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07-05-2014, 10:14 PM | #141 | ||
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Magnate
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I guess taking the Oxy is a trade off. Just wondering if the Vallium might have been more the culprit than the Oxy. Withdrawal is extremely difficult to go through. Sorry you are dealing with so much pain. Just wish you were able to take something to help deal with the pain. I am fortunate because the Oxycontin does not seem to affect my thinking. I have been on it for a few years. Take 60 mg. every 6 hrs., along with Oxycodone(Percodet) for break thru. Although the pain is still there 24/7, it is at least tolerable. I do take 5mg. Vallium a few times a day. The Vallium seems to cause some "fuzzy" tiredness. Take care, Gerry Last edited by ger715; 07-06-2014 at 09:31 PM. |
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07-06-2014, 06:37 PM | #142 | ||
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Hi Pam, hope the new specialist works out for you. It gets a bit old, dealing with docs that are just humouring you doesn't it? Does nothing for your confidence in their ability to fix your problems when they take that attitude.
One of the things I was looking forward to post implant was getting off most of my meds. Not too sure about that now. Mind you I'm probably just having a BLAH type of day. Phil |
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07-09-2014, 02:44 AM | #143 | |||
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Hi Phil, I was like you, I so thought the SCS would see me reducing and finally eliminating medications. Instead I found myself in a situation where my dosage was increased threefold to amounts I felt very unhappy with and uncomfortable. I have severe side effects and have been hospitalised many many times due to complications from oxy. I have had all the discussions with the PM, NS and GP about what I should be taking and I will not take the higher dose long term, I'm just going to have to suck it up. Bowel blockages are excruciating, I have been hospitalised over half a dozen times, had perforations twice, peritonitis twice and some 14 inches taken from the bowel, I'm just not prepared to subject myself to that little merry go round yet again. I take a sachet of movicol each day with the 20mg oxy and Panamax, when I was on 80mg plus I reached 4 sachets and was struggling to manage between rabbit droppings and overflow. Don't you just love that on NT wind and bowel movements are a source of many a conversation. I'm wondering how long it will be before I can work my butt to turn out tunes..... And yes, it sure does get old dealing with docs who no longer care about patients and just there instead for the $$$. Fortunately my NS and GP are not one of those, but I've had more than my fair share over the years..
I'm in QLD for a week visiting my brother, the flight was only 4.5 hours but we had weather delays and my back is giving me a long drawn out wail. Blah days become more and more often with back pain eh! Quote:
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"Thanks for this!" says: | eva5667faliure (07-12-2014), ger715 (07-09-2014), Hannabananna (07-09-2014), Rimbanda (07-09-2014), Rrae (07-28-2014) |
07-09-2014, 10:17 AM | #144 | ||
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Junior Member
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Hi Pam, glad you made it to Qld in time for the warm weather. It was minus 3 here yesterday, glad I'm not at work doing nightshifts. Guessing from the length of your flight, you must have flown over from Perth. Hope you enjoy your time visiting family.
Phil |
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07-09-2014, 08:18 PM | #145 | |||
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Yes the sunny days are lovely, the weather is cooler than we expected so we just bought what we have been wearing back home. It is my hubby's 50th birthday next week so we here to celebrate. Going to the WCE vs BL this Saturday night at the Gabba and dinner Friday night at Aria.
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07-12-2014, 06:14 AM | #146 | |||
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Grand Magnate
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could not have said it any better Just a couple of days ago a 30 mg increase in the Oxycontin in my final dose for the evening so backed up i was vomiting profusely threw up my meds did not do a retake of them just smoked and tried to sleep it was the only thing that help my nausea hate to have it be the only thing that helps it is a sorrowful thought to have these meds in our life forever sucks! be well me
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07-12-2014, 09:58 AM | #147 | ||
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Magnate
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Eva, Pam;
The narcotic meds as I mentioned before really are a trade-off. Unfortunately, the "potty" issues are a nasty problem. If it weren't for that, the 60 mgs.of Oxy 4 times a day, in addition to other meds I take , do help me deal with the pain. The only thing that helps me not get backed up with the constipation is taking a full dose of Miralax twice a day. As Pam mentioned "droppings and overflow" is pretty nasty; but better than the complications from being backed up. Eva, as you write, "it is a sorrowful thought to have these meds in our life forever sucks". Gerry |
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"Thanks for this!" says: | eva5667faliure (07-13-2014), Rrae (07-28-2014) |
07-13-2014, 09:13 PM | #148 | |||
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Isn't it extraordinary that so many of us on NT dislike these drugs so much while others world wide willingly ruin not just their own lives but loved ones on the accompanying journey. It never ceases to amaze me how the human gene can be duped into believing these things make you feel great. My heart aches for anyone who becomes addicted whether by poor choice, peer pressure or old fashioned doctor mismanagement.
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"Thanks for this!" says: | eva5667faliure (07-14-2014), ger715 (07-13-2014), Hannabananna (07-14-2014), Rimbanda (07-18-2014), Rrae (07-28-2014) |
07-21-2014, 09:39 PM | #149 | |||
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Senior Member
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Got an appointment with my NS and I'm on the cancellation list as well. So the big day is looming and I go through a range of emotions from determination to see it through to fear and wanting to stick my head in the sand and not face up to the future. I can't help but wonder what I will hear this time but do know one thing is for sure, it is not going to be straight forward. My wonderful husband has the day off to come with me and that in itself is worrisome as his mental health is on the decline in pace with my physical health. He lives in hope to hear I'm going to get better and that drives my fear. Oh my pity pot is in for a stoking these next few weeks!
On a positive note I'm still titrating down on my meds and pleased to say I'm on 12.5 valdoxan only for nights now. I'm stopping the Lipitor (statin) tomorrow. The plan is by August 11 I will be only on 50mg pristiq (anti depressant) 2mg progynova (HRT) and 20mg OxyContin and hopefully no need for daily movicol sachets. I'm going to ask if I go ahead with the lumbar fusion can they have a go at threading the 2nd percutaneous lead in at the same time so I can get coverage for my thoracic and sacrum region. I can't see the point in having another procedure at a later time. Wishful thinking maybe but if I don't ask I won't know the answer... |
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07-28-2014, 06:37 PM | #150 | |||
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Senior Member
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I have just got to say this out loud on the forum, I can't say it out loud at home or with family members as they just DONT get it. Withdrawal is the absolute PITS
As most of you know I've been titrating down steadily throughout the year on all my meds and have successfully quit some so I can't help but wonder how long these horrid symptoms are going to last? Rebound I think it may be called? Heart palpitations, difficulty swallowing, struggling to breathe, headache, nausea, irritable, emotional, don't want to see or speak with anyone, muscle spasms and turtling (finding your shoulders have become almost glued to your ears you consciously force them back down and within minutes they are back up) oh and I forgot to mention pain... I remember watching a TV show where a recovering addict refused pain medication and I wondered why. Wowwee now I know. I really don't remember it being this bad last time I quit everything but that may be due to not then being on so many different meds. I know a number of medications are cited as non addictive but I wish they could come with better warnings of dependence forming when first prescribed. I wonder if my symptoms are coming from the serequel ceasage or if it could still be Xanax or maybe it's the cutting down now on the valdoxan or the continued decrease of OxyContin. Don't know, just wish it would stop |
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"Thanks for this!" says: | eva5667faliure (07-29-2014), Rimbanda (07-29-2014) |
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