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-   -   Another VERY Curious SCS Member - PLEASE HELP? (https://www.neurotalk.org/scs-and-pain-pumps/222850-curious-scs-please-help.html)

ger715 08-10-2015 11:37 AM

Quote:

Originally Posted by anickstairs (Post 1156797)
worked in the trial....and THEN the real deal....didn't work....ouch!


Since the trial is not as invasive; especially minus is the pocket/incision for the battery which is taped at the time of trial can really make a big difference with much less pain.

Many, who seem to be happy with their SCS deal with issues like spasms, etc. ; but often those issues outweigh the plus they do get from their stimulator.

Hopefullly, once all the healing is complete, you will notice some additional relief.


Gerry

Gunny Fitz 08-11-2015 12:10 PM

Thanks Gerry.
Have a couple other procedures I must try out before insurance will authorize the SCS. just had the Coolief RFA and suffering through my post surgery pain now.

ger715 08-12-2015 10:53 PM

Gunny,
 
Quote:

Originally Posted by Gunny Fitz (Post 1161844)
Thanks Gerry.
Have a couple other procedures I must try out before insurance will authorize the SCS. just had the Coolief RFA and suffering through my post surgery pain now.


My post was in response to "anickstairs" because he had mentioned his trial WAS successful; but the actual implant of the SCS is not giving him the same relief and his pain is much worse.

Hope your post surgery pain is getting much less.

Take care Buddy.


Gerry

full_moons_of_hope 08-14-2015 02:07 AM

SCS trials
 
Hello my name is Mandy.
My sympathy goes to you and others that are like us "living in pain and with not many appealing options for treatment"

If I was in your shoes I'd try the SCS especially if you can test drive haha

(My Pain mgmt Dr. offered me a trial run for 7days which sounded like it was great and then he reviewd my patient file again 1 week before my scheduled trial and said I wasnt a candiate because of my severe allergy to nickle.. the leads that touch your spinal nerve tissue are NICKLE so I am in hopes that the Medtronic manafacturing company would make copperwired leads in the nearfuture and other pain relieving devices to be made with materials or to have optional selections for people like me that are allergic to Latex and Nickle..

My qwik story:
I got injured on the job 2012
2014 got dianosed Permanently disabled
I got permenant RSD and CRPS Nerve damage

So yeah
I have tried all the B.S meds and Ten's and
tried therapy and so far..
a heavy dose of Lyrica is keeping me feeling more human again (but only after i weened from the Rx muscle relaxers i was told to take with it) the dizzy icky feelings i had was the clash of the cocktail lol

I also have to wait and deal with all the B.S from my work insurance because they are still #$%^! and drag ___ on treatments and filing the RFA's paperwork.. :rolleyes:


Stay strong and Never give up!!:OuttaHere:
Mandy~

eva5667faliure 08-14-2015 09:16 AM

Hi Mandy
Happy to meet you
So sorry
So sorry
I too just lost the sweetest job ever
My break after hard labor most all my life
Be ever so careful
There is this cunning creature
that like to feed on those who are
feeling down and low about ones status
I need you to be be very aware of this
I pray for persons like us have hope to a
possible solution
Here is something I want to share with you
AGAIN for persons who like you allergic to NICKLE
my body allergic to manyyyy medicines
I do not know how to make up a link
I think that is what it's called
Here goes
Intriguing stuff

Type in
Dr. Kevin Tracey of neurology in NYC. N.Y.
Once in there
Go into a short read about my hope
"Can the nervous system be hacked"
Kindly take into consideration
My eldest child is a epileptic
Had part of her brain removed
Occipital lobe controlling right eye sight
Hopes to remove where the seizures were beginning
It was considered unsuccessful as she post op still
suffered seizures
Sad to say for her the trade off was permanent loss of
sight in her right eye
So the next surgery was
A vagus nerve stimulator VNS

With this information I just gave you
And the purpose of a VNS
IS TO REBOOT THE BRAIN WHEN
A SEIZURE BEGINS
who's to say the pioneering new idea such as this doctor
ISN'T FAR FETCHED
My pain specialist shot me down when bringing this info
to him
I was so sad
Love
Me

P.S. so much for quick reply
All

Aggiecjp 08-21-2015 01:10 PM

My cervical SCS
 
I have been battling cervical pain for over 20 years. I have undergone 4 surgeries including a three level fusion (C4,C5,C6,& C7). I had the SCS implanted about 4-1/2 months ago. It took me a couple of months working with the Medtronic tech to get a program which targeted the correct locations on my neck and shoulder blades. I now keep the SCS on 24/7. It does help. I still take meds as well, but the combination of the scs and the meds has gotten me to a point that I feel much better and have even played 2 rounds of golf. I and working with the pain management doc to reduce some of my meds. I must say that the sensation generated by the device was hard for me to adjust to but I now sort of enjoy the feeling.
Since the neck is so mobile, you get different stimulation depending on the neck position. This also takes time to adjust to. Overall, I am happy to have the device.
I must also note that after the surgery, I developed an infection which led to septic shock, 8 days in the hospital and deep vein thrombosis. I nearly died, but ultimately pulled thru it all and am now moving forward. Not pain free, but improved.

