I have been reading your posts and feel very sad for you. I had my SCS implanted almost 3 months ago, and like many people I was not totally excited with the permanent implant, it worked but I wanted more. Then I went to see my surgeon for a check and my rep from Boston Scientific met me there and she spent an hour with me reprograming my unit at the 8 week period. Oh wow, I then learned what help I could get, especially coverage while sleeping. Of course my SCS can't help with insomnia issues.
I wish you the best luck, and so sorry you have to go through another surgery but fingers crossesd that will be the last for you.

Bye, Kim

Thanks
 

Kim,

Thanks for your kind words. I wish that I could just do it tomorrow. I think this MD will get it right. My legs will be in better shape. I have hiked a 2000 foot high mountain, 6 miles r/t, with these crps legs without a stim. Why? Because I want to. But then I am destroyed.

I have little kids. They don't get it. My physician friends sort of get it, but they don't know what to do. It's something only those who have it or something like it can really understand.

I have a Costa Rica trip planned for late July. So if I get this operation done mid June i will be 5 weeks out. The medtronics rep said no problem - the paddle won't slip. I can get in the pool, but no waves for me that soon out. That's why I wish the first try had been the winner so that I would be fully healed. Obviously it's not an ideal trip for me. But i really want to do it because maybe I can't in a couple years. I fight like the terminator, but eventually he gets taken down.

I am in a limbo of sorts - the neurosurgeon said we could do it in the fall. I said no thanks, first day we can you drill a hole in my back awake asleep whatever and lets get this done.

One thing I have resolved to do is see a shrink. When I have the energy, I get angry. I never used to be angry. Never. Patient to a fault with my kids. Now they react to seeing dad wired and cut. Seeing my energy level wax and wane. In addition to feeling crappy, I hate putting them through this. But as adults, that will be better off if I get it together.

They will say my dad got this **** disease and beat the odds and he was there for me no matter how he felt. Every performance graduation every trip he could take he showed up. That's what makes nasty crps scary. You know the fight is never ending. There is only one way to quit which is unacceptable, so you just keep on going.

you be well my friend
don't hinder or injure yourself till then
so when time comes
you won't have a doctor
say to you it's your fault
NEVER EVER LET A doctor make
you believe that
as you viewed the films with
your doctor
and i did the same
by the grace of God
i came across some
privileged information
tiny screw ups like accidentally
cutting into a vein
to him maybe no big deal
but that's him
i am the injured party
go figure
take a breather with that
broken T.V. on your back

someone who cares

Crooked surgicenter pays the price
 

Talked with my insurance company. They are going to investigate surgicenter that tried to rip me off. Guess that the surgicenter won't answer their calls. My guess is they get audited and in major trouble for having done this to other patients. Don't try to play a player.

oh my God
thank you for
that

someone who cares

way cool
 

so good to hear your follow thru with that overcharge....I Love It!!!

I had a surgical center cme back at me after settlement. They had made an error in their book keeping and wanted another 30K ....four months after payoff of their LOP...my lawyer took care of that...we had full discloser...it was their mistake...not mine to correct.

The diligence it took to keep all records in order for three years actually helped with the pain...gave me another focus and it sure gave me courage at mediation.

Intending for clear path with your new surgery date for that paddle.

all the best
Johanna
:Good-Luck:

Should not have run
 

Up until this point my quads have felt normal. No pain. Yesterday afternoon crps pain starts B lower medial quads above knee. Not "soreness" as if i crank neurostim it covers it. Really scary. Probably can cover with new implant, but it seems the more you bzzzz the less connected you feel to your legs. You can move them, but they are electrified appendages. Ugh. I will stick to *fitness walking* and hope this subsides.

No Physician is an Electrician
 

And, MD, this is probably why training in electrical devices, the lay of the cabling, and the placement of the leads should be something of the ilk electricians would know well. Touching leads..... how very basic is that?? Unless migration occurred post-op, this should not be the deal. Then leads emplaced in too close proximity, basic electrical field mechanics would avail of the understanding how best to "install."

All the best, :hug:

One foot carefully in front of the other
 

Dear MD- You write so openly and honestly of the trials "pain as illness" brings to the family. Truly, in the earlier days of my difficulties after the wreck which precipitated injury, pain, and everlasting trouble, our youngest was most especially angry with the changes in what I could do.... and that anger, it turns out, was directed to me as a transference of the fact I was "less available."

Gone were the days of lavish trips for pleasure, gone were the times I could ski with the family, gone or at least greatly reduced were the times I was able to be effectively part of the family. Years passed before I resumed even taking in a movie in a theatre, or going to a restaurant. Camping and hiking were eliminated. Things changed. Therapy was mandated all around as we worked to deal with the "new" me.

Therapy is something which can be a proactive positive well addressed and in which the patient is invested. If you have those qualities and a therapist who is better than most, you may have a winning combination to bring best results home to the family. It helped with us!

Faith, I would strum that chord, but do respect your parameters.

Be well, my friend, :hug:

Running??
 

Well, hey, there is no shortage of patients who overdo post-surgically. Running this close to your ordeal...... and no matter how you try to paint that picture, it was an ordeal, is something my physicians recommended against.... But then, you have a sense of the skin in which you live. As for me, moderation was key in achieving long term surgical success from a healing perspective.

Uh huh, :hug: