SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 08-10-2013, 04:23 PM #1
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Smile Hello and Welcome!

Quote:
Originally Posted by VSC461 View Post
Hi PerthMum,
I had the same unit implanted 5mths ago and am still having issues.I have intermittent burning pain which seems to be related to 'pocket pain' at the battery insertion site.Have tried various things including compounded analgesic creams of varying strengths (Capsaicin,lignocaine and Clonidine) which eased the burning sensation but only whilst I continued to use it ,stimulator reprogramming,increased dosage of gabapentin (only recently increased so can't report on it's effective as yet) and am soon to undergo bilateral blocks in my lower back.I have also been experiencing extreme sensitivity /pain from the actual scar at the battery insertion site so on the same day that the blocks are performed I will be having platelet rich plasma therapy .Fingers crossed that something will help
It's great to have you!
I'm sorry you too are having discomfort at the battery site.
Please let us know how the blocks go.
The platelet therapy - is that where they extract some blood, separate the rich plasma and then re-inject it in and around the incision? I recall my Dr doing this during my implant, if it's the same thing you are talking about. I asked him why he does that and he said it aids in the healing process.

Here's hoping that you will come back with good report and feeling much better!

Rae
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Old 12-14-2013, 06:30 PM #2
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Question Nevro Senza

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Originally Posted by PerthMum View Post
Hi everyone, I had the HF Nevro senza implanted 11 days ago. I am having a lot of problems with pain at the battery site. Has anyone else had this problem?
Hi Perth mum, I'm from Perth as well and I'm having the senza implanted at the mount hospital on Tuesday December 17. I'm new to this site so apologies up front!

I've suffered on and off with chronic pain since breaking my back as a 16 year old and have had 3 spinal fusions, the last being in a June this year, a double spinal fusion to L4,5 & S1.

My first fusion in 1977 gave me 15 years of good quality and relatively pain free life, but in the early 90's after travelling in the UK it deteriorated rapidly and resulted in me being in a plaster cast for 3 months and in 1994 they did another fusion. From the time it was done I kept saying something is wrong and after 2 years they finally agreed to an X-Ray and found the plates and screws were broken, they were removed in 1996.

All was reasonable until I had a car accident in 2004 (not my fault) and sustained further lower spine injury and significant cervical trauma. Since 2006 I have been having rhyzotomies and epidurals every 6 months or so and in August 2012 after an epidural I had a seizure due to an acute headache (leaking fluid from the dura) and while seizing sustained compression fractures to the thoracic region T3,4,5 & 6 and a stress fracture to S1. I had to give up work as I couldn't sit for long, so in June 2013 they did the double fusion. Post op I had complications and the latest fusion has highlighted I have problems with discs L2 and L3 so I was referred to a new pain mgt specialist and he believed its as good as it's going to get and rather than continue with Rhyzotomies (I think the leaking Dura complication worried him) trialled the Senza. It gave me some relief, well I think it did, but I had a difficult trial with the lead being faulty. Anyway, after this long introduction, I'm wondering how you went with the implant and how you are going to this day? I hope it's gone well?
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Old 12-16-2013, 11:56 AM #3
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Smile Hi Pamela!

Welcome to NT!

Glad you found us! Geeze I'm sorry you've had to go thru all of this.
It looks like PerthMum hasn't posted in awhile, but I hope she will see this and give you some feedback. One thing you can do is use the 'search' feature toward the top right side of the screen. Type in 'nevro senza' and it'll bring up posts from prior discussion on this.

Stick around and let us know how your implant goes tomorrow (when you feel up to it).

It's great to have you!

Rae
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Old 12-16-2013, 04:21 PM #4
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Brand new here but i to have a senza and its working flawlessly so far...hope it continues,its pretty new(in my country) so i dont see much problems being reported....hope everyone is well
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Old 12-19-2013, 08:59 AM #5
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Originally Posted by danny82 View Post
Brand new here but i to have a senza and its working flawlessly so far...hope it continues,its pretty new(in my country) so i dont see much problems being reported....hope everyone is well
That is encouraging information, I too am new here, due to have a Nevro Senza implanted in the new year as the trial was quite successful.

I am from the UK and was offered a Senza trial earlier this year due to long term pain issues. Have had many spine operations; all boring stuff like bone grafting, decompression etc. over the last 30 years.

I am not saying that the operations were not successful, they certainly were, each one either getting me off the floor, off crutches or out of a wheelchair, but I am hoping that this SCS will alleviate some of the nerve pain.... fingers crossed.


