[pooh_ac]

I currently have my 3rd SCS and would not be able to cope without it! I takes care of the worst pain so I can function with only a small amount of other pain medications for the most part.

[DebDog]

I agree that the SCS is a lifesaver. I have my second one now. It helps my legs and I couldn't walk without it.


DebDog

[msdilbert2]

Originally Posted by DebDog

I agree that the SCS is a lifesaver. I have my second one now. It helps my legs and I couldn't walk without it.


DebDog

DebDog: just read article on scs and it stated they work best for one leg. Sounds like you get pain relief for both legs (and lower back?) thanks, Pam

[peppermintpatty]

Originally Posted by msdilbert2

DebDog: just read article on scs and it stated they work best for one leg. Sounds like you get pain relief for both legs (and lower back?) thanks, Pam

I'd love to read this article, if you have a link to it.

[davidhm]

I have been suffering from chronic pain for several years and now am at the point where the amount of oxy I require to control the pain is interfering with my life. This situation can only get worse as I get older and my body tolerates more and more stuff. I am also "labeled" as one of "those" who takes oxy for "pain". Even Walgreen's, in my opinion, discourages us "pain addicts" from filling their script in their stores. (I am retired and live in S. Florida where you can find a pain clinic as easily as a pizza parlour.)
So for all of these reasons I chose to explore a SCS and discovered this forum via a Google search. I am greatful for all the information provided. However IMHO the majority of posts are negative and spell out in detail the problems people have had with the SCS, their "reps" what ever they or their role is/are, their surgeons and their devices. At least I now have a list of issues to discuss with my pain person.
But I am left with a deep sense of unease. I can't tell if people who have had SCS implementation would have it again, would recommend to a family member or what the major trade off's are. It's like a virtual group therapy session, where everyone is right and everyone gets a group hug. You can't tell what real and what's not, what's fact and what a wish.
Maybe a disclaimer is in order. Maybe some real data from "poster's" is in order like age, length of time in "pain", kind of insurance, manufacturer, type of pain and location, etc.
The decision is get an SCS is too important and IMHO not helped by "virtual hugs". I don't write this to offend anyone, I'm only looking for a way to make this valuable resource even more so.

[Mark56]

Originally Posted by davidhm

I have been suffering from chronic pain for several years and now am at the point where the amount of oxy I require to control the pain is interfering with my life. This situation can only get worse as I get older and my body tolerates more and more stuff. I am also "labeled" as one of "those" who takes oxy for "pain". Even Walgreen's, in my opinion, discourages us "pain addicts" from filling their script in their stores. (I am retired and live in S. Florida where you can find a pain clinic as easily as a pizza parlour.)
So for all of these reasons I chose to explore a SCS and discovered this forum via a Google search. I am greatful for all the information provided. However IMHO the majority of posts are negative and spell out in detail the problems people have had with the SCS, their "reps" what ever they or their role is/are, their surgeons and their devices. At least I now have a list of issues to discuss with my pain person.
But I am left with a deep sense of unease. I can't tell if people who have had SCS implementation would have it again, would recommend to a family member or what the major trade off's are. It's like a virtual group therapy session, where everyone is right and everyone gets a group hug. You can't tell what real and what's not, what's fact and what a wish.
Maybe a disclaimer is in order. Maybe some real data from "poster's" is in order like age, length of time in "pain", kind of insurance, manufacturer, type of pain and location, etc.
The decision is get an SCS is too important and IMHO not helped by "virtual hugs". I don't write this to offend anyone, I'm only looking for a way to make this valuable resource even more so.

Hello David-

Sorry you haven't apparently knocked into the SCS/Pain Pump Subforum. We have a good many people who have worked through procedures there, both positive and negative. The majority of those among whom I have read of late have been of the more positive bent. A Thread chronicling my adventure through the process of having Boston Scientific Mini Rechargeable SCS is found there. Perhaps you did not give it a gander.

Now as to my age, since you ask, 56, hence my moniker Mark56. Would I recommend the process for consideration by others, not only would I, but I have given information directly to others who have asked. Would I have a family member go through this? Sure. My family can more truly speak to this, but, dear Visitor, you would need to read my thread to pick up on their perspective.

Stick around. We are pretty informative, congenial, raucous [well..... some are], and yearning to help others to try to have information to make better informed decisions for their lives..... yours included, my friend.

