SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 05-25-2014, 12:10 AM #11
Rimbanda Rimbanda is offline
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Quote:
Originally Posted by PamelaJune View Post
Hi Phil, good luck with the implant. There is a bloke on NT called Mark56, take some time to read his recommendations following your implant. He has coined it BLAST.
B No Bending
L No lifting
A it's an acronym and he had nothing for it, I included for myself ASK for help
S No stretching
T No twisting the body to put on seat belts
Truly the trial implant caused me no discomfort, more it was the frustration of the dang leads catching on things and the removal of the leads also caused no pain or discomfort at all.

Here are some extra suggestions to help you with the trial period to make sure you get the most out of it and also for when you have the actual implant done.

Post surgery
1. Follow Mark56 BLaST really limit bending, lifting, straining, stretching or reaching out and twisting - that includes being careful after number twos...
2. Have a stock of pre cooked or ready made meals in the freezer.
3. Don't stack or unpack the dishwasher, hand wash dishes as you go.
4. Move milk from bottom fridge door to higher point so as to not reach down.
5. Get someone else to clean house, load and unload washing machine, hang washing or put in clothes dryer and fold up on removal, strip beds and remake etc etc.
6. Have a friend or family member wash your hair if you need it washing, don't be tempted to do it yourself as you shouldn't be lifting your arms above shoulder height.
7. Remove anything like rugs or mats on the floor that could cause you to trip.

Once you have the implant done if trial successful, all of the above plus;

A. For the next 8 weeks every time you move imagine you are walking on ice and you want to take all precaution not to slip or fall. It will make you move slower and with emphasis on being careful.
B. Mark off on your calendar when you can begin to do things so you are not tempted to throw bales of hay, prepare celebratory meals, drive long distances, do the weekly shopping or get carried away with exercise.
C. Establish a routine to charge your battery and remember just because you feel good and look good doesn't mean it's all healed up inside....
D. Most of all, take your time and enjoy the recovery and journey back to living a full life.

All us SCS dudes and dudettes are here for you post surgery. Good luck and we will be thinking of you. :
Thanks Pam for the suggestions and support. I guess I'm getting real ansy about it as it looms closer. Got home from work around 0300 this morning and ended up not hitting the sack till about 3 hours later. Read through Mark56's BLAST and tried to work out how that was gonna work. Might be spending a night or two in the lounge chair till I sort things out. Still trying to work out if we are in a position for me to take 12 weeks off work after the implant. My PM is away for the whole of July so if the trial is successful it has to be very soon after or not till August or later. If I wait that long I might talk my self out of it.

Must remember to make a list of questions to ask tomorrow, like how soon you can do what etc.How soon before I can go back to work and what I can do there too. Not a lot in the way of light duties at work for me to do, and I'm guessing climbing up a ladder to get into a loco will be way out of the question.

Anyway thanks for listening, this is all an unknown for me so I appreciate the support and help that has come my way.

Phil
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Old 05-25-2014, 10:24 PM #12
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Thumbs up Phil

The main thing you need to remember to follow your restrictions that the doc gives you... If not you might end up like Rrae who pitched some bales to her horses. one of her leads slid down. Also if you can practice the BLAST it will help when you must do it.

z
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Old 05-26-2014, 03:47 AM #13
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Originally Posted by Rimbanda View Post
Thanks Pamela & Wingy for your feedback. It's always better to get real life experiences. Had a talk to the Nevro Rep on Friday as well and found out a bit more, so now just the nervous wait till Monday arvo.
Hi Phil,

Take one step at a time mate, see how you get on with the trial and what benefits you have before going ahead with a permanent implant, you don't want to be having all the disadvantages of a permanent unit without any of the advantages.

Sorry, not wishing to put a downer on things mate, but it ain't for everyone, but hey fingers crossed it will be good for you and you can then move onto the next stage eh.

All the best for Monday, oh and by the way, I too had no discomfort with the trial being fitted or removed.

Wingy
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Old 05-27-2014, 05:10 AM #14
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Quote:
Originally Posted by Wingy View Post
Hi Phil,

Take one step at a time mate, see how you get on with the trial and what benefits you have before going ahead with a permanent implant, you don't want to be having all the disadvantages of a permanent unit without any of the advantages.

Sorry, not wishing to put a downer on things mate, but it ain't for everyone, but hey fingers crossed it will be good for you and you can then move onto the next stage eh.

All the best for Monday, oh and by the way, I too had no discomfort with the trial being fitted or removed.

Wingy
Well, I spent my night in hospital and had the machine hooked up this morning and have made it back home safe and sound. Trying not to get my hopes up but after 9 or 10 hours I appear to be getting some relief in my neck and head which were the areas they were targeting. Same can't be said about a few other areas but they weren't part of the plan.

