SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-04-2016, 04:30 PM #11
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default

Quote:
Originally Posted by david01 View Post
I kept a journal for a while but stopped. I just started wearing my Fitbit again. It's not 100% accurate but it does record good info.
My wife is my advocate. She takes me to every dr appointment as I'm physically unable to drive. I never imagined that would happen at the age of 44. I just started thinking about all the things I use to be able to do, so I'm logging off. It's just too dam upsetting to think about. I'll leave on this note. I was approved for SSDI this week. Wait that's depressing too. I'm out of here.....


Sent from my iPhone using Tapatalk
dear dave

i am happy you have not only an advocate
but she is your wife
i want to say
i so understand signing off

i was at a annual pap test
i too NEVER EVER FACTORED IN MY LIFE
"what if i get sick as we both are"

just not to long ago
april will be a year my termination of my municipal job

i am reduced to be in my bed most times to recoup
when getting a wind or burst of some energy

here goes

then i was asked
FOR THE VERY FIRST TIME HAS IT BEEN REFERRED TO
"so your retired"
i just burst into tears
i so get it
and i really sympathize with you
Dave
be careful
depression is cunning
be careful
and
try to get back to keeping a journal
you would be surprised to find some missing questions
be well
as well as you can be
i feel you loss
and we are still young
mine began feeling like i had a stiff neck
oh how that was not the case
take care
friend
me
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PamelaJune (03-04-2016)

advertisement
Old 04-01-2016, 12:03 AM #12
david01 david01 is offline
Junior Member
 
Join Date: Oct 2015
Posts: 22
8 yr Member
david01 david01 is offline
Junior Member
 
Join Date: Oct 2015
Posts: 22
8 yr Member
Default

Well... My headaches and light sensitivity have returned. I was scheduled to get my third blood patch Friday 4-1. Unfortunately my insurance company is playing games and won't approve it to be done at the same facility I had it done at in January. However they did approve it to be done at his office but not at the surgical center. I really don't want to be awake for it. At the same time I don't want to wait a week or two for them to find a place I can be put under.

If anyone reading this has had a blood patch while being awake, please reply or PM me.

If you have not, please don't reply! I want to keep this thread free of BS so anyone considering a pain pump can read what I've had to endure.
Thank you so much,
David


Sent from my iPhone using Tapatalk
david01 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-03-2016), PamelaJune (04-01-2016)
Old 04-01-2016, 07:57 PM #13
PamelaJune's Avatar
PamelaJune PamelaJune is offline
Senior Member
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
PamelaJune PamelaJune is offline
Senior Member
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
Default

David, I had my first blood patch done in hospital, the 2nd one a few years later at his practice. I had the choice of a local or local with twilight sedation, I chose twilight so don't really remember much of the experience other than the pinching when they injected the local. It went well, headaches dissipated. Sadly, they can return!

I opted for twilight because I have had a number of spinal injections and punctures done just under local, each time they hurt like hell and I vowed after the last I will never have anything done under a local again (not even the dentist). My GP explained my body is long used to a high level of pain relief to cover my pain, any extra pain, no matter how small can seem intolerable so a local anaesthetic often won't get the desired result.

Do ask your doctor if they offer sedation at his office, if not, lobby your insurance company or ask your doctor if he practices at another facility (they often do) and see if insurance will approve that one.

Quote:
Originally Posted by david01 View Post
Well... My headaches and light sensitivity have returned. I was scheduled to get my third blood patch Friday 4-1. Unfortunately my insurance company is playing games and won't approve it to be done at the same facility I had it done at in January. However they did approve it to be done at his office but not at the surgical center. I really don't want to be awake for it. At the same time I don't want to wait a week or two for them to find a place I can be put under.

If anyone reading this has had a blood patch while being awake, please reply or PM me.

If you have not, please don't reply! I want to keep this thread free of BS so anyone considering a pain pump can read what I've had to endure.
Thank you so much,
David


Sent from my iPhone using Tapatalk
__________________
I can still remember what life was like before pain became my life long companion
PamelaJune is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-03-2016), ger715 (04-02-2016)
Old 04-24-2016, 05:53 PM #14
david01 david01 is offline
Junior Member
 
Join Date: Oct 2015
Posts: 22
8 yr Member
david01 david01 is offline
Junior Member
 
Join Date: Oct 2015
Posts: 22
8 yr Member
Default

Update....
I had the blood patch done at his office #3. I couldn't wait any longer because the headaches and light sensitivity were so bad. I haven't been able to give an update because the patch didn't take. In fact I think it got worse. The light sensitivity is so bad I can't look at my computer screen or phone. My wife and I spent the last two weeks trying to get in to see a specialist.
My appointment was this past Friday. We thought I was going to have some kind of leak test / study done. Well, the only order the doctor had was for a blood patch #4. Several phone calls were made Friday morning to rectify this. Unfortunately the leak test wasn't going to happen. I was in so much pain, I wasn't about to leave without anything being done. So I went ahead with blood patch #4. If and or when this one fails we have a plan in place. The specialist was great. I believe I'm in good hands now.
I'm posting this now because when the light sensitivity comes back I won't be able too. I hate to say it, but I don't think this latest blood patch is working. I was feeling good yesterday but today some symptoms are returning. I'll know for sure if it worked or not by Tuesday. Fingers crossed!
David


Sent from my iPhone using Tapatalk
david01 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-25-2016)
Old 04-24-2016, 06:18 PM #15
PamelaJune's Avatar
PamelaJune PamelaJune is offline
Senior Member
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
PamelaJune PamelaJune is offline
Senior Member
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
Default

David, post the procedures have they got you lying completely flat for up to 4 hours or more? When coming home from the office are you sitting up in a car or lying flat?