Hope to see you around,
Mark56

[Rrae]

You've found a wonderful place!
Feel free to come down to the actual forum where the members are actively sharing info.......
This is at the top of the page in the "Stickie".......

We'd love to help the best we can.....we'll need a bit more info to go on, however. "Chronic Pain" doesn't give us much to go by.

There's aLOT more goin on with these folks than simply cyberhugging , so please feel free to start a thread down below and give us a bit more to go on and we'll give good straightforward feedback.
What type of 'Chronic Pain' do you suffer?

Rae

[charles jenkins]

Had implant procedure of SCS done on 25 Aug after successful trial, currently going thru acute pain from procedure, reading previous post seem like it something a lot of us went thru, and based upon mark56 and Rae it seem like its worth the pain will have my SCS turned on sep 9th, its day five(5) and acute pain get better each day. I had some serious pain day after surgery in stomach area spent day in emergency room, and doc said could not find anything wrong, I think I messed up after surgery I ate too much

Originally Posted by Mark56

Hello David-

Sorry you haven't apparently knocked into the SCS/Pain Pump Subforum. We have a good many people who have worked through procedures there, both positive and negative. The majority of those among whom I have read of late have been of the more positive bent. A Thread chronicling my adventure through the process of having Boston Scientific Mini Rechargeable SCS is found there. Perhaps you did not give it a gander.

Now as to my age, since you ask, 56, hence my moniker Mark56. Would I recommend the process for consideration by others, not only would I, but I have given information directly to others who have asked. Would I have a family member go through this? Sure. My family can more truly speak to this, but, dear Visitor, you would need to read my thread to pick up on their perspective.

Stick around. We are pretty informative, congenial, raucous [well..... some are], and yearning to help others to try to have information to make better informed decisions for their lives..... yours included, my friend.

Hope to see you around,
Mark56

[anlyst2010]

Originally Posted by davidhm

I have been suffering from chronic pain for several years and now am at the point where the amount of oxy I require to control the pain is interfering with my life. This situation can only get worse as I get older and my body tolerates more and more stuff. I am also "labeled" as one of "those" who takes oxy for "pain". Even Walgreen's, in my opinion, discourages us "pain addicts" from filling their script in their stores. (I am retired and live in S. Florida where you can find a pain clinic as easily as a pizza parlour.)
So for all of these reasons I chose to explore a SCS and discovered this forum via a Google search. I am greatful for all the information provided. However IMHO the majority of posts are negative and spell out in detail the problems people have had with the SCS, their "reps" what ever they or their role is/are, their surgeons and their devices. At least I now have a list of issues to discuss with my pain person.

But I am left with a deep sense of unease. I can't tell if people who have had SCS implementation would have it again, would recommend to a family member or what the major trade off's are. It's like a virtual group therapy session, where everyone is right and everyone gets a group hug. You can't tell what real and what's not, what's fact and what a wish.
Maybe a disclaimer is in order. Maybe some real data from "poster's" is in order like age, length of time in "pain", kind of insurance, manufacturer, type of pain and location, etc.
The decision is get an SCS is too important and IMHO not helped by "virtual hugs". I don't write this to offend anyone, I'm only looking for a way to make this valuable resource even more so.

Hello,
I am 33 years old and have the medtronic myStim implant. I have had chronic pain since I was 13 (I have juvenile disc degeneration disease, scoliosis and osteoarthritis) and have several epidurals (over 20) and back surgery in 2004. I have pain down both my legs and hips and lower back and I was on MS Contin and Endocet. The implant has taken away about 90% of the pain in my right leg/hip/back and about 70% in my left side. I am thrilled and I have recommended it to several people. This has been a lifesaver because I feel like I can live my life again. Go through the one week trial, see if you like it. If you don't you can have it removed and you do not have to get the permanent one placed. Good luck!

[mimimimi]

I HAVE QUESTION HOW MUCH THOSE HELP WITH CSF LEAK??????????
I HAVEVE ALSO BACK PAIN BUT CSF LEAK IS CONCERNING ME BECAUSE HEADACHE IS POSITIONAL AND WOULD THIS HELP?

CATHETER IS NEAR SPINE, I THINK.
PLEASE ANSWER TO **
thanx