Anyone with an SCS for small fiber ?

Hopeless · 06-19-2014, 10:46 AM

Does anyone have any experience with a spinal cord stimulator that suffers from small fiber neuropathy?

If so, please share your experience.

Thanks

pooh_ac · 06-20-2014, 10:03 AM

Quote:

Originally Posted by Hopeless

Does anyone have any experience with a spinal cord stimulator that suffers from small fiber neuropathy?

If so, please share your experience.

Thanks

Sorry I have not. Mine is for the dreaded RSD. However there may be others who have. However there are many here with SCS. We are a helpful listening bunch!

Rrae · 06-22-2014, 02:54 PM

Good to see you! .....well, not good in the sense it's b/c of pain. U know what I mean

I was actually given a 'dual diagnosis' of SFPN and RSD. Which is confusing in and of itself. But nonetheless the horrible constant burning pain is what was driving me out of my mind (literally). Both legs and lower back.
My Neuro diagnosed my small fiber PN via nerve conduction study proving nerve damage. But my PM diagnosed me as RSD via diagnostic nerve block injections. since I reacted favorably to the blocks (even tho very short-lived), he said that I'd be an excellent candidate for the SCS. My doctor's notes describe it as 'Radicular' nerve pain (Radiculopathy) and Bilateral lower extremity RSD b/c the nerve pain (neuropathy) stemmed from an injury.
So here I am with a unique diagnosis all mixed up

in a great big pot of poop stew!

Anyway, I did go thru with the SCS Implant and it works wonderfully as it covers over the burning pain with a soothing 'cat purring' sensation. I was pleased that it even helped to cover my lower back pain somewhat.

Some have claimed RSD spreading when getting the unit. I didn't have any spread thankfully but I did end up with back spasms which are disabling. However in my case the spasms didn't occur until after it was discovered that one of my electrode leads had migrated (actually it came completely detached). This could be b/c I didn't mind the post-op rules as well as I probably should have. My doctor said it could be fault on his end as well, we'll never really know.

I hope I've helped rather than confused

. Each case is unique unto itself. But the feedback I would have to offer is that yes, I'm happy with my unit. The good thing is that you do the trial implant first. This will give you a very good idea if this would be right for you or not.

Please let us know what you decide! It's a heckuva process, but with the support we get here, it makes it all SO much easier.

Rae

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