Hang in there
 

My first 3 months was a real let down to and I'm so sorry you have other issues now kicking in. Don't give up on the SCS just yet, mine really only became noticeably effective in December 2014. Some 12 months after I had it fitted. I have read that paddle leads are worse than percutaneous leads as they scrape out some of the lamina to put the chip in and the lamina pain hurts for months on end. My laminectomy in 1977 still caused pain some years well into the 80's, but I was younger then and more stubborn and refused to give in to my new companion (pain). Hope you can get some relief soon :hug:

Hi there
 

Welcome back mam, we missed you. I confess I have been absent a lot as well, being back and working is good, but it is painful and tiring some days and I fail to log in and touch base with my wonderful NT friends. :hug::hug:

Pamela
 

Yeah, I do remember as well that with the SCS implant it was the laminectomy which took quite a while to resolve. No problem anymore, though!

How about the RRae, huh? Yep she bounces back just full of vim and vigor as though never missing a beat? Pretty cool!

M56 :hug:

Hey Gunny ! I'm Debi...nice to meet you :)
 

From Rrae's post:

"In reading thru your thread, it's obvious that your pain is not being adequately controlled, thus you run out too early. I wonder if your Dr would consider putting you on pain patches? Have you tried those? I wish I didn't have to take anything, but for the sake of quality of life, I am grateful for my Fentanyl 50mg patches that I change once every 60 hours.No ups and downs with withdrawals to worry about. Just thought I'd throw that out there...."


Thank you for your service to our country......I'm an Air Force brat and my dad served 2 tours in Vietnam. He wasn't physically wounded but the mental wounds never left him. God Bless Him and you.

I wanted to comment on Rrae's pain patch shout out.

I'm on BuTrans patch 20 mcg/hr plus Percocet 10-325 three times a day. It started out for breakthrough pain but I have to take them everyday so it's actually part of my treatment plan. This patch didn't change my life but it does help tone down the pain. I know this because I went without one for 5 days at the beginning of the year and was in horrible pain. At least that showed me they worked...lol

I have small fiber neuropathy that affects my feet, legs, hand and arms. Sometimes my jaw and teeth :)
My skin punch biopsy in Sept 2013 showed no A or C fibers left in my feet.

Due to those results my pain mgmt. dr wants me to try an SCS. He was honest with me and said I might get only 50% relief in my legs and feet but he feels this is my best option for a better quality of life. Being home 99% of the time is NO life whatsoever.

I've put off doing the trial due to fear of having something implanted in me :) Just kinds freaks me out but I may try the trial after the 1st of next year.

My husband had major surgery on May 20th (cervical schwannoma tumor removed, they operated neck, front and back. 10 hour surgery) and he's having a very hard time recovering. I won't even be able to consider a SCS trial until he is back on his feet and able to help me.

Sorry the post is so long but I haven't written on here in a while. Been reading all the posts though so I wasn't gone :)

The BuTrans patch is only changed once a week which is very convenient for me.

Take are and please keep us posted.

This is a very special place that I found in 2013 and so very glad that I did. These people are amazing and always ready to help in any situation.

Debi from Georgia

PLEASE don't think I am not out here reading these from time to time my friends!
Matter of fact I received an OUTSTANDING Private Msg from a member here who truly opened my eyes to SCS and all. I check in when i can but i admit it should be more, because you folks are super and I appreciate every one of ya. KEEP EM COMING and much appreciated folks!

Gunny ;)

hello Gunny

my name is Eva
i have been following your story
hats off to you and ALL divisions of
what makes our military defense as a whole
to say thank you for you made it back
many that perished in fighting for our continued
FREEDOM
to have men and women take on the role
to protect me my family and the rest of us
who many forget
we
this country a melting pot
of every nation living as one
you have come back maimed
i am so grateful for the sacrifice

you have stepped into a world of
so much knowledge on the SCS
and been Graced by this community
what better way to informed yourself of
the device but with persons who share their
experience strength and hope with the SCS

your furry companion is what has
a hold on me
a animal lover myself
to have your furry love must
without no doubt has been the
most comforting being in this
moment in your life
a beautiful animal
to understand their owner their pal

i won't speak of myself
just know i understand
i am not a recipient of the SCS
i was just to scared of another surgery

the amount of knowledge is endless
and what may not work for one
might work for another

don't stop sharing
your experience strength and hope
is very much needed

Graced we are when we encounter neurotalk
bless we are to know you
be safe
and give some sugar love to your furry partner
may your walk in life be magical
you and many others like yourself
deserve it
love
me

Hello everyone!
As I just explained to another great and knowledgeable member here who was kind enough to share some deep info on many issues via PM- that iI've been off the radar alot lately and not even signed on to this site nor many other forums I live on for both my Ducati and Dodge diesel. So sorry I haven't responded to anything here at all friends!

I've been fighting off demons of depression, PTSD, suicidal thoughts and all sorts of crap for a few weeks. I go for my Coolief RFA next Friday and hope it does what it's supposed to do w burning the nerves in a larger area this time as explained in the link to the procedure I posted in an earlier reply (I think I did but too lazy to even look back at all my posts) guess you could say I'm in another deep rut and have a bit of trouble shaking this one off. ;)

So please don't let me absence and lack of replies mean anything adverse to you all, because I SERIOUSLY appreciate everything you write and pass onto me here my friends! It means more than you'll ever know and I absolutely love seeing a new reply or PM notice when I open the site up ! I am out here and will try better to keep up my end by keeping up w my responses to you kind folks! Not to sound too corny with this - but I love you all for the things you say and help you provide! :)

Gunny out.......

Pm. I'm gonna put up a thread on this for all the Vets in this forum but figured I'd mention to you all since you're my closest family within. It's an organization that solicits all Vets or even active / reserve military troops to become part of the crew which handles all the work on race bikes and cars during any competition events. I met the founder last year at a pro bike race in Jersey and he showed me around to all the Vets who were helping race tears work on the bikes. It's a pretty cool idea to involve Vets in something they enjoy doing and being part of a team that keeps these Pros going! Check out the site if you wish and if you can think of anyone who'd be interested at all feel free to have them contact me. ;)

http://www.vetmotorsports.org/

Hey Gunny,

Don't let those Demons drag you down - you know we will always be here to support and try to lift you whenever you need. Work to your own timetable, but please do not isolate yourself.

Looking forward to hearing positive results from your upcoming treatments.

Thinking of you.

Dave.

If you all keep up these nice comments and support I just may Crack a smile, which I haven't done in years! :)

Hey Gunny,
 

Thanks, You have me smiling :) and it's just about midnight here.



Gerry