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SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions. |
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03-04-2016, 04:30 PM | #11 | |||
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Grand Magnate
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i am happy you have not only an advocate but she is your wife i want to say i so understand signing off i was at a annual pap test i too NEVER EVER FACTORED IN MY LIFE "what if i get sick as we both are" just not to long ago april will be a year my termination of my municipal job i am reduced to be in my bed most times to recoup when getting a wind or burst of some energy here goes then i was asked FOR THE VERY FIRST TIME HAS IT BEEN REFERRED TO "so your retired" i just burst into tears i so get it and i really sympathize with you Dave be careful depression is cunning be careful and try to get back to keeping a journal you would be surprised to find some missing questions be well as well as you can be i feel you loss and we are still young mine began feeling like i had a stiff neck oh how that was not the case take care friend me
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"Thanks for this!" says: | PamelaJune (03-04-2016) |
04-01-2016, 12:03 AM | #12 | ||
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Junior Member
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Well... My headaches and light sensitivity have returned. I was scheduled to get my third blood patch Friday 4-1. Unfortunately my insurance company is playing games and won't approve it to be done at the same facility I had it done at in January. However they did approve it to be done at his office but not at the surgical center. I really don't want to be awake for it. At the same time I don't want to wait a week or two for them to find a place I can be put under.
If anyone reading this has had a blood patch while being awake, please reply or PM me. If you have not, please don't reply! I want to keep this thread free of BS so anyone considering a pain pump can read what I've had to endure. Thank you so much, David Sent from my iPhone using Tapatalk |
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"Thanks for this!" says: | eva5667faliure (04-03-2016), PamelaJune (04-01-2016) |
04-01-2016, 07:57 PM | #13 | |||
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Senior Member
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David, I had my first blood patch done in hospital, the 2nd one a few years later at his practice. I had the choice of a local or local with twilight sedation, I chose twilight so don't really remember much of the experience other than the pinching when they injected the local. It went well, headaches dissipated. Sadly, they can return!
I opted for twilight because I have had a number of spinal injections and punctures done just under local, each time they hurt like hell and I vowed after the last I will never have anything done under a local again (not even the dentist). My GP explained my body is long used to a high level of pain relief to cover my pain, any extra pain, no matter how small can seem intolerable so a local anaesthetic often won't get the desired result. Do ask your doctor if they offer sedation at his office, if not, lobby your insurance company or ask your doctor if he practices at another facility (they often do) and see if insurance will approve that one. Quote:
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"Thanks for this!" says: | eva5667faliure (04-03-2016), ger715 (04-02-2016) |
04-24-2016, 05:53 PM | #14 | ||
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Junior Member
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Update....
I had the blood patch done at his office #3. I couldn't wait any longer because the headaches and light sensitivity were so bad. I haven't been able to give an update because the patch didn't take. In fact I think it got worse. The light sensitivity is so bad I can't look at my computer screen or phone. My wife and I spent the last two weeks trying to get in to see a specialist. My appointment was this past Friday. We thought I was going to have some kind of leak test / study done. Well, the only order the doctor had was for a blood patch #4. Several phone calls were made Friday morning to rectify this. Unfortunately the leak test wasn't going to happen. I was in so much pain, I wasn't about to leave without anything being done. So I went ahead with blood patch #4. If and or when this one fails we have a plan in place. The specialist was great. I believe I'm in good hands now. I'm posting this now because when the light sensitivity comes back I won't be able too. I hate to say it, but I don't think this latest blood patch is working. I was feeling good yesterday but today some symptoms are returning. I'll know for sure if it worked or not by Tuesday. Fingers crossed! David Sent from my iPhone using Tapatalk |
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"Thanks for this!" says: | eva5667faliure (04-25-2016) |
04-24-2016, 06:18 PM | #15 | |||
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Senior Member
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David, post the procedures have they got you lying completely flat for up to 4 hours or more? When coming home from the office are you sitting up in a car or lying flat?
Blood patches don't always take, quite often they need to find the exact point of leak but that can be extremely hard. My mum was in hospital for 4 months, had numerous blood patches, scans of all different sorts and they never found the exact spot. She even had tissue gauze stuffed up her nostrils for 24 hours, they were able to determine through testing the gauze there definitely was a leak but that was it, nothing more and the blood patches, unlike mine, never took. Post mums procedures they allowed her to get up and go to the toilet and move around in the bed, they were not strict with her at all. Post my procedures, each time, I was on strict lay flat for 4 hours, they even gave me a catheter for the first one so I would not need to get up. There is hope however, 15 months on, she lives a good active life and her headaches and vertigo don't seem to bother her as much as they did, and has not needed to go to hospital again. Stay strong, I hope you can get some answers soon Quote:
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"Thanks for this!" says: | eva5667faliure (04-25-2016) |
04-24-2016, 09:35 PM | #16 | ||
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Junior Member
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I spent several hours lying flat at the hospital after the procedure. The car ride home I had to sit but reclined back. I've been in bed only getting up to eat or use the restroom. I haven't done anything to jeopardize the effectiveness of the procedure!
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"Thanks for this!" says: | eva5667faliure (04-25-2016), PamelaJune (04-24-2016) |
04-24-2016, 11:19 PM | #17 | |||
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Senior Member
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It must be so frustrating and frightening for you both. I know with my mum she had so many X-rays and scans, including a nuclear scan and they still couldn't find the leak. I really hope Tuesday brings a positive result and your backup plan offers some solutions fast.
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"Thanks for this!" says: | eva5667faliure (04-25-2016) |
04-25-2016, 11:28 AM | #18 | |||
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Grand Magnate
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Not technologically with it Me
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