SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 05-13-2014, 07:10 PM #1
ladyinpain ladyinpain is offline
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Default Any SCS Success Stories?

I was told that I would be a great candidate for the SCS. After watching the DVDs, reading the brochures, and watching videos of people who've had the SCS, I'm not convinced that I want to even do the trial. The success rates were really low. Is there anyone here with a success story?
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Old 05-13-2014, 07:42 PM #2
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Smile Hello ladyinpain!

Welcome!

Glad you found our little SCS/PP forum!
Believe me, I know how you are feeling!! After I read the brochure I ran and hid from my Dr for 2 more years. . I thought for sure I would find Something that would work for me instead of this. But yeah, I went back to my Dr with egg on my face.

I am very happy with mine!! It's been 4 yrs! It does wonders as far as covering my burning RSD pain in both legs and little bit coverage in my lower back. Now if only I could get all my other issues fixed

You'll get lots of great feedback and support here so do stick around. There's plenty of ups and downs as you read thru the threads and posts. You'll get the real scoop here from real people. that's what I like so much about this place.
Check out the upper level of the forum, called the 'Stickies'. a lot of good info!
Here's a site that describes everything about the SCS better than any other I've come across:

http://www.mayfieldclinic.com/PE-STIM.htm#.UzmS_Y1OXIU

It's great to have you with us! Make yourself right at home!
Rae
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Old 05-16-2014, 06:48 PM #3
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Heart Greetings

Hello and welcome to our world! Some of us here have had more issues then others mine is covering the area I originally had pain in and we have "tweeked" it several times for additional coverage in some areas. I am on my 3rd unit. 1st unit I ran through the battery in no time. My second one the leads were disconnected during a fall in which I dislocated my shoulder. This unit will be at its "end of life" in the next year or two I will have it replaced at that time. I can honestly tell you I would literally not been able to live any longer the way it was. It took YEARS for my diagnosis to be made. I saw many different orthopedic, primary care and pain management doctors. In the end I went to an orthopedic Dr who took care of the Nebraska football players. When he walked into the exam room he was looking at my xrays and reports from others, was sounding like the same old tap and dance, then he LOOKED at me, looked at my leg and told me without even touching me what my diagnosis was! He was quiet frank about the prognosis since it had taken so long to be diagnosed but he started me down the correct path. Im not saying the SCS is perfect but it does cover the areas that the leads were placed to cover. As my areas of pain spread I have had different treatments for those areas. There are other success stories on this site but most of those come around occasionally. Look for Mark56 threads for his entire journey through his own personal hell and back. Don't give up hope keep looking and keep trying to find what works best for you!
z
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Old 05-20-2014, 09:09 AM #4
Wingy Wingy is offline
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Default Hi

I have had my Nevro Senza SCS for around four months, so still early days and being fine tuned, but so far I am really pleased with it and can generally reduce my pain levels by about 50% by using the different programs and power levels available to me.

Get a little bit miffed with charging every couple of days, but it's a small inconvenience and I am sure it will become habitual in time.

All the best, Wingy
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Old 05-22-2014, 05:29 AM #5
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Default

Quote:
Originally Posted by Wingy View Post
I have had my Nevro Senza SCS for around four months, so still early days and being fine tuned, but so far I am really pleased with it and can generally reduce my pain levels by about 50% by using the different programs and power levels available to me.

Get a little bit miffed with charging every couple of days, but it's a small inconvenience and I am sure it will become habitual in time.

All the best, Wingy
Hi Wingy, thanks for your input.
How long does your battery last? The doc I spoke to today said it had to be recharged everyday, which isn't always convenient in my job. I am having my trial next week with the view to having the Nevro SCS fitted within a couple of weeks of the trial if all goes well. Starting to get butterflies about it. Look forward to following your progress.

Phil
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Old 05-23-2014, 03:05 AM #6
Wingy Wingy is offline
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Originally Posted by Rimbanda View Post
Hi Wingy, thanks for your input.
How long does your battery last? The doc I spoke to today said it had to be recharged everyday, which isn't always convenient in my job. I am having my trial next week with the view to having the Nevro SCS fitted within a couple of weeks of the trial if all goes well. Starting to get butterflies about it. Look forward to following your progress.

Phil
I normally get 48hrs before i need to recharge, it helps if you can knock the power usage down a bit a night.

I find that I can charge up whilst doing odd jobs around the house no problem, just keep an eye that you are getting a good charge connection otherwise charging can go on a bit.

Good luck with the trial, hope it goes well for you.

Oh and remember that there is a wash in period (delay) before benefits are felt.

Wingy
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Old 05-21-2014, 01:56 AM #7
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Quote:
Originally Posted by ladyinpain View Post
I was told that I would be a great candidate for the SCS. After watching the DVDs, reading the brochures, and watching videos of people who've had the SCS, I'm not convinced that I want to even do the trial. The success rates were really low. Is there anyone here with a success story?
I have my unit for 4 years this August. It's the best thing that has ever happened to me. After going from practically living my life from the bed to the couch I now can get out and about. I have failed back syndrome so my pain is in my lower back and both legs. This has helped me tremendously. I have had some tweaking some too and as the years have gone by my leads have settled in more which means less movement in them. This means I get better coverage too.
Best part for me is the relaxation it brings for me. Before I looked drawn. People told me I looked gaunt. But now I'm told I look so much better in recent years. And that's due to this stim helping me along the way.
There are lots of success stories on here. People from all walks of like and every type of ailment too. So well worth looking around the site and find their stories.
I hope it all goes well for you and that this is helpful
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