Mark56 08-21-2015 11:55 PM

Aggie- thank you so for sharing your path! That has been such a trauma filled journey! I am thrilled to know you did come through it all, that the SCS is helpful to you, and that you have been out golfing! WOW!

May all be well with you,
M56

eva5667faliure 08-22-2015 08:12 AM

Quote:

Originally Posted by Aggiecjp (Post 1164760)
I have been battling cervical pain for over 20 years. I have undergone 4 surgeries including a three level fusion (C4,C5,C6,& C7). I had the SCS implanted about 4-1/2 months ago. It took me a couple of months working with the Medtronic tech to get a program which targeted the correct locations on my neck and shoulder blades. I now keep the SCS on 24/7. It does help. I still take meds as well, but the combination of the scs and the meds has gotten me to a point that I feel much better and have even played 2 rounds of golf. I and working with the pain management doc to reduce some of my meds. I must say that the sensation generated by the device was hard for me to adjust to but I now sort of enjoy the feeling.
Since the neck is so mobile, you get different stimulation depending on the neck position. This also takes time to adjust to. Overall, I am happy to have the device.
I must also note that after the surgery, I developed an infection which led to septic shock, 8 days in the hospital and deep vein thrombosis. I nearly died, but ultimately pulled thru it all and am now moving forward. Not pain free, but improved.

after all that
then the deadly infection
so so thrilled to hear
you are safe and clear
of infection
it is wonderful to hear another
successful SCS story
enjoy life
love
me

Gunny Fitz 09-25-2015 09:18 AM

Hello All-

Since its been a minute since no one has heard from me, or each other, I just thought I'd say hello and that I am still above ground for the moment, and wanted to send something out saying hello and report I have literally had 3 surgeries in the last 30 days and survived it pretty well. So anyway, may hurt in several places and feel a bit kicked in nut sack at times, but we all get thru that after awhile (A good while!) so no one may think I ate my Glock (not C***) I figured Id say hello to everyone.

Hope you all are doing ok, keeping your heads in the game. and finding SOME WAY, ANYWAY, to beat the demons back enough to keep our nose above the waterline. I realize this is a HUGE challenge and easier said than done, so you are NOT alone my friends! I am right there every damn step of the way!

If anyone has ANY questions of me- feel free to let them fly! Whether in public or PM I don't care - though some may only be answered in PM. After all, I have a professional life to live in a very professional occupation I never know who may bead thru this site ya know? Other than that Im an open book. And ALIVE!

Best to you all and stay motivated out there my friends!

Guns :)

ger715 09-26-2015 12:22 AM

Quote:

Originally Posted by Gunny Fitz (Post 1173423)
Hello All-

Since its been a minute since no one has heard from me, or each other, I just thought I'd say hello and that I am still above ground for the moment, and wanted to send something out saying hello and report I have literally had 3 surgeries in the last 30 days and survived it pretty well. So anyway, may hurt in several places and feel a bit kicked in nut sack at times, but we all get thru that after awhile (A good while!) so no one may think I ate my Glock (not C***) I figured Id say hello to everyone.

Hope you all are doing ok, keeping your heads in the game. and finding SOME WAY, ANYWAY, to beat the demons back enough to keep our nose above the waterline. I realize this is a HUGE challenge and easier said than done, so you are NOT alone my friends! I am right there every damn step of the way!

If anyone has ANY questions of me- feel free to let them fly! Whether in public or PM I don't care - though some may only be answered in PM. After all, I have a professional life to live in a very professional occupation I never know who may bead thru this site ya know? Other than that Im an open book. And ALIVE!

Best to you all and stay motivated out there my friends!

Guns :)



Hi Gunny,

Good to hear from you. Hope the surgeries at least lessened the pain a bit. Glad to know your are ALIVE and busy with your very "professional occupation".

We're hanging in there; we have "demons" to beat.

Take care buddy,



Gerry

Gunny Fitz 11-03-2015 06:15 PM

Sorry to All
 
Hello Everyone

Just stopping by to say hello to you all and that I'm extremely sorry for having dropped off the map as I have. So many things have transpired that I don't even know where to start my friends. I've had at least 5 surgical procedures since last checking in here and wanted to say that my new Doc is so awesome that I've actually felt some relief for the first time in 11 years!

Sure I'm still taking the pain meds and will come back real soon to break everything down for you with which procedures and all. Hoping you are all hanging in there and don't think for one moment I've forgotten you folks! ;)

Ttyl all

Gunny

EnglishDave 11-03-2015 06:33 PM

So pleased to read about your relief, Gunny, you deserve it. Hope you continue to improve under your new Doc.

Dave.

Littlepaw 11-03-2015 09:30 PM

Hi Gunny,

I am thrilled you have gotten some much deserved relief! What a blessing for you. Enjoy that, take some time to really soak it in and fill us in whenever you like. It is good to take time just for you.

Sending hugs and healing love, :hug:

eva5667faliure 11-06-2015 09:07 AM

Amen to any kind of relief
Without having to take the Meds
I you and many are FORCED to take
Even then it's just by chance it will work
God be with you
Thank you for sharing

Gunny Fitz 11-21-2015 12:09 AM

If you were helping me out over here i just posted a novel of one thread on the latest HERE and wanted ya to know my friends!

http://neurotalk.psychcentral.com/sh...38#post1184638


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