SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 01-20-2014, 07:47 PM #31
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Heart Oh my Goodness!!

Oh Dear Pamela!

I was reading of your fun at the Girls Night Out..... then got totally derailed at learning of your catastrophic PAIN!! How awful!!! I am glad for you that your docs are taking immediate good care of you, and I surely hope this acute pain will come under control and THEN the work docs will do brings peace, calm, a smile to your lips!!! Believe you me....... I am praying all will be well with you!!

May Blessings wash over you in abundance! May you once again know life without pain.

This is my prayer,
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Old 01-20-2014, 08:57 PM #32
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Pam,
I am truly amazed that a fusion can be done at the same time a paddle/laminectomy can be performed. While I did have L4-5 fusion done 8 years ago, a laminectomy was performed during the same surgery; but it was because of the spine being so narrowed in that area, space was needed to relieve the spinal cord being terribly compressed. I do have many areas with spinal stenosis; but that was the worst.

A paddle implanted at the same time is really quite different. Just praying all this pain and suffering will be greatly lessened. I myself am on 60mg's of Oxycontin every 6hrs. around the clock. Percocert 3 to 4 times a day for breakthru pain, along with 5mg's Vallium a 2 to 3 times a day.
The only way I have been able to sleep at night is taking Ambien CR every night for the past few years. Between that and the pain meds, I do manage to get at least 6 hrs.of sleep where I am unaware of pain .

Praying doctors will be able to give you a life with much less pain.


Gerry
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Old 01-20-2014, 09:35 PM #33
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Default Pam!

I am SO sorry to hear what happened at your celebration time.

I am glad, though, that you were with your friends, and that you weren't alone when your back decided to do what it did. How blessed to have such good friends around to help take care of you!

And your sweet hubby - how blessed to have a wonderful man who loves and cares for you so!

I will be praying that they can get on top of your pain quickly, and that the doctors will have wisdom about how best to proceed.

Lots of prayers going up for you!

= Becky
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Old 01-20-2014, 10:24 PM #34
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Quote:
Originally Posted by PamelaJune View Post
Hi Ger, my neuro said the other neurosurgeon (Dr Holthouse) who is also a PM is a good bloke, but I said I would prefer him (Dr Malone) to do the laminotomy and paddle insertion and he has said he may be able to do it with my PM (Dr Finch) alongside. They want to get the pain under control first so on arrival 2 x 10mg Endone and 30 min later pethidine as I've developed an allergy to morphine then 4 hours later another 2 endone along with my night meds and then OxyContin at 11pm and pethidine during the night. I've just had another pethidine injection. So even with all those drugs my spine is weeping still. Any movement hurts and it feels like it's collapsing.

They are working hard to eliminate the pain, my husband visited last night and explained to the Dr that for the last three nights bar Saturday where I didn't sleep at all I've knocked myself out with Xanax and even though knocked out, I've been crying in my sleep and in terrible pain. I had no idea as I was non compos... I hope he managed a good nights rest last night with me gone as he looked shattered. He left work early so he could get here, dropped the dogs at home, quick water and food for them and came straight here. Funny how when people see the uniform they suddenly become self conscious. The nurses and visitors seeing him were all agog.

I so wonder what today will bring, I can't go on like this and in my own mind I think the laminectomy and fusion of L2/3 will fix the problem and while in there do the laminotomy and insert the paddle so I can get better pain control with the stim. The Mount hospital staff are splendid and nurses must all have caring as their middle name!

Well wishes
Mark, I hope your recovery is still going well. Eva, I hope you can begin to say NO and find some inner peace. Becky, I hope your stim is still going well. Wingy, I hope you have managed some gentle journeys to the local pub. Gerry, I hope your stresses are abating, Nance, I hope post op is coming along well. HB, no falls or trips I hope and Rrae, life is being kind to you. So many other names to recall but the pethidine injection they just gave me is kicking in, ooh just remembered Pooh, hope the long drive back passed in a flash overridden by fabulous memories.
heal heal
as we all are in prayer always
holding your hand
oh your pain that
monster pain
forever nauseous as the
pain rules and changes
us into a horrible way
may they arrest it soon
oh so understand
be safe
your loved
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eva
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Old 01-21-2014, 09:40 PM #35
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Red face South Perth hospital today

