Any SCS Success Stories?

Rrae · 05-13-2014, 07:42 PM

Welcome!

Glad you found our little SCS/PP forum!
Believe me, I know how you are feeling!! After I read the brochure I ran and hid from my Dr for 2 more years.

. I thought for sure I would find Something that would work for me instead of this. But yeah, I went back to my Dr with egg on my face.

I am very happy with mine!! It's been 4 yrs! It does wonders as far as covering my burning RSD pain in both legs and little bit coverage in my lower back. Now if only I could get all my other issues fixed

You'll get lots of great feedback and support here so do stick around. There's plenty of ups and downs as you read thru the threads and posts. You'll get the real scoop here from real people. that's what I like so much about this place.
Check out the upper level of the forum, called the 'Stickies'. a lot of good info!
Here's a site that describes everything about the SCS better than any other I've come across:

http://www.mayfieldclinic.com/PE-STIM.htm#.UzmS_Y1OXIU

It's great to have you with us! Make yourself right at home!
Rae

pooh_ac · 05-16-2014, 06:48 PM

Hello and welcome to our world! Some of us here have had more issues then others mine is covering the area I originally had pain in and we have "tweeked" it several times for additional coverage in some areas. I am on my 3rd unit. 1st unit I ran through the battery in no time. My second one the leads were disconnected during a fall in which I dislocated my shoulder. This unit will be at its "end of life" in the next year or two I will have it replaced at that time. I can honestly tell you I would literally not been able to live any longer the way it was. It took YEARS for my diagnosis to be made. I saw many different orthopedic, primary care and pain management doctors. In the end I went to an orthopedic Dr who took care of the Nebraska football players. When he walked into the exam room he was looking at my xrays and reports from others, was sounding like the same old tap and dance, then he LOOKED at me, looked at my leg and told me without even touching me what my diagnosis was! He was quiet frank about the prognosis since it had taken so long to be diagnosed but he started me down the correct path. Im not saying the SCS is perfect but it does cover the areas that the leads were placed to cover. As my areas of pain spread I have had different treatments for those areas. There are other success stories on this site but most of those come around occasionally. Look for Mark56 threads for his entire journey through his own personal hell and back. Don't give up hope keep looking and keep trying to find what works best for you!

z

Wingy · 05-20-2014, 09:09 AM

I have had my Nevro Senza SCS for around four months, so still early days and being fine tuned, but so far I am really pleased with it and can generally reduce my pain levels by about 50% by using the different programs and power levels available to me.

Get a little bit miffed with charging every couple of days, but it's a small inconvenience and I am sure it will become habitual in time.

All the best, Wingy

Rimbanda · 05-22-2014, 05:29 AM

Quote:

Originally Posted by Wingy

I have had my Nevro Senza SCS for around four months, so still early days and being fine tuned, but so far I am really pleased with it and can generally reduce my pain levels by about 50% by using the different programs and power levels available to me.

Get a little bit miffed with charging every couple of days, but it's a small inconvenience and I am sure it will become habitual in time.

All the best, Wingy

Hi Wingy, thanks for your input.
How long does your battery last? The doc I spoke to today said it had to be recharged everyday, which isn't always convenient in my job. I am having my trial next week with the view to having the Nevro SCS fitted within a couple of weeks of the trial if all goes well. Starting to get butterflies about it.

Look forward to following your progress.

Phil

Wingy · 05-23-2014, 03:05 AM

Quote:

Originally Posted by Rimbanda

Hi Wingy, thanks for your input.
How long does your battery last? The doc I spoke to today said it had to be recharged everyday, which isn't always convenient in my job. I am having my trial next week with the view to having the Nevro SCS fitted within a couple of weeks of the trial if all goes well. Starting to get butterflies about it.

Look forward to following your progress.

Phil

I normally get 48hrs before i need to recharge, it helps if you can knock the power usage down a bit a night.

I find that I can charge up whilst doing odd jobs around the house no problem, just keep an eye that you are getting a good charge connection otherwise charging can go on a bit.

Good luck with the trial, hope it goes well for you.

Oh and remember that there is a wash in period (delay) before benefits are felt.

Wingy

PamelaJune · 05-24-2014, 04:45 AM

Hi Phil, I've got a Nevro Senza as well. In the main I charge every day, I do have mine on 24/7 and some days it charges quicker than others. There are also days when for one reason or another I miss charging, not often mind, but it does happen and it's not the end of the world. So long as you don't let it run completely out of charge there are no issues.

Rimbanda · 05-24-2014, 01:47 PM

Thanks Pamela & Wingy for your feedback. It's always better to get real life experiences.

Had a talk to the Nevro Rep on Friday as well and found out a bit more, so now just the nervous wait till Monday arvo.

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