All the best, Wingy
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Old 12-22-2013, 05:31 PM #6
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Smile Hi Wingy!

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Originally Posted by Wingy View Post
That is encouraging information, I too am new here, due to have a Nevro Senza implanted in the new year as the trial was quite successful.

I am from the UK and was offered a Senza trial earlier this year due to long term pain issues. Have had many spine operations; all boring stuff like bone grafting, decompression etc. over the last 30 years.

I am not saying that the operations were not successful, they certainly were, each one either getting me off the floor, off crutches or out of a wheelchair, but I am hoping that this SCS will alleviate some of the nerve pain.... fingers crossed.


All the best, Wingy

Welcome to the bunch!

We are hearing more and more of these Stenza's from across the pond! Don't hear of many of them here in the states yet.
We'll be anxious to hear how your procedure goes, so please stick around!
It's great to have you!

Rae
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Old 12-18-2013, 06:10 AM #7
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Frown Nevro senza stim implant

Quote:
Originally Posted by Rrae View Post
Welcome to NT!

Glad you found us! Geeze I'm sorry you've had to go thru all of this.
It looks like PerthMum hasn't posted in awhile, but I hope she will see this and give you some feedback. One thing you can do is use the 'search' feature toward the top right side of the screen. Type in 'nevro senza' and it'll bring up posts from prior discussion on this.

Stick around and let us know how your implant goes tomorrow (when you feel up to it).

It's great to have you!

Rae
Hi folks, it's the day after and all did not go to plan. The procedure took well over 2 hours with them struggling to get the leads in. Finally they got one lead in and have put the battery in my right buttock. The rep and my Dr have both said my post procedure pain will be high as they were pulling and pushing on the tissue to get the lead into the epidural cavity. They are not wrong, it's painful!

Anyhow, it looks like now they will refer me to a neurosurgeon here in WA who, apparently is the only person in WA who will perform a laminectomy and then insert a surgical paddle. Of course if the one lead works it won't be necessary but I got the impression they didn't hold much hope. The rep, her manager and my Dr were all in theatre and none of them have had a case like mine before. Just my luck. So, I'm here in hospital now until Friday. Everyone has been great and my Dr and rep fantastic, great empathy and compassion.

I hope this post doesn't deter some people, if you are in constant pain and want your life back, you owe it to yourself to try whatever you can and have faith in your treating practitioners that they will do their very best. I will post again next week with an update on my progress.
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Old 01-04-2016, 01:08 PM #8
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Quote:
Originally Posted by PerthMum View Post
Hi everyone, I had the HF Nevro senza implanted 11 days ago. I am having a lot of problems with pain at the battery site. Has anyone else had this problem?
Just the normal pain from the incision..Im now 10 weeks post surgery from Nevro..very satisfied..no pain in back, just slight numbness in leg but with the remote trying to find right setting..started running 7 weeks post surgery
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Old 01-04-2016, 07:16 PM #9
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Fabulous to be 10 weeks in and running, embrace your new beginnings, but hold back being full on, it takes a long time for those leads to embed themselves in the tissue and you don't want them migrating (which they can do). Mark56 has great info to help, a snapshot is below.
Put into practice the following to get the best results just for the next few months.

I won't bend beyond reasonable limits,
I will lift only within my limitations,
I will ask for help,
I will avoid stretching for another 6 weeks
I won't twist my body, even to put the car seatbelt on
I will enjoy my pain reduction.

There are many of us on here who have seen wonderful improvements only to overdo activities and later suffer consequences. Rae out there somewhere thought it was a good idea to throw hay bales, I got stuck into kickboxing. Good luck, let us know how you continue.


Quote:
Originally Posted by RBrisk19 View Post
Just the normal pain from the incision..Im now 10 weeks post surgery from Nevro..very satisfied..no pain in back, just slight numbness in leg but with the remote trying to find right setting..started running 7 weeks post surgery
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I can still remember what life was like before pain became my life long companion

Last edited by PamelaJune; 01-05-2016 at 09:01 AM.
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Old 11-19-2019, 11:41 PM #10
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Confused nevro 4 years + in

every year nevro tecs try to get implant to work a little better as with drugs you get acclimatised, this time two weeks ago they tried new setting where it sends a pulse for a while then stops to save the battery ( not a good idea for me as the pain is back with a vengeance ) any one out there who has tried this setting for longer than me as I have had to go back to earlier settings.
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