SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 09-06-2013, 08:06 AM #21
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Now 6 weeks out, no pain, can bend, twist with no pain at all. Just took longer than I had anticipated.
Battery is doing well, new unit adjusts when I lay down so no more shocking.
Lets hope this battery lasts 5+ yrs like the last one.

German Shepherd Man.
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Old 09-06-2013, 05:31 PM #22
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Laugh Yay!

Thank you so much for this update!

I am SO very happy to hear that everything is as it should be and that your unit is auto-adjust. How wonderfully convenient.

I am very appreciative when an SCS'er comes back with an update. This helps newcomers and others who seek 'real people' feedback - more than you'll ever know!

Rae
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Old 12-14-2013, 06:30 PM #23
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Question Nevro Senza

Quote:
Originally Posted by PerthMum View Post
Hi everyone, I had the HF Nevro senza implanted 11 days ago. I am having a lot of problems with pain at the battery site. Has anyone else had this problem?
Hi Perth mum, I'm from Perth as well and I'm having the senza implanted at the mount hospital on Tuesday December 17. I'm new to this site so apologies up front!

I've suffered on and off with chronic pain since breaking my back as a 16 year old and have had 3 spinal fusions, the last being in a June this year, a double spinal fusion to L4,5 & S1.

My first fusion in 1977 gave me 15 years of good quality and relatively pain free life, but in the early 90's after travelling in the UK it deteriorated rapidly and resulted in me being in a plaster cast for 3 months and in 1994 they did another fusion. From the time it was done I kept saying something is wrong and after 2 years they finally agreed to an X-Ray and found the plates and screws were broken, they were removed in 1996.

All was reasonable until I had a car accident in 2004 (not my fault) and sustained further lower spine injury and significant cervical trauma. Since 2006 I have been having rhyzotomies and epidurals every 6 months or so and in August 2012 after an epidural I had a seizure due to an acute headache (leaking fluid from the dura) and while seizing sustained compression fractures to the thoracic region T3,4,5 & 6 and a stress fracture to S1. I had to give up work as I couldn't sit for long, so in June 2013 they did the double fusion. Post op I had complications and the latest fusion has highlighted I have problems with discs L2 and L3 so I was referred to a new pain mgt specialist and he believed its as good as it's going to get and rather than continue with Rhyzotomies (I think the leaking Dura complication worried him) trialled the Senza. It gave me some relief, well I think it did, but I had a difficult trial with the lead being faulty. Anyway, after this long introduction, I'm wondering how you went with the implant and how you are going to this day? I hope it's gone well?
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Old 12-16-2013, 11:56 AM #24
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Smile Hi Pamela!

Welcome to NT!

Glad you found us! Geeze I'm sorry you've had to go thru all of this.
It looks like PerthMum hasn't posted in awhile, but I hope she will see this and give you some feedback. One thing you can do is use the 'search' feature toward the top right side of the screen. Type in 'nevro senza' and it'll bring up posts from prior discussion on this.

Stick around and let us know how your implant goes tomorrow (when you feel up to it).

It's great to have you!

Rae
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Old 12-16-2013, 04:21 PM #25
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Brand new here but i to have a senza and its working flawlessly so far...hope it continues,its pretty new(in my country) so i dont see much problems being reported....hope everyone is well
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Old 12-18-2013, 06:10 AM #26
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Frown Nevro senza stim implant

Quote:
Originally Posted by Rrae View Post
Welcome to NT!

Glad you found us! Geeze I'm sorry you've had to go thru all of this.
It looks like PerthMum hasn't posted in awhile, but I hope she will see this and give you some feedback. One thing you can do is use the 'search' feature toward the top right side of the screen. Type in 'nevro senza' and it'll bring up posts from prior discussion on this.

Stick around and let us know how your implant goes tomorrow (when you feel up to it).

It's great to have you!

Rae
Hi folks, it's the day after and all did not go to plan. The procedure took well over 2 hours with them struggling to get the leads in. Finally they got one lead in and have put the battery in my right buttock. The rep and my Dr have both said my post procedure pain will be high as they were pulling and pushing on the tissue to get the lead into the epidural cavity. They are not wrong, it's painful!

Anyhow, it looks like now they will refer me to a neurosurgeon here in WA who, apparently is the only person in WA who will perform a laminectomy and then insert a surgical paddle. Of course if the one lead works it won't be necessary but I got the impression they didn't hold much hope. The rep, her manager and my Dr were all in theatre and none of them have had a case like mine before. Just my luck. So, I'm here in hospital now until Friday. Everyone has been great and my Dr and rep fantastic, great empathy and compassion.

I hope this post doesn't deter some people, if you are in constant pain and want your life back, you owe it to yourself to try whatever you can and have faith in your treating practitioners that they will do their very best. I will post again next week with an update on my progress.
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Old 12-19-2013, 08:59 AM #27
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Quote:
Originally Posted by danny82 View Post
Brand new here but i to have a senza and its working flawlessly so far...hope it continues,its pretty new(in my country) so i dont see much problems being reported....hope everyone is well
That is encouraging information, I too am new here, due to have a Nevro Senza implanted in the new year as the trial was quite successful.

I am from the UK and was offered a Senza trial earlier this year due to long term pain issues. Have had many spine operations; all boring stuff like bone grafting, decompression etc. over the last 30 years.

I am not saying that the operations were not successful, they certainly were, each one either getting me off the floor, off crutches or out of a wheelchair, but I am hoping that this SCS will alleviate some of the nerve pain.... fingers crossed.


All the best, Wingy
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Old 12-22-2013, 05:31 PM #28
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Smile Hi Wingy!

Quote:
Originally Posted by Wingy View Post
That is encouraging information, I too am new here, due to have a Nevro Senza implanted in the new year as the trial was quite successful.

I am from the UK and was offered a Senza trial earlier this year due to long term pain issues. Have had many spine operations; all boring stuff like bone grafting, decompression etc. over the last 30 years.

I am not saying that the operations were not successful, they certainly were, each one either getting me off the floor, off crutches or out of a wheelchair, but I am hoping that this SCS will alleviate some of the nerve pain.... fingers crossed.


All the best, Wingy

Welcome to the bunch!

We are hearing more and more of these Stenza's from across the pond! Don't hear of many of them here in the states yet.
We'll be anxious to hear how your procedure goes, so please stick around!
It's great to have you!

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Old 12-22-2013, 05:47 PM #29
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Smile Nevro senza

Senza is still in trial periods in the US, it's been trialled elsewhere in the world and the UK and Australia have embraced it. From what I can gather the high frequency that it operates at means you don't get the parasthesia that you get with other models that operate at a lower frequency, so no buzzing of the nerves at all. I trialled the senza in November and although I had problems with a faulty lead, I felt it gave me relief. They went ahead with the implant and that didn't go to plan, but, even though I only have the one lead in, I am already noticing that the pain I normally suffer from in my left hip which is referred pain from L2 & L3 is reduced. As Dr Smith says, the pain, oh the pain. I wonder what life would be like to wake up without it!! Lost in space! Dr Smith, I really used to enjoy that show, thanks for the good time memory recall lol.
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Old 12-22-2013, 06:04 PM #30
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I only have one lead also, Pam! I did have 2, but I didn't mind the post op and BLAST rules like I should've and one lead came detached and migrated down about 6 inches! This wasn't discovered for over 6 months until finally I demanded an xray because I had been in so much pain - but do you think they believed me? Heck no.
Anyway, once they clearly could see it on the xray, we decided to pull it out and not even replace it because the other lead was doing just fine on it's own.

Oh the pain THE PAIN!

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