[Lurchy22]

Hi, I had the trial SCS put in yesterday. Procedure was so incredibly painful. Having to take all of my meds to help with pain in back, not just for my foot that has RSD.

I'm wondering if there is anyone else that has RSD in their foot and has a SCS. I would like to ask about their experience. My RSD is not constant and ebbs and flows. My foot is always discolored but it ranges based on outbreak. Activity makes it much worse so I'm going to walk around for an hour or so and see if it flares so I can really test the SCS. However, I'm not sure if the settings are right because I need to crank up the strength really high to mask the pain. At that point, I'm trading electrocution down my left leg and it is competing with the pain for attention.

Is that how this is supposed to work? For those of you that have something similar, are you trading electrocution for pain? If it is put into the right place and settings are correct, does it control the pain on a lower setting so you don't have to suffer electrocution?

Just remembered on other question. I am in international business and have to fly around the world. Are there additional risks?

Thanks so much.

[PamelaJune]

For me with the brand I have, there is no awareness of there being an electric power or thrum at all. Contact your rep and talk to them, they should be helping you with any early adjustments when in the trial phase.

Originally Posted by Lurchy22

Hi, I had the trial SCS put in yesterday. Procedure was so incredibly painful. Having to take all of my meds to help with pain in back, not just for my foot that has RSD.

I'm wondering if there is anyone else that has RSD in their foot and has a SCS. I would like to ask about their experience. My RSD is not constant and ebbs and flows. My foot is always discolored but it ranges based on outbreak. Activity makes it much worse so I'm going to walk around for an hour or so and see if it flares so I can really test the SCS. However, I'm not sure if the settings are right because I need to crank up the strength really high to mask the pain. At that point, I'm trading electrocution down my left leg and it is competing with the pain for attention.

Is that how this is supposed to work? For those of you that have something similar, are you trading electrocution for pain? If it is put into the right place and settings are correct, does it control the pain on a lower setting so you don't have to suffer electrocution?

Just remembered on other question. I am in international business and have to fly around the world. Are there additional risks?

Thanks so much.

[Lurchy22]

Thanks for the reply. I did have it reprogrammed by the rep which has made it a little better but it is still not what I expected. I have the Medtronic system and the rep said the electric pulse is normal but it shouldn't have to be too high. He believes the bottom lead (for my foot) may be covered in some spine substance and may slowly begin working better. Regardless, I still did not expect the way this works. I thought it was completely autonomous and just fired a signal to intercept the pain whenever it happened. Very disappointed.

I was really hoping this would be an answer but maybe my pain isn't constant enough. Besides, my back is killing me still so I will ask them to remove this tomorrow instead of waiting for my trial to end Thursday.

[Rrae]

I'm sorry it didn't work out for you. So are you doing ok since you had the trial removed? Sometimes it makes the original pain seem a lot worse after removing, but hopefully this is not the case with you.
Has your Dr suggested another venue?

Caring,
Rae