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Old 02-10-2014, 07:38 PM #61
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Originally Posted by PamelaJune View Post
So, the long awaited for appointment with my PM arrived yesterday, I say long because his secretary seemingly was unaware he had treated me in hospital in January as I was admitted under my treating NS, who spoke directly with my PM on the phone and my PM did the nerve block at one of the hospitals he practices at. The hospital will have billed medibank direct on his behalf and possibly only his accounts team were aware. Still, I'm sure he has a diary that she manages?

I followed his directions to the letter on discharge and as requested sent an email explaining any noted changes etc, the email went to his secretary (as I expected it would) no response, I phoned, the secretary briskly says he has actioned the medication authority request in the last paragraph. I get the feeling she is about to hang up. Great, but what about my pain that has increased and is increasing by the day. She says "oh he only reads 2 paragraphs at the most" I reply, it was only 2 paragraphs with the first paragraph explaining my pain.. Oh, I will have to find it and highlight the first paragraph then for him to read and he can call you back.

2 hours later she calls and says he can't do anything over the phone and we have a cancellation appt on Monday. Did I mention she's faffing around and making that Hmph sound, you know the one that people make when they don't really believe you...

Off we go to the appt along with the X-rays, sure enough there is the email and paragraph highlighted. He looks at me, then at my husband and says "hmm how do you feel, you don't look to well". "Have you had a fever?" I'm thinking, is he talking about me or my husband. "Let's have you up on the bed and have a look at you". Oh, it must be me then.

So, up on the bed, quiet for a moment and he touches a spot on my lower back, I nearly hit the roof, crickey that hurt. Touches somewhere else, somewhere else and somewhere else, yes there is pain in those places, I've marked them on the body chart in red. Silence, he goes back to the spot, touches it again, I come back down from the roof a moment later. He says "that tender spot is where the pedicel screw is" I think you have an infection.

Now I've spent most of the weekend in bed knocked out with meds. I took my full dose of painkillers on Saturday, slept all afternoon, got up at 7pm so I could take hubby to the pub and he could enjoy the game, have a drink and get back home safe n sound. We get home safely and I'm straight back to bed, up at 1pm Sunday and back in bed by 5pm Sunday. I've slept the whole time, oblivious to what's going on around me, never ever done that before. (Oh, his team won, happy days, awesome game, even I enjoyed the first twenty minutes, then I went and had a rest in the car and back in to get him when the game finished).

So back to my PM, he says we will do another block the next level up, he calls my rep there and then and asks her to call him back about the paddle, then he says he will also speak with my NS about doing the paddle as he can do the block and NS can do the paddle at the same time.

We go out to the secretary for her to schedule the procedure, I'm confused as I don't know what procedure is happening and I'm not feeling particularly well. The secretary flicks around the Screen and cheerfully says, ok booked you in for March 19th and follow up Dr appt June 6th.....

Great, I'll just put my pain on hold for 6 weeks, let's remember the 2nd nerve block was supposed to have been done one week after he did the first one on January 21. Do I sound disillusioned? I am, I'm feeling like a person who is about to once again enter the wonderful world of merry go round the hospital Pam once again not being believed.

I say to the secretary, so what procedure is he doing, she has the paper in her hand. I get the humph again and she whisks away, comes back and says the nerve block. So we have been stood at the counter now for ten minutes since we left the PM office. By chance (thank heaven) he comes out, puts his hand on my shoulder and says I will call you with the results of the blood test and we will get this procedure done quickly so we can get you feeling better, he looks at the secretary and says when are we doing it. She replies march 19, I think time stopped, he looked at her, silence fell, other patients waiting all look to the desk. He says slowly, when? She fans herself and says, ah I will uhm! I uhm.

He interrupts and says we will get you in on the other list, I have two lists, we will call you with an appointment. It won't be that far away.

So, I'm home, had another nights sleep courtesy of the hated knock out pill and I will go have the blood test shortly, I'm feeling really low and despondent. Feel queasy still which I've felt all weekend and had put down to just general malaise, maybe I do have an infection?

I just want my life back, I want to be able to go out, talk to people, meet people and have a laugh without having to go lie down in my car. My poor husband, how much more can he endure. I'm sure another round of hospital merry go round Pam not being believed will be the final straw.
Pam, I'm so sorry to hear about all of the trauma you've had to endure ... I am hurrying but wanted to at least say that I am saying my prayers are for you to heal well now with the strength of those antibiotics and all resources available to you...

Hana
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Old 02-10-2014, 10:50 PM #62
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Default Feeling Poorly

I rang the blood pathology to ask if I needed to make an appointment, a very nice lady answered and she said you don't sound well, what blood tests is your Dr asking for. I told her and she told me she will be arranging a home visit and someone will be here first thing in the morning to take my blood.
Wow, I didn't realise they did home visits and I said as much, she said we do when necessary and you don't sound well enough to be driving. I'm so pleased someone will come here and I don't have to take myself, because I'm really struggling today. Very surprised about home visits and, well, I must sound jolly awful.
But, my faith in humanity restored, what a lovely lady!
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Old 02-11-2014, 12:26 AM #63
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Heart Pam

I understand well the range of emotions, isolation, fear of rejection by care givers, strain all of the above places on the family...... and having experienced this I share a feeling of coming alongside you to provide hope this will pass into history and your life will come back...... maybe not quite what it was [this I have learned up close and personal]..... but features to demonstrate it is there for the living will return.

