiveness went away. Some of those issues I was having went away too. So glad the pain around the battery in my front/side went away. Now I know it was the SCS!

I too have gastroparesis and was diagnosed with IBS. I have had soooo many tests and scans done to my digestive tract...it is crazy. I was recently diagnosed with interstitial cystitis (IC - chronic bladder pain) and that can cause IBS also. Also have pelvic floor dysfunction (PFD)...so that and IC explains a lot of the pain I have been having. Of course I cannot tolerate the meds for IC and PFD, just have to follow a very strict diet, have to avoid a lor of foods that cause bladder pain. Then there is my food allergies and gluten intolerance.

I will look into those tricks and tips you use. I know several of them I cannot do because of IC restrictions and allergies :(

Thanks again!
Nanc
:hug:


All times are GMT -5. The time now is 04:42 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.