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03-22-2014, 12:15 AM | #91 | |||
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Senior Member
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I've done this a couple of times now over the last 10 years. I've done it of my own volition as I hate taking the drugs, and once I'm off them I've been so proud of myself, gone to the doctors and been told off and put straight back in them.
I've never heard the term "drug holiday" I'm speechless, it just reinforces to me where 90% of these doctors think we are drug users taking them for choice and choice alone, not driven by pain. I fluffed about on another post somewhere about an article that had been published that ended with "if doctors spent more time talking to the patients, interacting and establishing a dialogue we would be able to get to the root of our problem and potentially get over it" I did say on my posting that I may have misinterpreted the article as my mind is not as sharp as it used to be having had so many anaesthetics, had the seizures and taken the dreaded drug Xanax so maybe some of you could take a look at the article and my posting and share your valuable opinions with me. Becky, I think you are braver than brave to continue with a Dr that will not use sedation for procedures, yes I've had many small steroid injection procedures in my PM office suite that didn't require sedation and they didn't really hurt much and I'm happy to have those done without sedation. But the RF and nerve blockers done under fluoroscopy.... since I had the "totally awake" one at the SKG X-ray where I cried and they could hear me in the waiting room, I've always since been sedated for those ones. They injected directly into the nerves and the man doing it said it was good I was feeling the pain as it meant they got the correct spot. All you who do this without sedation you have my utmost admiration. |
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03-22-2014, 12:54 AM | #92 | |||
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Just to let y'all know, I cleaned and cleaned, I took to it with a vengeance and it took me over 6 hours. I'm paying for it today and even now sitting here I can see things I still want to do, you know the cobwebs in the corner behind the door of the back loo for example. Why is it we can always do a better job of it than when a cleaner comes in and does it?
I cancelled the cleaner mum had arranged for me, at $120 a week I just didn't see her as doing to things I wanted done and yes it was lovely for the month of February but I still could see what wasn't done and tbh $120 is money we just cannot afford. My mum is still trying to get her head around the fact that while before we were the bank of P&L where all family members came to us for handouts financially and emotionally we are closed. We just don't have the money for these things anymore. I haven't been to the hairdresser since September last year, I haven't spent a penny on myself other than food and medication since September. The new fortnightly "date nights" we've done twice now and I recycled old outfits, steamed and pressed them and they came up a treat. But I felt so guilty for the money spent. I took mum home after dinner last night and bless her, she said she felt guilty she goes to the hairdresser once a week and I can't afford to go at all, it's been a shock to her, she picked up my medication from the pharmacy last month and was stunned to see the bill was $300. It's all starting to finally hit home, her youngest daughter who has always been the strong one, the one she relied on to get them out of the financial hole the older daughter put them in is not what she once was. She can finally see I'm broken. It's been a rude shock. So today, I'm paying, paying paying, I'm walking in agony and the worst of it all is I'm expected to go out tonight. I've got the footy tomorrow which I'm Looking forward to and the trip to Pemberton also looking forward to on Tuesday, but tonight, nope, not looking forward. Oh well out with the big girl soldier pants, ends must lol. On a good note, the house is clean and I'm feeling house proud yay me... |
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03-22-2014, 05:06 AM | #93 | ||
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Hi, I've been through what you're being asked to do. Just take a moment, if you are still in pain despite being on a shed load of meds, then they aren't doing the job for which they're intended. It's hard, but if it helps you get on the right cocktail, then it is worth it. Saying that, at the moment, for me, nothing is helping that much. The morphine, the oxy, or whatever you're on is intended for end of life pain management, yet our doctors hear we are in pain, so they either dole out more, or put you on something else.
At the moment, I'm on more meds now that I was before I had my SCS implant! Where is the logic in that. I'm reducing my morphine at the moment, I truly do know how hard it is to come off everything. Been there, done that and born the scars etc. You never know, it might be short term pain for long term gain. Please don't think I'm being flippant, I do know how hard it is, I'm on a whole cocktail of meds, but they're not doing the job. Take care of yourself, reduce slowly, if you can't go at the speed your PM wants, stay at the level you can bear for a few days. Baby steps is my best advice. There are new drugs on the market all the time, and they might work better for you, but you can't find out without coming off your current ones. I wish you luck, and hope that the new meds give the relief that you need. oh, I've also been told about hyper analgesia, and apparently that is the state that I'm in at the moment. |
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"Thanks for this!" says: | eva5667faliure (03-22-2014), Hana (03-26-2014), Mark56 (03-26-2014), PamelaJune (03-22-2014), Rrae (06-12-2014) |
03-22-2014, 08:17 AM | #94 | |||
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Grand Magnate
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Quote:
Clearly And it allows us Unwillingly to become addicted to the drug A neurologist I had gone to Put me on Lyrica A dangerous drug for me My daughter Saraeve my epilectic baby 33is on it It was brandy new to the market A killer for myself when I explained To him that there was an unusual feeling I describe it as being in a pool of water A feeling of not being in my own body Not labeled yet Turns out there is a high (very dangerous) And ordered me to take it That was the last of him I wound up having blisters in mouth Then my hands the skin was peeling When stopping the drug all my nails had a dent In them Dear friend To have a disco gram and meylo gram No Meds I'm done over done My last MRI was the last of it all To have such a horrible diagnosis And three doctors tell me follow the oncologist Findings my blood work is great Makes sense But every three months Not to have a definitive What the blank is going on Had enuf of it all This is going on for four years now Done as done can be Wishing all well
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03-22-2014, 01:01 PM | #95 | |||
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Senior Member
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Your in my special Sunday morning prayers along with Becky, Donna, Heidi, VRae, Bram, Mark and a few others. It's been a torrid month both in the Northern and a Southern Hemisphere. Prayers too for my rock, finding it tough, but he is on a/l for 2 weeks so I hope he can get some respite. Happy tonight, Liverpool won so he will sleep well. It's 2 am...
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"Thanks for this!" says: | eva5667faliure (03-22-2014), Hana (03-26-2014), Hannabananna (03-22-2014), Mark56 (03-26-2014), Rrae (06-12-2014) |
03-22-2014, 01:29 PM | #96 | |||
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Junior Member
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Congrats that Liverpool won, and major kudos for your clean house! I know how much that takes it out of you - it's awful that the price of a clean house is a couple of days of increased pain - but I know how GOOD a clean house feels!
It's funny what you said about the hairdresser - my husband and I were just talking the other day about that (I was a little frustrated with my long, thick hair and the almost-here hot, humid, Texas summer), and it hit me that I haven't even had a hair cut in almost three years - and the last one I had was done by one of our daughters! Ah, the things we give up to afford meds, doctors visits, countless tests and procedures! Thank you for your prayers - you, Rae, Eva, Hana, and everyone else are in mine as well. Here's to all of our big girl soldier pants that keep us keepin' on! =Becky |
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"Thanks for this!" says: | eva5667faliure (03-22-2014), Hana (03-26-2014), Hannabananna (03-22-2014), Mark56 (03-26-2014), Rrae (06-12-2014) |
03-22-2014, 10:16 PM | #97 | |||
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Grand Magnate
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Amen! Amen!
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03-22-2014, 10:33 PM | #98 | |||
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Grand Magnate
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your are the best sweetest thoughtful selfless act bless your loving unselfish act be better than you ever imagined
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03-22-2014, 10:40 PM | #99 | |||
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Grand Magnate
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keep up the great job but oh boy do we pay for it at the end blessed are the weak
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03-22-2014, 10:44 PM | #100 | |||
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