Prayin for ya and dispensing hugs,
May all be well,
M56
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Old 02-26-2014, 08:41 PM #64
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Default Disc injection

Hi folks, I got the call on late Tuesday afternoon that my PM had a cancellation and they could do my procedure on Weds if I was available. Yes yes, of course I was. My mum took me in at 12.30 and at 2.15 off to theatre I went. On coming round my PM came to me and said he had found something. I'm waiting now to hear from them as to what it is they found, part of me thinks it will be what we thought all the long that a fusion to L2/3 will be needed. Anyway, at least things are happening. My bloods came back normal and thats good news.
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Old 02-26-2014, 08:56 PM #65
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Default Pam,

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Originally Posted by PamelaJune View Post
Hi folks, I got the call on late Tuesday afternoon that my PM had a cancellation and they could do my procedure on Weds if I was available. Yes yes, of course I was. My mum took me in at 12.30 and at 2.15 off to theatre I went. On coming round my PM came to me and said he had found something. I'm waiting now to hear from them as to what it is they found, part of me thinks it will be what we thought all the long that a fusion to L2/3 will be needed. Anyway, at least things are happening. My bloods came back normal and thats good news.

Glad to hear you were able to get in today. Did the doctor give you some idea when he would would get back to you with the results. You probably know your body best and a good possibility you are right about the fusion.

HOpe you don't have to wait too long until you hear from the doctor's office.



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Old 02-26-2014, 09:21 PM #66
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Oh Pam, what an unbelievable ordeal!! I am so so grateful that you do not have to wait any longer... and hope the news isn't that you need another fusion.

Prayers are with you for healing right up!
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Old 02-26-2014, 09:46 PM #67
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Default pain relief etc

oh so happy you got in early....ahhhhhh pain relief.

Holding the faith with you...yikes...fluff got out....stuffing ---stuffing it back.<<<<where is the whip? GOT it...taking it to where it belongs.

you are pretty spot on about your body and the "wait" for the call gets easier too after all.

looking forward to the update

HB
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Old 02-27-2014, 12:56 AM #68
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oh so happy you got in early....ahhhhhh pain relief.

Holding the faith with you...yikes...fluff got out....stuffing ---stuffing it back.<<<<where is the whip? GOT it...taking it to where it belongs.

you are pretty spot on about your body and the "wait" for the call gets easier too after all.

looking forward to the update

HB


WOW !!!! HB, couldn't have put it any better.....you have a wayyyyyy with words.

Waiting to hear from Pam; hopefully soon.


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Old 02-27-2014, 06:04 AM #69
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Default I'm so tired today

I feel in my mind I should be happy they say they have found something. Instead, I'm shattered, it's 6.55pm and I'm getting into bed already. I cooked an early dinner, basic meat and 4 veg, couldn't face anything more energetic. Did the animals and garden watering. Got the sewing machine out to make a birthday gift for my sister, money to tight to buy anything but I have materials here and if I can get the energy right I can create a nice gift I hope. Just so shattered, still reeling from my vitriolic sisters in law comments and keep telling myself to put it behind me. I'd rather give them a piece of my mind but I will not lower myself to their level. I'm turning the other cheek and being strong, if my grandma could do it, so can I. Nasty vitriolic people are not welcome in my life anymore. Be gone you horrid things, I'm singing my song I get knocked down but I get up again.... Sorry felling down and shattered, know you NT'rs understand, we are all in a tough place right now. Pulling on my big girl soldier pants right now and putting my thoughts in order. Love to you all
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Old 02-27-2014, 09:25 AM #70
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Originally Posted by PamelaJune View Post
I feel in my mind I should be happy they say they have found something. Instead, I'm shattered, it's 6.55pm and I'm getting into bed already. I cooked an early dinner, basic meat and 4 veg, couldn't face anything more energetic. Did the animals and garden watering. Got the sewing machine out to make a birthday gift for my sister, money to tight to buy anything but I have materials here and if I can get the energy right I can create a nice gift I hope. Just so shattered, still reeling from my vitriolic sisters in law comments and keep telling myself to put it behind me. I'd rather give them a piece of my mind but I will not lower myself to their level. I'm turning the other cheek and being strong, if my grandma could do it, so can I. Nasty vitriolic people are not welcome in my life anymore. Be gone you horrid things, I'm singing my song I get knocked down but I get up again.... Sorry felling down and shattered, know you NT'rs understand, we are all in a tough place right now. Pulling on my big girl soldier pants right now and putting my thoughts in order. Love to you all
Oh my dear, I'm so sorry...you have had to endure too much! Already your body and you need as much TLC as is available... Yes, do not pay attention to your vitriolic nasty relatives or ANYONE with those attitudes. I wouldn't let them into the house right now and Don't walk, run the other way! OHHHH>>> Burns my bisquits!! I'm so grateful that you can share this here and get support you really deserve. You know, some people just don't, and therefor wont get it, or us. I shudder when I imagine anyone so mean that they don't "want" to get it or be supportive. Oh, this post may be primitive and ugly but I had to respond and let you know we care!! You are not alone... call on me anytime. I'm off to my pain psych appt... the 4 hour drive, 2 hour wait for the 2nd appt,...so, got to go now. Yep, all we can do is keep on going, finding our own rhythm and song...

Rest and heal today... be in good company.
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