Even my lovely, extremely patient wife say my face isn't as strained as usual. So as Wingy said, fingers crossed and it will be all systems go. I realise it is only day 1, but I'm optimistic that these are good signs. I just have to make it through to Tuesday without doing anything stupid.

Thanks everyone for your support.

Phil
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Old 05-27-2014, 10:52 AM #15
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Originally Posted by Rimbanda View Post
Well, I spent my night in hospital and had the machine hooked up this morning and have made it back home safe and sound. Trying not to get my hopes up but after 9 or 10 hours I appear to be getting some relief in my neck and head which were the areas they were targeting. Same can't be said about a few other areas but they weren't part of the plan.

Even my lovely, extremely patient wife say my face isn't as strained as usual. So as Wingy said, fingers crossed and it will be all systems go. I realise it is only day 1, but I'm optimistic that these are good signs. I just have to make it through to Tuesday without doing anything stupid.

Thanks everyone for your support.

Phil

Sounds good so far eh Phil, glad to hear it all went well, see I said it won't hurt... much :-) Fingers crossed for you mate, take it easy for a few days now and rest assured when they take it out it should just slip out without pain, well mine did anyway.

Try and keep a journal of your pain relief, gives them a good idea for electrode placement if you go for a permanent unit.

All the best, Wingy
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Old 05-27-2014, 12:21 PM #16
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Quote:
Originally Posted by pooh_ac View Post
The main thing you need to remember to follow your restrictions that the doc gives you... If not you might end up like Rrae who pitched some bales to her horses. one of her leads slid down.
...................

Yes, it was completely the horse's fault. ...
Plus the good coverage I was getting combined with my post op pain meds, had me convinced that the rules didn't apply to me so I took the 'BLAST' rules for granted.

Anyway, all the best to you Phil for a good outcome and a speedy recovery.
I like what Wingy said about keeping a journal. Great idea!

Rae

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Old 05-28-2014, 05:13 PM #17
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Check up day today. Off to see the PM and the Nevro Rep. So far things have gone fairly well. Most (to the point of nearly all) of the pain in the neck has gone and most of the headaches are gone too, but the head still feels a bit woolly. The restrictions certainly keep you on your toes, it is so easy to just doing things like you used to. The Nevro Rep suggested wearing a neck support as a reminder and that seems to mainly work. :-)

My Lady has been an absolute rock, and I know that if we go ahead with the implant, she will be the only way I make it through the 12 week period.

Hope everyone's day is going as well as can be expected,

Phil
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Old 05-28-2014, 07:43 PM #18
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Quote:
Originally Posted by Rimbanda View Post
Well, I spent my night in hospital and had the machine hooked up this morning and have made it back home safe and sound. Trying not to get my hopes up but after 9 or 10 hours I appear to be getting some relief in my neck and head which were the areas they were targeting. Same can't be said about a few other areas but they weren't part of the plan.

Even my lovely, extremely patient wife say my face isn't as strained as usual. So as Wingy said, fingers crossed and it will be all systems go. I realise it is only day 1, but I'm optimistic that these are good signs. I just have to make it through to Tuesday without doing anything stupid.

Thanks everyone for your support.

Phil
You sound great
Heed to the warnings
Do
N o t h i n g
Like you said stupid
When permenent unit goes in
Let them leads fuse
Be patient
You sound great
and to be a success story
in the making
Lets keep it that way
I wish you much happiness with
your loving wife
Be safe
Me
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eva

Last edited by eva5667faliure; 05-28-2014 at 07:52 PM. Reason: Addition
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Old 05-28-2014, 10:37 PM #19
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Confused Decision Time

Check up went well. Nevro Rep was happy with the results and also pleased that I had done nothing to shift the wires. PM was also happy with the results, just have to wait for him to take the wires out on Tuesday. I'm penciled in to have the implant in the latter half of June, so we only have a little while to make up our minds. As fantastic as the last few days have been, it is still a BIG decision. More consultation and much thought over the next few weeks.

Phil
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Old 05-29-2014, 02:50 AM #20
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Quote:
Originally Posted by Rimbanda View Post
Check up went well. Nevro Rep was happy with the results and also pleased that I had done nothing to shift the wires. PM was also happy with the results, just have to wait for him to take the wires out on Tuesday. I'm penciled in to have the implant in the latter half of June, so we only have a little while to make up our minds. As fantastic as the last few days have been, it is still a BIG decision. More consultation and much thought over the next few weeks.

Phil
Good pain relief eh Phil... nice one mate!

The more benefit the easier the decision I reckon, it makes going for the permanent implant a more confident and positive experience eh.

I remember saying to my consultant after the trial; "but what if the implant doesn't give me the same benefit?", he said; " well we will do our best to tweak it till it does, failing that we will take it out again and think of something else!". All sounded fair enough to me mate... nothing ventured and all that stuff

Wingy
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