Blood patches don't always take, quite often they need to find the exact point of leak but that can be extremely hard. My mum was in hospital for 4 months, had numerous blood patches, scans of all different sorts and they never found the exact spot. She even had tissue gauze stuffed up her nostrils for 24 hours, they were able to determine through testing the gauze there definitely was a leak but that was it, nothing more and the blood patches, unlike mine, never took. Post mums procedures they allowed her to get up and go to the toilet and move around in the bed, they were not strict with her at all. Post my procedures, each time, I was on strict lay flat for 4 hours, they even gave me a catheter for the first one so I would not need to get up.

There is hope however, 15 months on, she lives a good active life and her headaches and vertigo don't seem to bother her as much as they did, and has not needed to go to hospital again. Stay strong, I hope you can get some answers soon

Quote:
Originally Posted by david01 View Post
Update....
I had the blood patch done at his office #3. I couldn't wait any longer because the headaches and light sensitivity were so bad. I haven't been able to give an update because the patch didn't take. In fact I think it got worse. The light sensitivity is so bad I can't look at my computer screen or phone. My wife and I spent the last two weeks trying to get in to see a specialist.
My appointment was this past Friday. We thought I was going to have some kind of leak test / study done. Well, the only order the doctor had was for a blood patch #4. Several phone calls were made Friday morning to rectify this. Unfortunately the leak test wasn't going to happen. I was in so much pain, I wasn't about to leave without anything being done. So I went ahead with blood patch #4. If and or when this one fails we have a plan in place. The specialist was great. I believe I'm in good hands now.
I'm posting this now because when the light sensitivity comes back I won't be able too. I hate to say it, but I don't think this latest blood patch is working. I was feeling good yesterday but today some symptoms are returning. I'll know for sure if it worked or not by Tuesday. Fingers crossed!
David


Sent from my iPhone using Tapatalk
__________________
I can still remember what life was like before pain became my life long companion
PamelaJune is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-25-2016)
Old 04-24-2016, 09:35 PM #16
david01 david01 is offline
Junior Member
 
Join Date: Oct 2015
Posts: 22
8 yr Member
david01 david01 is offline
Junior Member
 
Join Date: Oct 2015
Posts: 22
8 yr Member
Default

I spent several hours lying flat at the hospital after the procedure. The car ride home I had to sit but reclined back. I've been in bed only getting up to eat or use the restroom. I haven't done anything to jeopardize the effectiveness of the procedure!



Sent from my iPhone using Tapatalk
david01 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-25-2016), PamelaJune (04-24-2016)
Old 04-24-2016, 11:19 PM #17
PamelaJune's Avatar
PamelaJune PamelaJune is offline
Senior Member
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
PamelaJune PamelaJune is offline
Senior Member
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
Default

It must be so frustrating and frightening for you both. I know with my mum she had so many X-rays and scans, including a nuclear scan and they still couldn't find the leak. I really hope Tuesday brings a positive result and your backup plan offers some solutions fast.

Quote:
Originally Posted by david01 View Post
I spent several hours lying flat at the hospital after the procedure. The car ride home I had to sit but reclined back. I've been in bed only getting up to eat or use the restroom. I haven't done anything to jeopardize the effectiveness of the procedure!



Sent from my iPhone using Tapatalk
__________________
I can still remember what life was like before pain became my life long companion
PamelaJune is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-25-2016)
Old 04-25-2016, 11:28 AM #18
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default When we try the recommendations

Quote:
Originally Posted by david01 View Post
I spent several hours lying flat at the hospital after the procedure. The car ride home I had to sit but reclined back. I've been in bed only getting up to eat or use the restroom. I haven't done anything to jeopardize the effectiveness of the procedure!


Suggested for us to try and try again and again and again
I hear you
Dear David
Very sorry to hear the news
I know you pay attention to your body
Explaining the feeling you are already experiencing
It is sad to hear
I hope the one you trust are comforting to you
There isn't anything worse then a doctor not listening
or paying close attention to what is going on
David are the any additional meds taken on a external level
Are you in this horrible state with any hope on the next step
finding the relief needed to function in this hard place we call earth
Having made my own decision entirely for different reasons
I am thinking of you when I too am in my pain
It isn't easy
You do have your support system
This is comforting to know you at least have that
Me


Sent from my iPhone using Tapatalk
I needed to start here I couldn't figure out what I was doing wrong
Not technologically with it
Me
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
MS, Chronic nerve pain and pain pump surgery Sissyt213 Medications & Treatments 1 01-23-2014 07:54 PM
Recalled Pain Pump problems besidemyself SCS & Pain Pumps 20 09-04-2012 01:25 AM
Pain Pump clamp to secure the catheter problems besidemyself SCS & Pain Pumps 4 08-09-2012 11:14 AM
Will pain pump work with multiple pain sources? magecharlie SCS & Pain Pumps 12 05-03-2012 09:12 AM


All times are GMT -5. The time now is 06:28 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.