SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 09-20-2014, 04:22 PM #1
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Exclamation Reunion Pleeeze!

Where IS everyone??

I'll be the first to admit that I've been MIA.
Our sweet little forum has nearly come to be a ghost town. Thank you for the faithful ones who've kept the gate open

Slow seasons come and that's what we're in. I know some are still lurking....

It would sure be nice to hear from everyone and get an update on what's goin on in our lives.

I really do feel bad for not being on here regularly this past year.
It's been a very challenging year that's for sure. I am happy to share that my SCS is still doin good. However, I've been having some pretty bad issues with my spine. The back spasms have all but sent my sanity somewhere and I'm still looking for it. I recently found out that I've been walking around with 2 (maybe 3) ruptured discs for the past few yrs. Was led to believe that I had degenerating discs and nothing was done about it.
I will find out soon if I need surgery or what other options there may be.

Anyway, that's my update.
I hope everyone is doing ok......let us hear from you!

Rae

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Old 09-20-2014, 10:33 PM #2
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Confused

I've been here and there as well. But...Rae,you're right; we need to do a little less lurking and come up with some ideas; especially getting thru some of those "awful" days.

Just responded to Saffy. She's having ups and downs too!!!!


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Old 09-21-2014, 02:59 AM #3
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Hi there, I'm guilty as charged of lurking and offering occasional fluff. Maybe it's the cycle of all things, we come together in bursts and at times of need and drop off again for a bit as things in our lives wax and wane. I am forever grateful to NT'rs who continue to get me and remain a constant in my unsettled life. I'm having the 2nd lead implanted this Wednesday under my new pain mgt doctor. He seems very nice and was completely understanding of my pain. I'm feeling quite nervous about the procedure given the last attempt was a failure with a 1hr procedure becoming 3 hours and the struggle to get the lead inserted in the spinal canal due to floating bone fragments blocking its passage. I worry the dura could be pierced again or worse, damage caused to the spinal cord itself. My husband has been seriously ill with Legionnaires disease (again) and it's been a tough 6 weeks. He will not cope well if something happens to me. So much to worry about!!
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Old 09-21-2014, 08:31 PM #4
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Default Pam,

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Originally Posted by PamelaJune View Post
Hi there, I'm guilty as charged of lurking and offering occasional fluff. Maybe it's the cycle of all things, we come together in bursts and at times of need and drop off again for a bit as things in our lives wax and wane. I am forever grateful to NT'rs who continue to get me and remain a constant in my unsettled life. I'm having the 2nd lead implanted this Wednesday under my new pain mgt doctor. He seems very nice and was completely understanding of my pain. I'm feeling quite nervous about the procedure given the last attempt was a failure with a 1hr procedure becoming 3 hours and the struggle to get the lead inserted in the spinal canal due to floating bone fragments blocking its passage. I worry the dura could be pierced again or worse, damage caused to the spinal cord itself. My husband has been seriously ill with Legionnaires disease (again) and it's been a tough 6 weeks. He will not cope well if something happens to me. So much to worry about!!


Please let us know how all works out with the surgery. Prayer are with you for both you and hubby.


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Old 09-21-2014, 10:35 PM #5
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Default lurking

I am lurking also, don't want to burden the room with my "stuff" things pretty much remain the same
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Old 09-21-2014, 11:48 PM #6
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I am lurking also, don't want to burden the room with my "stuff" things pretty much remain the same

Not a burden. I really go out of my way to look if you have posted. I am amazed at the service you perform for so many when you yourself are dealing with so much pain.

I'm going back many, many, many years ago when I was in labor and was brought into the delivery room early. One of the nurses comforting me was herself pretty far along with her pregnancy. I remember thinking at the time she is watching me having some pretty nasty contractions knowing soon she herself would be enduring the same thing. It's something how certain things stay in your mind. I had so admired her for being with me.

Your posts, at times, have brought me back to that night/a.m. so long ago.


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Old 09-27-2014, 02:38 AM #7
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Yup I'm here too. Lurking!!! Occasionally I do drop in and give my tuppence worth but mostly just read.

All going well with my SCS and life is pretty good. Thank God

I will keep on lurking and try to post more









Quote:
Originally Posted by Rrae View Post
Where IS everyone??

I'll be the first to admit that I've been MIA.
Our sweet little forum has nearly come to be a ghost town. Thank you for the faithful ones who've kept the gate open

Slow seasons come and that's what we're in. I know some are still lurking....

It would sure be nice to hear from everyone and get an update on what's goin on in our lives.

I really do feel bad for not being on here regularly this past year.
It's been a very challenging year that's for sure. I am happy to share that my SCS is still doin good. However, I've been having some pretty bad issues with my spine. The back spasms have all but sent my sanity somewhere and I'm still looking for it. I recently found out that I've been walking around with 2 (maybe 3) ruptured discs for the past few yrs. Was led to believe that I had degenerating discs and nothing was done about it.
I will find out soon if I need surgery or what other options there may be.

Anyway, that's my update.
I hope everyone is doing ok......let us hear from you!

Rae

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Old 10-01-2014, 09:36 PM #8
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Cool Sigh

sigh just sigh
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Old 10-01-2014, 10:00 PM #9
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Quote:
Originally Posted by pooh_ac View Post
sigh just sigh


Unfortunately, some days that's about all one can do. Not sure it's the change in weather; but feel even more sluggish. Takes the legs quite a while to wake up in the morning.


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Old 11-30-2014, 10:11 PM #10
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Default Sighing RX = Reunion

I guess Rrae was right.....a reunion is needed. Pooh has invited an assembly at Nowhere on the Hundred Acre Wood. December the time.

Y'all come.
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