They are taking me by ambulance at noon so my PM can operate at 1.30 at South Perth Hospital as he has room on his list over there, then, post recovery I will be sent straight back here to Mount Hospital for full recovery. He is doing a block on L3 this week, then a block in L4 next week and, then in a fortnight after some time has passed and pain hopefully settled he and my Neuro will decide to do either the laminotomy or fusion, or both.
I had a bone graft and laminectomy in 1978 and again in 1994 and 1996, and then the double fusion on L4/5 & S1 last year in June. They are saying on the X-rays that L3/L4 are not fused and if they do decide to fuse, it's L3/4 they will do. The laminotomy if they do it, will be done on T9 or T10 and paddle inserted. There is definitely something wrong for it to be "clunking" like it is, it feels as though it's collapsing, pain is once again acute. It's all so frustrating.
Of course my neuro is worried about doing the laminotomy and inserting the paddle, but I trust him and with my PM alongside I have faith, and at some stage we have to believe as I can't get in to see Dr Holthouse for months and months and I can't carry on like this. My PM Dr Finch trusts neuro Dr Malone as he saved Dr Finchs son when he had an inoperable brain tumour and Quentin went in and saved the day. They gave trebled my meds, 120 mg slow release OxyContin and 10mg Endone x3 a day. I'm also back on triple movicols and coloxyl as I'm terrified of another blockage.
My poor mum and husband it's so much for them to bear, I wish I could wave so wand and resolve it all for them. Lyndon putting up a cantilever umbrella to provide shade over the "dog paddle pool" and that should help them, I suggested it yesterday morning and he must have thought it a ripper idea as he had bought the umbrella by 5pm and up at 5am this morning was out there putting it together. I suggested to mum that she sell her shares to afford these new hearing aids and she has done just that, and finally I suggested to my brother he put a small aircon unit above mums front door entry as the roof has a high ceiling and a small 2hp will fit there nicely and cool the front room and blow through to the back rooms with the living room door open, it also means it won't blow directly on her and cause her to get a cold of some sort. So at least I'm still contributing to the family in some way.
My Nevro rep was herd yesterday and explained it will be a "Boston paddle" with its leads then joined to the Nevro battery. She is wanting the laminotomy done ASAP as apparently I look really really poorly!!
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Old 01-21-2014, 10:46 PM #36
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Pam,

Thanks for all the info. Really a lot going on. Your husband and family seem to be really very "special".

Praying all the decision making will be the best way to eleviate your pain and get you back to a life with much less pain.


Gerry
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Old 01-23-2014, 01:03 AM #37
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Heart Hello Pam!

Prayers and angels surround you on this newest endeavor to help your spine situation. Yes, Gerry is so right commenting that you have a LOT going on! Even so, there you are offering suggestions to your family in a helpful way about many things...... you are a special person just as your loving family is supportive as well and special.

I sincerely hope that ambulance ride went well, the blocks and paddle emplacement done just so, and that you will recover well and fully. So very much work on your poor spine. Yes, you must have appeared a fright to your family and concerned others. Just as my family and friends have been saying to me lately they can see in my face/my eyes/hear in my voice the very real difference this most recent fusion made in my personal situation. Pain takes its toll on you in a very real, up close, and personal way!

Prayin.
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Old 01-23-2014, 01:17 AM #38
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Exclamation As the days roll into one

I've just spoken with my PM by phone and he is coming to see me in a few hours, but he has definitely said I can go home tomorrow. I miss the companionship of my pets and of course I miss my husband. We have discussed sleeping arrangements and we will have to sleep in separate rooms until I can get this pain under control. I had no idea I was crying in my sleep and with every turn moaning and groaning with pain. I feel terrible that our lives are so disrupted by this monster "chronic pain" that we are all so familiar with. I have lived with it for so long that my acceptance has become unwavering in the very essence of "it is what it is". Sitting here today, with my older sister just left, I'm wondering how it all come to this. Stupidly feeling sorry for myself and wishing we could get on with it rather than all this waiting to see if this works or that works, just put the damn paddle in and be done. I'm resigned to taking the full and increased dose of OxyContin and Endone because no matter how much I dislike them, they seem to be the only things working at present. Not happy
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Old 01-23-2014, 11:19 AM #39
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Pam,

Most of us here, if not all, are living with chronic pain. As Mark wrote; it changes us. Often, we don't realize how even our personality changes. I know the days my pain is better; I am more upbeat; then "boom"; back up high on the # scale.

Just wondering if the fusion might be the way to go; and hopefully, the Paddle might not be necessary. But, of course, that would mean Not doing the paddle in the same surgery.
And...a wait and see whether the pain has subsided enough.

As previously mentioned; I had an unsuccessful trial and never did the SCS implant. I also have a lot of scar tissue which would lessen the success of an implant.

But, with the Oxycontin/Percocet, etc., at least I am able to control the pain enough to get thru most days without being in tears. It did take some time to come to an amount to adequately control the pain which meant upping the dose on some of these meds. I have been on my current dose for the past few years. The dependency on these meds is really dependency on lessening the pain; not addiction. There is "no high". The pain sees to that;
but dependent on lessening the pain..."yes".

Pam; you are really very important to all those who love you. And; just reading your posts; it is understandable. You are quite the trooper.

Prayers are with you.


Gerry
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Old 01-23-2014, 01:40 PM #40
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Oh my Lord, Pam. How awful that you've been hammered with such horrible pain. Even to the point of crying in your sleep! The minutes must roll by like hours as you wait to get a clear plan from Dr.
Your family cares about you very much, both here at NT and where you are at home. (well, almost home anyway).

It's a good idea to sleep alone for now, so that you can lay as you please and not get accidently 'bumped' by hubby. I hope the rooms aren't too far apart in case you have to holler for some help....
Course, you can do as we do at my house - call each other on our cell phones

Pam I truly hope this will get sorted out soon so that this can be put behind you as a fading memory.

Caring,
Gentle ((((Hugs))))

Rae
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