Another VERY Curious SCS Member - PLEASE HELP?

EnglishDave · 07-15-2015, 05:00 PM

Hey Gunny,

Sorry about the withdrawals, but try to melt into the relief of the reduced neck and head pain as much as you can. You know there is much more to come now that you have started a positive course.

Hope the easing will act as a mood elevator in the long run. You know we are always here when the storm clouds gather.

Dave.

Gunny Fitz · 07-15-2015, 07:17 PM

Damn, how is it you all are so great? Lol

I truly cannot thank you all enough, why didn't I find this forum long ago when I was REALLY REALLY bad and admitted myself into the intense PTSD program at Baltimores VA Hospital? You're all the greatest folks a friend can ask for!!

Gunny Fitz · 07-16-2015, 03:15 AM

2 AM and I'm still awake, writing a song
If I get it all down on paper, it's no longer inside of me,
Threatening the life it belongs to
And I feel like I'm naked in front of the crowd
Cause these words are my diary, screaming out loud
And I know that you'll use them, however you want to

Just a little song for you folks who are awake at the same awful hour due to pain racking their bodies. (Though is a good song anyway if you know the entire thing n who sings it-lol)

Mark56 · 07-17-2015, 07:25 AM

Hey kiddo....we do know that up at 2 thing
When it hurts it hurts
If you get the words, lyrics, tune out...that is a good thing.
Just keep on keepin on
It'll work out
Then get
Some rest, the best you can

Got your back,
Us

Gunny Fitz · 07-17-2015, 09:30 PM

Hi Mark.
Appreciate the kind words and thoughts.
Only puzzling thing I'd the "Kiddo" thing since I'm A LOT older than you may think my friend, unless youre in your 70s or something? Lol

Mark56 · 07-17-2015, 10:28 PM

Something I have used to refer to people meaningful to me
No offense meant
I reckon we are not that far apart

Rrae · 07-18-2015, 04:51 PM

Good to meet you!
Thank you for your service and sacrifice to this wonderful country of ours **meaningful fist bump**

Thanks for posting your background. It's heart wrenching to read, that's for sure. The good that comes out of each of our experiences is the fact that here we are, all together in a place where we can share and understand on a level that many people just don't quite 'get', though our friends and family do the best they can to be supportive. Living with chronic pain and the depression that it can bring is something that is hard to comprehend to others, unless actually having experienced it themselves.

I've been MIA from NT for quite awhile, but it sure is good to see the ol' gang still here being absolutely wonderful (as always)

So much heart and soul comes from this wonderful group. Isn't it amazing?
I remember when I first came here feeling completely alone, scared, drained of hope, and not having a clue what an SCS was. I live in a very rural area where information on these pain issues and medical options is few and far between.

I'm in my 5th year of my lumbar SCS. Love it!
It does a great job of covering over the horrid burning neuropathy/RSD pain in lower extremities. It feels like a cat purring.
As this 'kiddo'

ages however, I've been dealing with other painful issues, mainly in my lower back (DDD, ruptured disks, bla bla) in which the SCS can't do anything for, so I still take strong pain meds unfortunately.

In reading thru your thread, it's obvious that your pain is not being adequately controlled, thus you run out too early. I wonder if your Dr would consider putting you on pain patches? Have you tried those?
I wish I didn't have to take anything, but for the sake of quality of life, I am grateful for my Fentanyl 50mg patches that I change once every 60 hours.No ups and downs with withdrawals to worry about. Just thought I'd throw that out there....

So, how are you feeling at this point about doing the trial SCS since you've received all this wonderful input? I'd say go for it. It certainly isn't for everybody, but the trial will sure give you an idea. If it's not right for you, such as in Ger's case, she opted to not go thru with the permanent.
**Thank YOU Ger for being such a big part of the backbone which makes up this wonderful forum!**

I wish you the best Gunner, as you sift thru your options.
You've got a wonderful supporter! Your dog is so sweet!
Please keep your thread alive and keep us posted!

Caring,
Rae

anickstairs · 07-22-2015, 08:18 AM

I have had nothing but the worse pain and more meds since my SCS 4 weeks ago...and It aint over...now serious upper stomach stuff goin on,. put me in OR 3X.....Listen My FRIEND....U could take a shot...I did....Maybe it will be better...maybe it won't. If yer a gambler..ok...if not...keep the drugs handy. Wish I Did. God Bless U.....Thanks for Protecting OUR COUNTRY!!!!!!!!!
NY Nicky

anickstairs · 07-22-2015, 08:23 AM

worked in the trial....and THEN the real deal....didn't work....ouch!

Mark56 · 07-24-2015, 11:04 PM

So sorry to know it did yet work for you! You are living the very reason I lay awake the night before my stim implant.....because it MIGHT not have worked for me.... That was my fear. At least in my situation fear did not become reality.

Has your doc suggested you just dial down your stim to a very low setting....or turn it off altogether? I was just wondering whether they are trying to eliminate triggers for your additional pain.

Hoping things resolve for you.
M56

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