SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 05-05-2014, 11:50 PM #11
MDinpain MDinpain is offline
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Default Hopefully not too late?

Evil twins Rae? I can be very aggressive, vindictive, narcissistic, and scrappy, but also very caring, forgiving, sympathetic, and empathetic. I'm a mixed bag!! One descriptor to summarize - winner. I find ways to win even in the Gulag of neuropathic pain.

Belated welcome mdinpain2.

The saphenous nerve - doesn't like to be messed with. Glad that you have not developed full blown crps2, but I know a bad saphenous neuropathy is still a huge issue. Will l3 drg stim cover all of that? Have you tried lf scs? HF scs - if it works= Europe and serious Canadian $.
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Old 05-06-2014, 12:09 AM #12
MDinpain MDinpain is offline
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Default Also

Peripheral nerve stim an option - but I'd worry about migration. Hard to imagine they can scar down really well.
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Old 05-06-2014, 01:00 AM #13
CoralToe CoralToe is offline
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Default

Heya! Haven't posted in awhile around these parts, but thought I would chime in as this is pretty much what my SCS is.

I have peripheral neuropathy in my left foot, and my leads were placed on the nerve rootlet rather than directly over the spinal cord itself. This makes it so that I can get stimulation on my forfoot only (or whole foot, depending on my program) - thus I don't have to have my entire leg buzzing just to get pain relief in my foot. Not many docs do lead placement like this, so I am curious how many your doc has done?

As for positional changes - it will get better with the permanent, but I have major changes depending on how I sit, stand etc...and because you are stimulating the root directly, a minor shift can give a HUGE jolt. Along the same lines, it takes so little power to stimulate the root - mine is so low I can go 4-6 weeks between battery changes. My guess is that this is why the positional changes may be more of a "shock" with a lead placed on the root - it takes less electricity to zap anything at that level...

And finally - since I haven't been around for a bit, a small update on me...I have now been officially opiate free since Feb 15th of this year! It took many months of weaning, and a not so nice withdrawal period, but that is behind me
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Old 05-06-2014, 03:17 PM #14
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eva5667faliure eva5667faliure is offline
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Default

Quote:
Originally Posted by CoralToe View Post
Heya! Haven't posted in awhile around these parts, but thought I would chime in as this is pretty much what my SCS is.

I have peripheral neuropathy in my left foot, and my leads were placed on the nerve rootlet rather than directly over the spinal cord itself. This makes it so that I can get stimulation on my forfoot only (or whole foot, depending on my program) - thus I don't have to have my entire leg buzzing just to get pain relief in my foot. Not many docs do lead placement like this, so I am curious how many your doc has done?

As for positional changes - it will get better with the permanent, but I have major changes depending on how I sit, stand etc...and because you are stimulating the root directly, a minor shift can give a HUGE jolt. Along the same lines, it takes so little power to stimulate the root - mine is so low I can go 4-6 weeks between battery changes. My guess is that this is why the positional changes may be more of a "shock" with a lead placed on the root - it takes less electricity to zap anything at that level...

And finally - since I haven't been around for a bit, a small update on me...I have now been officially opiate free since Feb 15th of this year! It took many months of weaning, and a not so nice withdrawal period, but that is behind me
dear friend
so happy to hear
you are med free
be well
me
__________________
someone who cares
eva
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Old 05-06-2014, 07:33 PM #15
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Default Awesome news

Well done you, congratulations definitely in order. To be opiate free is such a heavenly feeling.

Quote:
Originally Posted by CoralToe View Post
Heya! Haven't posted in awhile around these parts, but ....

And finally - since I haven't been around for a bit, a small update on me...I have now been officially opiate free since Feb 15th of this year! It took many months of weaning, and a not so nice withdrawal period, but that is behind me
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Old 05-06-2014, 07:58 PM #16
Hannabananna Hannabananna is offline
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Default wow

That is so cool....I dream of the day...........

Congrats!!!!

HB
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