NeuroTalk Support Groups - Headache will not go away

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- - Headache will not go away (https://www.neurotalk.org/scs-and-pain-pumps/203049-headache.html)

Quote:

Originally Posted by PamelaJune (Post 1240985)

The never ending headache has returned with a vengeance. I'm thinking I'm bound for a seizure. So does my GP. Why she didn't refer me to the neurologist I saw in 2012 is beyond me. Perhaps she thought I would go to the hospital as she suggested. Only GP's don't understand what it's like to go to ER as a chronic pain sufferer, we are labelled drug addicts. The only way to get decent treatment in hospital is to be referred & admitted under a treating specialist. Going armed with a letter from my GP will have seen me sitting in the waiting room for hours on end with no help at all and more importantly no access to pain relief.
DB is suffering severe depression and anxiety, he's curled up in the foetal position. I'm unwell, I'm in pain, but I've done the washing and now I have to yet again do his dogs welfare. He has this week off. I've suggested he go to a wellness break. NO was his answer, I got quotes to give help round the house. NO. I'm at the end of my tether, my dried up tears have found their way back I'm crying as I type, I don't think I want to live like this anymore. I can't live like this. DB thinks giving up alcohol was going to wave a magic wand and make life bearable for him, he's realising with or without alcohol he is a depressive. Maybe as I've long suggested bipolar. It's like living on the edge of a merry go round up and off of the eggshells down and the eggshells shatter. Only it's me that's shattering. He's sucking me dry, my every living moment is spent supporting helping him. I can't see the point in living like this anymore at all, my family couldn't care less about me unless they want something, DB only needs me to care for his needs, the animals need me to feed and clean up after them. I'm just a slave to everyone else but if I mention it, I'm a terrible selfish person. I've been a slave all my life trying to get my mothers approval and love, now I see the pattern with DB I'm a slave to his every whim and temper. Why is it people only want to know you when you are well and happy. But when your not they disappear like dust bunnies into the corner of the room. My head is hurting terribly, I feel disconnected and sad. Sorry everyone .

Pam, you may have come up with an area that needs looking into... DB being Bi-polar.... Would be good for both of you if he would look into getting diagnosed and treated.

Always in my prayers...

Gerry

Headaches are receding but I'm experiencing increased aura type symptoms. DB calls them spinnies, the only way I can describe it, and have done for many years is to say, it feels like my brain is a little boat floating about on the water and a sudden wave makes the boat tilt and bobble madly before settling again. It's very disconcerting. I used to get them a lot when we lived in London and I had a very stressful job, only now they seem much more pronounced, but it's probably just me noticing them more. The other aura is smell, I experience strong foul smells, when I had the last grand mal it was faecies I kept asking everyone if they could smell poop, checking my shoes and those around me to see if anyone had stepped in doggy doodo but no, it was just my noggin playing tricks on me. This time round I can smell urine. I think I'm going nuts!

There is good news though, I'm not gobbling Panamax every 6 hrs, I'm down to 2 on occasional days. Now I'm off to wash my hand n feet again along with another load of washing to deal with the imaginary urine stench!!

"I'm a terrible selfish person. "

Pamela, I hope that it is OK if I offer you a respectful challenge about this.

From everything that you have shared here you are an honest person. But, as far as I can see you are about minus infinity as far as selfishness is concerned.

You do a lot of domestic tasks around your home. You care for DB. You care for the members of his family. You care for your dogs.

I see a pattern there which is that you are a completely non-selfish person :hug:.

That is good that your headaches seem to be improving - I hope that this continues :hug:.

DB reminded me when I was having the spinnies a lot in London, I was on the amytriptaline (endep) 25mg. I stopped it due to it causing me tremors. I wonder if the endep was contributing to the spinning sensation & is again contributing to them now? I have a distinct memory of the spins going away but never considered endep to be the reason.

Question - Anyone else out there on amytriptaline (endep) suffered with a spinning sensation, it's a lot like vertigo but I don't get the associated nausea so I'm lead to believe it's not BPPV.

Pam, I've been taking Amitriptyline which is a generic for Elavil. It is a tricyclic antidepressant. I think maybe universally it may also have the name endep. I started many years ago taking as a preventative for migraines. My migraines have not been as bad as they had been years ago. The one thing that really starts them up is when I have had steroids; especially the injections.

The Amitriptyline (Elavil) also helps with the brain receiving pain signals which is why I use it now. I use to take a 25mg. but have been cutting the tablet in half =12.5mg's. I use it every evening before going to bed. It does produce some sleepiness as well. It takes a while to get into the system. I don't recall any spinning sensation or anything you have described.

I am glad to learn the headaches are calming down. Hopefully whatever is causing these other symptoms will "just go away". The odor smells is something I haven't heard of before. Poop and piddle smells; not nice.

Gerry

I've had that. They are called olfactory hallucinations. Mine were of something burning. They seemed to be associated with epilepsy and migraines. Haven't had any for quite a while. BUT the spinning and dizziness I've had for about 5 days now but it's going away. Came on very strong around the time of my last migraine, 3 nights ago. Today I didn't have it at all.

Thanks Wiix, I will google it, I have a vague memory of the term olfactory hallucinations but I know nothing of them. My headache today has returned and I had a really funny turn just before mid morning where my legs turned to jelly, my heart was pounding and my head felt really light. Lasted for about 30 seconds. Had to hold onto the wall.

Quote:

Originally Posted by PamelaJune (Post 1242402)

My dear sister
Your seeking for your mothers love
Oh how you touched a nerve
I have given up
It wasn't to long ago
She told my baby sister
She was never wanted by my mother
She was scheduled for an abort
My father interspersed a confirming call
Done
So done

I mentioned to you my daughter would also have aura in smell form
Hers was a smell of bleach
Soon after she would suffer a siezure
Sometimes it would be in the back of her throat

Headaches a big time sign a seizure was going to happen
Hers would increase in pain until migraine material would lingers for a short while and then she would say her I go and sure enough a seizure
She would tell me her headache would pop
after a seizure it would be gone just like that
This is what I hear you describe
Praying for you
I so understand
"This is not a way to live"
A slave I too allowed myself this kind of behavior not any more it hurts withdrawing from the ones we love to death
Something I had to do
I would hurt more with them in my life
How can that be
But it's my life
Hold on dear sister
Hold on
With each breath we take is our destiny final destination to be with Heavenly Father
Oh how happy we will all be
Love
Me

P.S. Along with aura i the sense of smell is just one of her auras
Along with the above she has constant visual aura hers she says is like a kaleidoscopice she will always have them
The way she controls her seizures is with. VNS implant wears a magnet on wrist watch like when she feels one coming on she waves it over the VNS above left breast and what this does is reboot her brain
Yup
Reboot the brain
Her vocals are temporarily affected very raspy
I feel all you pain
All of IT!
Paying attention

Quote:

Originally Posted by Wiix (Post 1242711)

Having four babies
Now adults
They were very healthy when growing up it wasn't until they were in their twenties
They all have something going on brain related
My boy suffer bi-polar in the worse way
Very afraid for him
Addiction highly prevelant
Went through so much with them
So much physical pain
They all have amazingly brilliant minds
All suffer migraines
For my girls during menses would be heightened
Just so amazed at what the body can and cannot do without the brain
Thanks
Me