NeuroTalk Support Groups - Is this a failure?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)

- - Is this a failure? (https://www.neurotalk.org/scs-and-pain-pumps/188032-failure.html)

During the trial my leads were initially at T9 and I had HORRIBLE chest pain and nausea. We ended up doing a paddle at T11-12. Do you have the percutaneous leads or a paddle? Either way they should be able to move the coverage down for you depending on where you have pain.

Quote:

Originally Posted by Kymmie67 (Post 980961)

I have a question...

..I had my permanent SCS April 16, programmed one week later. At first, I couldn't use it much because it hurt the lower incision. Then, I was feeling sick all the time and realized the nausea went away when I turned it off. Then the whole infection thing, which is feeling better, by the way.

I turned it on again a few times just to test the theory....nauseous every time! And since I would rather have pain than nausea, I've kept it off for the most part. This sucks! I don't want to have gone through all of this for nothing!

Those of you that have had failure, what exactly happened? Am I ever going to be able to use this?

Sigh.....

I also had the nausea issue. I am not on the site as frequently as I used to, but the people here are very supportive.
I had severe nausea with the trial. I used reglan an turned it on low. The nausea was minimal and the pain I had was gone. So I went for the permanent placement. It was a disaster from the moment I left the hospital.

I vomited for 12 hrs. My back pain worsened and I began having horrible muscle spasms around my chest. The tech made adjustments, but every time I turned it on, I was so sick and it felt like I was being slowly killed.
Eventually the tech had the doc take an X-ray in the office and it showed one lead had migrated and was electrocuting my chest wall.

I was sent home and was to use only the one good side. But the same would happen when I turned it on. I stopped using it, but my symptoms worsened. i can not tolerate temperature changes, have horrible chest wall pain and I began having trouble walking, very weak leg control. That is when the doc removed it immediately.
The tech said the vomiting caused the wires to migrate, the doc says no. To this day I have constant muscle fascillations, spasms and worsened back pain. I am on more meds now than before. No one can tell me if I will ever get better.

I filed an Adverse Event report with the FDA. Their investigation found the doc reported blood at the ends of the leads, and the company had discarded the unit. I had been very specific that I wanted the unit tested for problems. That didn't happen.

Of course my doc says he has never seen anyone have nausea or any problems at all with the units. We All Know Tnat is Not True.

Good Luck to you........:confused:

Quote:

Originally Posted by dawngri (Post 986657)

so angered to hear of
your horrific horrible
unnecessary pain and
a worse outcome
dis-guarding of the UNIT
is a bunch of horse
manure rotten i sense
poop going on

i hope you a not
maimed permanently

someone who cares

I, too, hope and pray despite all of the bad outcome reported in the information you discovered you are not left with awful intolerable results long term. Oh, how I hope,
Praying, :hug: